In a similar situation to you. Met my partner at 35, incapacitated by chronic illness soon afterwards. Been battling it for the last 8 years. We were just trying to start a family when I became ill.
I’ll be honest, it’s been really heartbreaking at times. I realise I’m not a person who was always desperate for children- I would have had them younger if I was.
I was very career focused in a very rewarding career prior to being ill (working in international development, in maternal & infant health, women/girl’s rights and reproductive health for vulnerable people). I would have been happy doing that for the rest of my life I think, whether we had kids or not. But that’s been impossible to continue.
It was just impossible to think about having kids for a lot of the time I’ve been ill. I did have a good spell about five years ago when I was forty and raised it with DH. He was very frank with me and said that he didn’t want to endanger my health further, that he knew my health would deteriorate with the extra strain and pressure of parenthood.
The thing is, my health did slide again about six months later, so he was right and I know he did it out of love for me as well as wondering how he would cope as a parent if I was incapacitated. There’s probably part of me that will never forgive him for not even being willing to discuss it a bit further though. I’m not proud of myself for that but it is what it is tbh.
It’s really heartbreaking sometimes and I don’t know if I will ever get over the wistful thinking and what ifs, especially when people ask me if we’re thinking of starting a family soon (I’m quite petite and look younger than I am so I still get asked this fairly regularly even though I’m 45) or I see people playing with their children.
It would be different if I had managed to do something else with my life. I keep trying but whenever I think I am starting to make some headway I have a relapse. I am very lucky to have the people I have in my life, who love and support me. But it’s really hard a lot of the time.