I'm reading all the posts here and some are very sad in a way. I know nobody wants to put a beloved relative in a care home but if there isn't a support network, it's very difficult to cope alone. Dementia is a huge problem, many sufferers are physically active, strong, wilful and do reckless things; no one can be expected to watch them 24/7. I don't believe anyone should feel guilty about them being in a home; what they can do is see them often and make sure they are well looked after.
I (& husband) only have one child who will be forty soon. Who knows what will happen to us. He loves us and will do his best but we want him to live his life and he travels a lot for his work. Ideally we would like him to have a decent inheritance but anything could happen. We just live in hope and live for the day,
Our parents didn't go into homes, nor their parents. We helped with their care and were glad to but we didn't do it alone - and none had dementia. My mum didn't need any care, she was taken ill on a Thursday and died in hospital on the Saturday, aged 86. An awful blow for us but better for her than lingering with a severe, debilitating illness. She didn't leave much but had been generous in life. When my mother in law died we had her house and money which helped us a lot, paid off our mortgage. She died in her own home which was what she wanted and we were glad of that but especially that we'd been able to care for her.
I was in hospital for about eight days earlier this year. There was really nothing wrong with me but I'd slipped on my loose slipper coming downstairs, fell and hit my head on something hard at the bottom. I wasn't knocked out but was concussed, quite dozy. Well while I was in hospital I was put on a drip and given medication that nearly sent me doolally, also gave me diarrhoea! I was not allowed to go to the toilet with the drip, had to buzz for a nurse to come and disconnect it which meant waiting. It was dreadful and for some reason I found it difficult to walk, neither could I shower or even wash myself alone. I begged to go home.
When I was eventually discharged I came home, dirty and demoralised but I recovered immediately! I do not want to repeat the hospital experience, frankly I wouldn't trust anyone there. I've heard similar stories from other 'young-elderly' people and their loved ones. It's frightening to contemplate.