Donor consent law is being changed...

[flirtygirl]

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

Personally, I think the system needs another change:
If you opt out then you opt out as both a donor and as a receiver of organs.

And if you need a blood transfusion MrsBethel? I'm assuming you donate blood because it's rather hypocritical to expect blood when you need it and not have contributed to the 'pot'.

I'm not at all reassured by the answers given in that linked Q&A. The person answering seemed to constantly contradict themselves.

So a grieving mother or child is petty Bethel if they donate?

It isn’t petty to not want this. After what we went through I couldn’t ever put my dc through the same so would have to opt out.

How is that petty or selfish?

Don’t

I know Red, I'm still a donor but I'm very uncomfortable about the elastic understanding of consent.

Hysterical MrsBethel? Hardly.

If the NHS were to move to a system were decisions on who to treat were based on conditions of morality rather than medical need it would be a very different beast.

As for this gem:

It's aligning the interests of the individual with the interests of society.

Come on - put your thinking hat on.

I'm wondering if it's worth renewing my op out every year so it's always current.

Actually, I see no difference. NOK can override your wishes one way or the other, so whiter it's opt in or opt out it all comes down to what the family decides.

Not sure why it's billed as this big change.

NHS Blood and Transplant’s Specialist Nurses have a responsibility to determine the last known decision of a potential donor. The only way we can do this is if we speak to the family. They may have important information about the person’s decision around donation that is more recent than any decision recorded on the NHS Organ Donor Register.

Why bother with the Register at all? It all comes down to the family, because they "might' have important information.

I don't agree with the new legislation and will be opting out. Is there a link to do this?

I would advise anyone who thinks when they are are brain dead then it's fair play to donate to watch this video that's not to say people should be left on life support indefinitely but that people have made recoveries after being declared brain dead.

www.organdonation.nhs.uk/register-to-donate/refuse-to-donate/refuse-donation-form/
I opted out. Until this English law change I would have opted in but the principle of everyone opted in unless they opt out was a step too far for me.

Well, they pretty much do this in Israel. If two people need the same organ, the one who has held a donor card the longest gets it

So a 23 year old will get the organ over a 13 year old, despite it possibly not making the 23 year old much better? Just because 23 has been on register whilst 13 cant go on the register?
Great way to waste organs, time, money etc.
After all the holier than thou posts on here I opted out.
I would not ever want to receive so dont bother saying it. I believe when it's your time to die that's it. So if I believe that for myself, I should believe that for all.

Treefloof I found this :

Well, they pretty much do this in Israel. If two people need the same organ, the one who has held a donor card the longest gets it

one of the most bizarre posts. By the reckoning of that OP a 78 year old who has been on the register since they were 18 takes precedence over a 38 year old who has also been on the register since 18? Young people discriminated against by virtue of something they have no control over? As babies and toddlers can't register what happens to them then?

I don't believe for one minute that is how the system works in Israel.

well.blogs.nytimes.com/2012/02/16/in-israel-a-new-approach-to-organ-donation/

Apparently true!!!

Well colour me surprised! Although that article doesn't mention length of time on the register which is what pp stated.

FFS! Wow. Glad I don't live in a place where morality, which is subjective, is used to determine life-saving treatment. Fuck me gently with a chainsaw.

I also read that Israel keeps patients on life support indefinitely. There is no taking people off, they are left on.

I think recipients should be based on need and close medical matching. I don't think it should be about whether they would have donated or not.

I would assume that if someone felt really strongly against donation, (rather than against presumed consent,) they would also be against receiving and would have opted out of being on a waiting list. However, I am also aware we humans don't always think logically...

It is quite complex if we start applying those kinds of factors to NHS treatment. You could just as easily say those of us who have paid the most tax get a priority service for example. Or only those who choose to work full time get to top of waiting lists or all kinds of complex criteria. mever mind the logical ones that if eating donuts all day means you are sick might not make doctors too sympathetic to you.

This has been talked about for years. I personally think it's a great idea. At least two of my relatives have needed transplants.

I am an organ donor, I always intended to be one an (not so) DM signed me up for a card when she realised she needed a transplant .

For those following this topic I just potted these regulations
Organ Donation (Deemed Consent) Act 2019 (Commencement No. 1) Regulations 2019 UK Statutory Instruments2019 No. 1262
www.legislation.gov.uk/uksi/2019/1262/contents/made

It looks like the law of deemed consent came in on 1 October 2019 (see 1 of the Act www.legislation.gov.uk/ukpga/2019/7/section/1/enacted )

"These Regulations commence certain provisions of the Organ Donation (Deemed Consent) Act 2019 (c.7) (“the 2019 Act”) on 1st October 2019. These are the first commencement regulations made under the 2019 Act. Section 3 came into force on the passing of the 2019 Act.

Regulation 2 brings into force section 1(5) of the 2019 Act for the purpose of making regulations (and section 1(1) so far as is necessary for that purpose). Section 1 of the 2019 Act amends section 3 (appropriate consent: adults) of the Human Tissue Act 2004 (c.30) (“the 2004 Act”) to set out when deemed consent amounts to appropriate consent for transplantation purposes. Section 1(5) of the 2019 Act amends section 3 of the 2004 Act to provide a power for the Secretary of State to make regulations to specify organs and tissues, to activities in relation to which deemed consent will not apply.

Regulation 2 also brings into force section 2(5) to (7) of the 2019 Act (and section 2(1) so far as it relates to section 2(5) to (7)) which makes related consequential amendments to the 2004 Act, including amendments which make the power, mentioned above, in section 1(5) of the 2019 Act to make regulations, subject to the affirmative procedure. "