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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

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Donor consent law is being changed...

895 replies

flirtygirl · 16/03/2019 10:39

Aibu to have expected more information before they changes the law, did they do a consultation? I feel miffed that it is now going to be deemed consent and you have to opt out.

But what if the system is down or the opt out which is digital and online, did not get stored properly? What about when you move and change address? Do you have to tell every medical practitioner manually as well?

There is no info it seems on what this will mean. If you have info or any helpful links please let me know, thanks

OP posts:
PippaPepperpot · 19/03/2019 08:52

"I believe anyone who opts out shouldn't be allowed an organ.

If you're not willing to contribute then you shouldn't get to benefit."

This is such a ridiculous standpoint. Thank goodness we don't live in a society where medical treatment is given based on perceived worthiness.

I will be opting out of presumed consent for all the reasons previously cited on this thread. However, that doesn't mean I won't be a donor. My family will know that I'm happy to donate and, should I die in such a way that makes it possible, I hope they will honour my wishes.

And if my organs go to someone who has chosen not to donate then that's just fine.

PippaPepperpot · 19/03/2019 09:05

However the thought of having my organs removed whilst my body is still on a ventilator really traumatises me.
We just don’t know enough about consciousness and passing on to guarantee the person is a shell at this point.

This makes a lot of sense, to me too. It's not simply a case of 'you'll be dead, you don't need them'. The level of ignorance and nastiness on this thread astounds me.

EBearhug · 19/03/2019 09:18

I will be opting out of presumed consent for all the reasons previously cited on this thread. However, that doesn't mean I won't be a donor. My family will know that I'm happy to donate and, should I die in such a way that makes it possible, I hope they will honour my wishes.

Surely if you've opted out, they wouldn't get asked?

flirtygirl · 19/03/2019 10:10

Ebearhug with opt out, the Nok are still asked but they can also override a person's decision to donate.

OP posts:
Puzzledandpissedoff · 19/03/2019 10:27

Surely if you've opted out, they wouldn't get asked?

I don't know the answer to that, but let's be realistic ... faced with an ideal candidate for donation (who still won't be all that many) and a known, urgent need, is it really likely that the team will hold back from asking?

NoCauseRebel · 19/03/2019 11:18

By far the ones most lacking in compassion or empathy on this thread are the ones calling for the law to b changed in order to ensure you don’t receive an organ if you weren’t prepared to give, and those stating that a dead body is purely a shell even though there are people on here who have lost loved ones and who have found the donation process utterly traumatising.

Given the choice between donating my organs to someone who happened not to b on the donor register and someone who believes that your entitlement to an organ should be based on what you’re prepared to (hypothetically) give, it wouldn’t be those not on the register who I wouldn’t want to donate to.

The people stating they would opt out for whatever reasons arn’t the ones posting the vilest comments. The ones with the vilest attitudes are the ones who seem to think that they are the ones with morals. Me thinks not.

BreakYourselfAgainstMyStones · 19/03/2019 11:52

People can use the "it's just a body" or "it's an empty shell" point of view all they like,but wait until the day that your precious child is lying there, brain dead, but still warm, still beautiful, still looking very much alive, that gorgeous face you looked at and loved every single day of their tiny life still looking like their eyes will open.

Then you watch them getting wheeled away knowing that you won't be there for their last breath and you'll never be able to hold them again.

You can fuck off with you "it's an empty shell" shit really.

That completely undermines everything those of us who CHOOSE to make the GIFT of organ donation have been through.

pootyisabadcat · 19/03/2019 12:35

Brilliant post, Break. Flowers

And I 100% agree, NoCause.

Xenia · 19/03/2019 13:05

What is sad is that because of the law change people like I am who had agreed to be a donor now opt out. I don't mind at the time my children changing that if it's appropriate I do want to be on the opted out register for now and therefore I did opt out the other day.

Maldives2006 · 19/03/2019 13:27

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BreakYourselfAgainstMyStones · 19/03/2019 13:31

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Maldives2006 · 19/03/2019 13:32

Just a heartbreaking postFlowers, people can not imagine the pain that you go through in that situation therefore it’s easy for them to make nonsense and heartless comments.

Any parent/family who make the decision to donate their loved ones organs really are true hero’s and I really hope that in any way in time it brings a small comfort.

Maldives2006 · 19/03/2019 13:34

I was replying to another comment regarding “if you’re not willing to donate organs then you shouldn’t be able to recieve organs”Confused

Maldives2006 · 19/03/2019 13:36

I was replying to Prequelles post at the beginning of the thread.

pootyisabadcat · 19/03/2019 13:39

Would you be happy to tell parents/people that you’re sentencing their child/them to a long horrible death?

Equating people who do not donate organs (or their children's organs if they are minors), for whatever reason they have, to murders is absolutely disgusting. People who do not donate are not criminals and are not complicit in anyone's death, the disease causes that. Likening non-donation to involuntary manslaughter is an erroneous and very dangerous line of thinking (which is sadly already being applied to curtain another form of bodily autonomy, reproductive rights, in a number of countries).

teyem · 19/03/2019 13:48

It's as though people feel that just because they feel they have a worthy cause they have license to invoke any kind of legislation or emotive moralising to achieve the aim without any regard for unintended fall-out.

You really have to wonder

Maldives2006 · 19/03/2019 14:21

This is who I was replying to at no point did I accuse people who refuse to donate as being murderers!!!

Again I think that people who choose to donate their loved ones organs are heroes.

I firmly that you can not stop people receiving an organ transplant even if they would not donate themselves.

Donor consent law is being changed...
teyem · 19/03/2019 14:27

Would you be happy to tell parents/people that you’re sentencing their child/them to a long horrible death?

Read your own post Maldives, have a look at the words you use, the presumptions inherent to your logic and then take some ownership for labelling non-donors as murderers.

MadAboutWands · 19/03/2019 14:34

Again I think that people who choose to donate their loved ones organs are heroes.
Actually I think the ones who are heroes are the ones who donate. Not the family. It’s not their body and tbh I dint think they should have anything to say on that matter.

Maldives2006 · 19/03/2019 14:37

Again read the comment I was replying to where they state that people who don’t donate should not be able to receive an organ.

I think that is completely wrong which is what I said and I asked Prequelle if she would be willing to tell the patient that they would not be able to receive an organ transplant therefore they would die!!

teyem · 19/03/2019 14:46

Ah, gotcha.

I do think all this talk of marching people in to rooms to apologise for their decisions and inventive emotive fictional scenarios meant to twist people's arms to reconsider their principles is ridiculous. On both sides.

This isn't how we come to decide on principles of ethics. It's not an episode of Hollyoaks.

ChardonnaysPrettySister · 19/03/2019 14:46

TBF, Maldives cross posted and her post was really misinterpreted.

Maldives2006 · 19/03/2019 14:49

Organ donation generally occurs because of brain death following a traumatic incident. The healthcare professionals are going to do what ever they can to make their loved ones passing as bearable as it is possible to be. If the relatives can not bear to donate their loved ones organs they should not be forced to do so.

To have the ability to think of others in those awful of circumstances is truly extraordinary and no one should ever judge anyone for not being able to consent.

The healthcare professionals in

liverbird10 · 19/03/2019 16:08

What is all the pointless garment rending and hysteria in this thread about?! If you want to opt out, simply opt out. Not hard, really.

Xenia · 19/03/2019 16:17

mot hard if you know about it but until I spotted this thread I did not know England was going to move to an opt out system in 2020 or whenever it is which changes our laws of hundreds of years and cuold be a precursor for other changes such as must give blood unless you opt out and all sorts else.