Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

FIL comments about son's DLA

202 replies

WWYDNameChange · 09/06/2018 14:31

First of all, apologies if this doesn't end up in paragraphs, it should have them, but the app always messes them up for me!

DS is 4 and severely Autistic. He's non verbal, doesn't understand language and can be extremely difficult to manage when out and about. We're currently hiring a SEN pram which is costing us a fortune whilst we wait for special twin one to be made (DS2 is almost 2 and also on the pathway)

Anyway. We see PIL maybe 3 times a month by their request. Tbh, the visits are always a bit stressful as FIL seems very unaware and unsympathetic towards his grandson. FWIW his youngest daughter is only 5 and StepMIL is a childminder, so it's not as if he's not used to being around small children or anything.

FIL seems obsessed with money and seems to 'jokingly' go on about what benefits we get. Even though myself and my Husband don't even claim half the stuff we're entitled to because we get by okay.

Now that our son is 4, we decided to apply for Hight Rate Mobility DLA. We spent months doing the form, which is a gruelling process, gathering all types of reports from different people and even sent in a mandatory reconsideration after he was rejected.

This week, the DLA have awarded DS high rate care and high rate mobility until 2031. I honestly sobbed for four hours with relief. This is absolutely life changing for us, we'll be able to order a car that's safe and big enough for the equipment we need to bring with us, as well as cutting down on the costs of taxis and trains (currently can't afford to run a car at all) DS has several appointments a month, all 10 miles away from home. It's currently a 3 hour round trip on the bus, whereas it's 20 minutes in the car. My Mum and Dad help out where they can, often with lifts and emotional support as they can't physically look either DS.

Anyway. DH phoned FIL to tell him the good news, my parents were over the moon for us and understand how hard we worked to get DS what he deserved. FIL's first and only comment was, 'Well my taxes better not be paying for it.'
Is this how people really feel? Is this what everyone will think of us? Will people really feel resentment at a disabled child being entitled to a mobility car to ensure his safety and quality of life?

I feel so hurt. I half want to give him the DLA form and tell him he's lucky his daughter doesn't meet any of the criteria. This was a celebration for us, even if tainted with a bit of sadness that our 4 year old is now officially severely mentally impaired (that's the name of the criteria he falls under for DLA)

We're supposed to be visiting tomorrow, I don't really want to go, but feel like I need to say something? WWYD? Is there any advice? Or is this something we should just get used to?

OP posts:
annandale · 13/06/2018 22:48

Yes let's add another layer of bureaucracy and cost to the DLA award process which is already gruelling to say the least, to eliminate what is doubtless a real but small pool of disabled people with multiple millions to their name. Most means testing costs more than it saves and is largely a propaganda exercise.

DotCottonssoggyfag · 13/06/2018 22:58

Your FIL is a twat.

zzzzz · 13/06/2018 23:29

This reply has been deleted

Message withdrawn at poster's request.

JellyTipisthebest · 14/06/2018 07:25

arrr what a horrible man.

Stop telling him stuff and start aplying for all the stuff you are able to you may not feel you need it but you do. put it in a account for dc then when a need come up you can use it. also start saving for their care when you are to old to do it or need a break or a family holiday

kaytee87 · 14/06/2018 07:29

FIL is an arse and I'd cut down contact.

Something jumped out at me though, you say you're not claiming benefits you're entitled to because you don't need them but then say you can't afford to run a car. Get claiming the benefits you're entitled to, it doesn't sound like you're rolling in it!

BlueEyedBengal · 14/06/2018 10:47

ZZZZZ totally agree with every word you have said let witches live a day in the shoes of a parent caring for a s n child and deal with the stress of dealing with financial stress that comes with that and then I will respect her opinion. I have a 25 yr old with autism a 10yr old with adhd and a 9 yr old with non verbal autism the 2 boys attend special school. The only one that claims is the 25 yrold as she can't work. I have been considering claiming for the 2 boys and saving it for the time they leave school. I haven't been on a proper holiday for 23yrs and haven't been out for 7 yrs as babysitting offers are non existent it's also a wonder I am still married after 29yrs. I tried to get a job for my own sanity to be honest, but therapy and hospital appointments for the 3 put a stop to that. So please tell me that my daughter that has nowhere near a chance of a normal life doesn't deserve something that helps get her from A to B. Every parent deserves a big pat on the back as it is the most important thing anyone con do, but a s n parent needs a massive hug and a good vent chat every now and then so please understand how much weight we carry ever moment every day with no rest. Respect for the children please also is much welcomed so a quick "hello ,how are you"? Would be wonderful alsoSmile

PlantWitch · 01/07/2021 12:15

He sounds like a arsehole. Also sadly not a uncommon view. Several of my extended family have made similar comments (also arseholes Grin) with regards to my daughters autism. Im NC with them, I would be considering the same if I was you

TheWitchersWife · 01/07/2021 12:24

🧟‍♂️🧟‍♂️🧟‍♂️

PlantWitch · 01/07/2021 12:32

@TheWitchersWife

🧟‍♂️🧟‍♂️🧟‍♂️
Oh dear I didn't notice, not sure how I ended up here. Don't mind me Grin
Throckmorton · 01/07/2021 12:50

My God, this is EXACTLY the kind of thing I want my taxes to pay for!! Please claimed everything else you are entitled to as well! As to twat-FIL, I'd be tempted to reply that as he clearly thinks so little of his grandson's welfare, he won't mind the fact you've decided not to see him again.

x2boys · 01/07/2021 12:54

Just ignore ,my son also gets HRM under SMI rules we have a mobilty car to and it was a fight to get it makes life a lot easier

x2boys · 01/07/2021 12:56

Oh zombie 🙄

Maggiesfarm · 01/07/2021 13:03

@Princess9891

What a horrible man! Let's hope he never has to 'depend' on the tax payer eh!
You are dead right there!

It's never a good idea to tell people what benefits you get.

Terhou · 01/07/2021 13:04

Does your FIL use the NHS? If so, next time he needs expensive treatment ask him why he's OK with the taxpayer paying for it.

SinkGirl · 01/07/2021 13:11

Fuck him and anyone else who judges. I guarantee you not one of them would want to switch places with us for a week (same situation here except it’s my 4YO twins who are both profoundly autistic). Our DLA forms for HRM are half done as I’m finding it so draining (they both get HRC). You know as well as I do how hard it is to get HRM under SMI rules so if you got a ten year award, you completely deserve it.

PearlclutchersInc · 01/07/2021 13:20

Your FIL is a mean minded grumpy old git. People do not object to benefits going to those who truly need them and I'd reckon that you do in spades.

Frankly, I'd avoid those 3 visits a month if I possibly could!

morfy · 01/07/2021 13:30

There are a lot of people who have similar opinions regarding disability benefits (or any benefits). I have learned that the best way to deal with it is simply keeping my mouth shut - I don't let anyone know about our PIP awards now, even close family. The only people I tell are any professionals where it's directly relevant (and I'm sure some of them are privately sneery about it too, but at least they have professional duty not to say it).

I get my own back by feeling a sense of satisfaction in claiming every single thing we can - make sure you apply for other financial entlements e.g. Carer's Allowance, top ups on UC/tax credits, warm home discount, Watersure plus, free carer entry to theme parks/zoo, short breaks funding, Family Fund, Freedom Pass, Blue Badge. I was about 4x better off once we got DLA (2 lots) due to all the extra financial benefits (and a higher income than my spiteful tax-paying DSIL).

HOkieCOkie · 01/07/2021 13:31

If you only claim for what you need and can’t afford to find yourself I have no issue.

HOkieCOkie · 01/07/2021 13:31

Fund*

NormanStangerson · 01/07/2021 13:32

@Whatshallidonowpeople

I know it's an unpopular view, but Yes, I don't see why the gov or tax payers should pay.
This view and the people that hold it, make me very sad indeed.

What exactly do you think disabled people and those who care for them should do, @Whatshallidonowpeople? What would you have them do?

NormanStangerson · 01/07/2021 13:34

I didn’t realise it was a zombie. Bugger. Nevermind, my sadness still stands.

lovelybitofsquirrell · 01/07/2021 13:40

VILE VILE man.

Speaking as a tax payer, i am more than happy for my tax's to help out towards making your families life a little easier. wishing you and your DC all the best.

Sidenote - claim for everything you can. no one will judge you and if they do they are stupid people who you dont need in your life,

ignore your dickhead FIL

Biker47 · 01/07/2021 13:59

Depending on how much he earns and his health situation, his taxes might not even be paying to cover his own existence let alone anyone else. If you know he's a low earner, maybe remind him of that fact, also remind him that it's his fucking grandson he's talking about as well.

PreacherTeacher · 01/07/2021 14:13

Bit late to the party but just wanted to say that I am absolutely delighted that my taxes contribute to situations like yours.

You genuinely need some support to help your family out. Please don't let other people make you feel bad about it. It's for your son's benefit.

I well you and your family all the best.

OchonAgusOchonOh · 01/07/2021 14:14

@Whatshallidonowpeople

I know it's an unpopular view, but Yes, I don't see why the gov or tax payers should pay.
What about schools? Should taxpayer money be used to pay for the education of your children? After all, not everyone has children.

What about healthcare? Should taxpayer money be used to pay for that?

More to the point, do you want to live in a society where nobody gets any extra help and everyone is left to their own devices in terms of healthcare, education, housing etc? Because that is basically what you are advocating.