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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

FIL comments about son's DLA

202 replies

WWYDNameChange · 09/06/2018 14:31

First of all, apologies if this doesn't end up in paragraphs, it should have them, but the app always messes them up for me!

DS is 4 and severely Autistic. He's non verbal, doesn't understand language and can be extremely difficult to manage when out and about. We're currently hiring a SEN pram which is costing us a fortune whilst we wait for special twin one to be made (DS2 is almost 2 and also on the pathway)

Anyway. We see PIL maybe 3 times a month by their request. Tbh, the visits are always a bit stressful as FIL seems very unaware and unsympathetic towards his grandson. FWIW his youngest daughter is only 5 and StepMIL is a childminder, so it's not as if he's not used to being around small children or anything.

FIL seems obsessed with money and seems to 'jokingly' go on about what benefits we get. Even though myself and my Husband don't even claim half the stuff we're entitled to because we get by okay.

Now that our son is 4, we decided to apply for Hight Rate Mobility DLA. We spent months doing the form, which is a gruelling process, gathering all types of reports from different people and even sent in a mandatory reconsideration after he was rejected.

This week, the DLA have awarded DS high rate care and high rate mobility until 2031. I honestly sobbed for four hours with relief. This is absolutely life changing for us, we'll be able to order a car that's safe and big enough for the equipment we need to bring with us, as well as cutting down on the costs of taxis and trains (currently can't afford to run a car at all) DS has several appointments a month, all 10 miles away from home. It's currently a 3 hour round trip on the bus, whereas it's 20 minutes in the car. My Mum and Dad help out where they can, often with lifts and emotional support as they can't physically look either DS.

Anyway. DH phoned FIL to tell him the good news, my parents were over the moon for us and understand how hard we worked to get DS what he deserved. FIL's first and only comment was, 'Well my taxes better not be paying for it.'
Is this how people really feel? Is this what everyone will think of us? Will people really feel resentment at a disabled child being entitled to a mobility car to ensure his safety and quality of life?

I feel so hurt. I half want to give him the DLA form and tell him he's lucky his daughter doesn't meet any of the criteria. This was a celebration for us, even if tainted with a bit of sadness that our 4 year old is now officially severely mentally impaired (that's the name of the criteria he falls under for DLA)

We're supposed to be visiting tomorrow, I don't really want to go, but feel like I need to say something? WWYD? Is there any advice? Or is this something we should just get used to?

OP posts:
Fairylea · 09/06/2018 15:17

GrinGrin oh I smiled when I read the part about the sunroof! We have done exactly the same - gone for a car with a massive clear sun roof! He loves to sit and look up at the clouds when we drive!

Everything is a battle isn’t it. People just don’t understand. Well many don’t. Our EHCP took a whole year of fighting too. Originally they wanted to send him to mainstream and it was only when every single mainstream school refused to take him saying they couldn’t meet his needs that we were then offered a complex needs place.

The dla makes such a massive difference to our family. It’s the difference between just surviving and actually living a decent life.

EggysMom · 09/06/2018 15:18

I've faced a similar reaction online, but fortunately not from our own family. My usual response online is to shame them by pointing out that the HRC/HRM award to age 16 effectively says my child "will require continually high levels of care and attention for the rest of his childhood, and is never going to improve". It's harsh but true. I'd give anything for somebody to say that our son will talk, he will understand the world, he will react normally, he will be safe. But even the DWP - who are notorious for declining awards - think my son will never be able to look after himself.

Flowers
FoxySamanthaPetersonTheCat · 09/06/2018 15:22

Firstly OP as someone who’s son also claims DLA due to autism and ADHD I am really happy for you that you got the DLA your son is entitled to. If you haven’t already look into claiming carers allowance as well. You deserve that.

As for your FIL..... just what a total fucking cunt. Firstly for thinking that way at allbut worse, thinking that way about his own family. He’s seen with his own eyes the struggle you’re going through, the limits it puts on your sons life (and yours as well, because it does) and the love and dedication you show your children.

HollowTalk · 09/06/2018 15:23

Your FIL sounds horrible and I'd certainly wait a while before being in touch with him again.

You say you're not claiming all you could - I really think you need to reconsider this. You're in a difficult position and any extra money will help you to care for your family. You should claim everything you're entitled to - if you don't need it all (very unlikely) you should put some aside for a rainy day.

And stop telling your FIL anything. It would make my day if he did make a complaint to HMRC - I'd love to see their reply.

AnneLovesGilbert · 09/06/2018 15:31

As hollow says, please please claim every single penny you can. That’s exactly what I want my taxes going on, support to make the lives of wonderful people like you and your sons a bit easier.

Don’t visit PIL tomorrow. Of course you’re angry, disappointed and sad. He’s shown you exactly what he thinks of you and his pitiful ignorance isn’t an excuse for being a fucking twat.

I totally get why you told them your good news! It’s life changing and the least you deserve given the challenges your family faces.

Plan a day you want tomorrow with your own family, your kind supportive parents or some nice friends. These bellends don’t deserve your company and it’ll be awkward as arse. Which is their fault. Not yours.

Branleuse · 09/06/2018 15:32

id stop the visits and tell him to fuck the fuck off

WWYDNameChange · 09/06/2018 15:35

@hollowtalk
Thank you, DH claims carer's allowance as up until last month I was at university. In October I'm due to start a new job. In the interim we're entitled to things like Housing Benefit etc but we've just never really bothered because we just about get by. I suppose you're right though, we are entitled to it and it's not like we're never working ever again!

OP posts:
HollowTalk · 09/06/2018 15:38

You are entitled to it. This is what we pay our taxes for, so that the weakest in society are helped. That's what you were paying for, before your son was born. Claim it and put the money in the bank - you will need it in the future for respite, breaks away, replacing broken things and just generally things to make life easier for everyone. Nobody but a waste of space would begrudge you that.

CrumpetsReconsidered · 09/06/2018 15:41

OP well done for getting this result for your child. I have some insight into how soul destroying application processes are and I hate the way our system makes people feel undeserving of social support. I for one am more tham happy for taxes supporting people in society who need it. Could be any one of us one day. Your FIL sounds like a bitter, disablist git. If it were me I would be avoiding FIL. Why waste precious energy on him?

LimboLuna · 09/06/2018 15:53

Your FIL sounds a dick, I think you either need to stop telling him stuff or you need to pick him up every single time he does it. It depends if your prepared for the fall out that may cause though.

Please do claim everything your entitled to, it opens doors to other things, so lower rates on electric supplies and things like that. So its worth claiming, lets face it, your not going to get rich from any of it! Despite what your knobhead FIL says, but if it makes yours and your sons life easier its worth doing.

SandyY2K · 09/06/2018 16:06

Paragraphs are there. Don't worry about that.

Your FIL is rather odd. Not the reaction I'd expect from a family member at all.

In all honesty I'm very grateful to have DC that don't have special needs, so I wouldn't begrudge the benefits a child with SN gets.

At the end of the day...our taxes will go on one thing or another...so it doesn't make much of a difference.

He's not a very supportive parent is he.

earlybyrd · 09/06/2018 16:15

Only the very worst type of immoral person would think such a thing and you really should never concern yourself with the opinions of his sort, I really would try to minimise contact with this repulsive man if I were you Thanks

bluemascara · 09/06/2018 16:21

Your FIL is a horrible old bastard!
I'd keep contact to a bare minimum if I were you.
DLA is in place to support those in need, do not feel even a tiny bit guilty. This help will improve your quality of life as a family. Fuck him and anyone else who spreads negativity on the matter.
Good luck, enjoy your new car and the freedom it will bring for you all
Ah fuck I'm so raging on your behalf!!!!

Itchyknees · 09/06/2018 16:22

He’s a dickhead.

CoraPirbright · 09/06/2018 16:23

Is this how people really feel? Is this what everyone will think of us?

NO!!!!! I think most people will feel like I do - that this is precisely what I would wish my tax to be spent on & I am absolutely thrilled. I am so sorry that it has been such a battle getting this result and I am so glad it has turned out well. Your FIL is an utter cunt and I wouldnt be able to be civil to him. Could you put your visit off for a while? What does your DH think?

GingerIvy · 09/06/2018 17:53

I agree, your FIL is a dick for saying that. However, I will also mention that you will come across this mindset here and there, so a thick skin may be required.

I can say from experience that people will judge. People will always judge.

GingerIvy · 09/06/2018 17:58

I'll clarify that … sorry. I have children with disabilities. I have had the judgemental comments from people about all sorts of things related to it, including the whole DLA/CA/benefits stuff. It's stressful, but I try to ignore it. But it does happen - it's extra frustrating when it's a family member though.

BustopherJones · 09/06/2018 19:06

I bloody hope that’s what our taxes are paying for.

SlowlyShrinking · 09/06/2018 19:16

I’m so glad that some small part of my taxes are helping to support people like you and your family who need it Smile

starryeyed19 · 09/06/2018 19:18

He's an utter fucking dick. Forget him.

Babyroobs · 09/06/2018 19:24

why did you even tell him if you know what he's like ?

kissthealderman · 09/06/2018 19:24

This reply has been deleted

Message withdrawn at poster's request.

KateGrey · 09/06/2018 19:30

What an ignorant cunt! I have two children with disabilities. We claim DLA as I had to give up my well paid career to be their carer. My youngest is severely disabled. I would give anything to have children without any issues and would happily not take the benefits. But we need them. My mum used to say about how we claimed benefits plus a whole load of other crap. These people don’t and probably couldn’t walk in our shoes. Ignore him. And I’d be inclined not to visit if that is his attitude.

Mrskeats · 09/06/2018 19:38

The mark of a civilised country is how it cares for those that need extra help: whether that’s hospital treatment, dla or similar benefits etc. We all pay into the system so, hopefully, that help will be forthcoming.
Your fil is not a nice person: surely he should be so pleased that his grandson’s (and his parents too of course) life will be a bit easier?
Like others have said I would distance myself as you don’t need all that negativity in your life. It’s good that your parents are supportive though.

Isit7yet · 09/06/2018 19:53

You sound like wonderful parents and I personally am very glad that our taxes can contribute to your son's mobility needs.

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