@Sweetiebaby last night I wrote a long reply and was just about to post it when there was a huge clap of thunder, our kitten came hurtling off the windowsill in fear, ran straight on to my tablet and managed to delete it
so here is a very watered down version.
We have 2 kids, the youngest started displaying behavioral problems at about 11months old, we raised concerns and they were dismissed, I had seen and dealt with Autism before but what I was seeing in my own child was definitely not classic (Kanner's) Autism, I raised concerns many times over the years until eventually someone agreed with me that there was something different about our child and we did eventually get a diagnosis of an ASC amongst other things. During the years before diagnosis there was no help, no support, no understanding, there was no attempt by anyone else to see beyond the end of their noses, according to his school our case was not worthy enough to warrant an EP assessment...
How could we explain to our older child, their cousins, their aunts and uncles, grandparents, their friends and classmate's, their teachers, Joe blogs down the street why our younger child would become violent over the slightest thing? We were blamed and shamed by people who thought that we let our child run riot, that we spoilt our child, that we never said no to our child, and gave in to our child's every demand, the reality is far different, we were more strict with our younger child, we had to be in order to keep our child safe but we really were blundering about in the dark.
Once we had the diagnosis not much changed, our child still barely slept and once asleep suffered night terrors and sleepwalking, was still sensory defensive, became more isolated at school because of the violence so strategies were put in place but were then removed after a few days because "they were not working" our child became more confused over what was expected of him because the strategies weren't given enough time to work, and more violent at home and elsewhere because the anxiety about school had increased tenfold.
School eventually applied for and got a statement of SEN. And that's when our problems really began. The statement was about as much use as a chocolate teapot because the school refused to adhere to crucial aspects of it and they still refused to get EP involvement. We agreed to the school telling some other parents of our child's diagnosis as long as they agreed to respect our child's right to confidentiality they all agreed but by the end of the week every kid in the school and their parents knew of our child's various diagnosis and some parents used that knowledge to try and get our child permanently excluded, but all the time that the school said that they coping and managing the behaviour then we couldn't move schools but our child was being victimized, discriminated against and illegally excluded...
Our child became suicidal.
After an incident involving a member of staff i begged the school to admit defeat and tell the LA that they could no longer cope with our child, which they did, the LA agreed that it was no longer in our child's best interests to remain in mainstream education.
It still took us nearly a year to get our child into another school, its not been easy on all of us but my family and our lives are back on track. My older child and members of our extended family etc haven't been attacked for years.
So no, I don't think that anyone should know details of a child's personal, private and confidential medical diagnosis unless they need to know and can keep the confidentiality. Sharing our child's information cost us very dearly.