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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask how I am expected to encourage walking if she won't walk?

190 replies

ChocolateTeddyintheMicrowave · 28/12/2017 12:48

DD is 2.6 and has a hip dysplasia in both hips. I've been told the condition doesn't cause physical delay, but she didn't meet any of her physical milestones on time, she's been reviewed by a physio and paediatrician who both cannot see any other reason for a physical delay after full body X-rays, MRI scans and a CT.

DD only started walking at the end of April, just 2 months shy of her 2nd Birthday. When she walks she walks well, but the majority of the time she flat out refuses to walk. We've been told to "encourage walking where we can by not carrying her and to punish her for crawling where she can walk". We've also been told the condition doesn't cause any ill effects in the child and she should not suffer pain or stiffness.

Until the snow and ice set in DD was doing well and had gone days using walking instead of crawling compared to hours, and we hardly needed to pick her up. But now the very cold weather has set in we're back to square one. She's been lying in bed since she woke up screaming because I won't carry her, I've tried bribery, putting the heating on and just plain ignoring her but I'm going to have to pick her up soon as I need to go to the bank and the chemist in town, so we'll need to get dressed. Nursery said yesterday she hardly walked at all and was crawling everywhere, they have said they WILL not punish her for crawling as they're worried it'll discourage her from moving at all.

She has a speech delay and is struggling to tell us the problem so it's a bit of guess work but this is the only reason I can see her for her sudden problems. When I asked her orthopedic consultant and paediatrician they both said even if she would not walk I was to walk away and leave her crying, and to put her in a timeout if she crawls instead of walks, they said to be consistent and she'll get it eventually. They've said it's a behaviour issue NOT a hip dysplasia problem.

But nothings working. I've tried ignoring and she's still in bed after being awake since 8.30, and the time outs don't work as she doesn't understand why she's in it as she her she's just getting around. When i told the consultant/paeds this they both just shrugged and told me she had to walk as they'll be advising me to ditch the stroller when she gets to 3 and she can't crawl around outside safely. I've changed orthopedic consultant twice now and all 3 have said the same Hmm apparently it's the hospitals policy. And the paediatrician is good in all other areas so I don't want to change him unless I have to.

So what can I do? AIBU to carry my child when she's obviously struggling? and to not punish for her crawling instead of walking. It seems cruel to leave her crying in bed when I can do something about it.

OP posts:
kaytee87 · 30/12/2017 10:16

That's promising, remember to dose again 4 hours later. 4x in 24 hours. Do it for a couple of days to see if it makes a real difference. It won't do any harm x

Cakescakescakes · 30/12/2017 10:18

Chocolate I just wanted to send you a few words of support. I have a child with autism so a bit different (although he was a very late walker and had speech delay among his difficulties) but the experience of fighting and trying to access therapy and support is the same and it is so so draining both mentally and physically. I always felt like I was failing him and it was so so hard to get education authority and nhs support. I feel like I spent most of my life on the phone or writing emails/letters.

So hang in there - you are obviously a lovely mum to your DD and are doing your best for her. Wishing you the best of luck.

sashh · 30/12/2017 10:23

Not read everything on the thread, I was going to suggest sign but I see it is already in use.

OK a bit out there but what about animals? Do you have a friend with a very docile dog? One you could take for a walk but only if she is walking that day?

Maybe you could go to see a pony or a walk round a park to feed squirrels. Do you have a zoo near by?

Mishappening · 30/12/2017 10:25

They definitely said punish her, they said to put her in a time out for crawling instead of walking. What the heck!!?? I do not think so!!

cestlavielife · 30/12/2017 13:27

If they have explicitly said this "put her in time out for crawling" in the letter to gp and i writing then I think you should put in a complaint. And raise it with Steps charity .

It s not up to them how you parent.
Never done time out and would not for my dev delayed dc . Have worked with specialists in behaviour on positive reinforcement/ distraction/encouragement

If it was a suggestion made verbally then ignore .

feesh · 30/12/2017 13:49

A fear of handdriers and hoovers is pretty normal I think; my kids have all been like this and they don’t have any other issues. Plus I’ve seen loads of kids freaking out in toilets!

TheSkyAtNight · 30/12/2017 14:02

Fear of hand driers & wanting a snuggly carry is very normal for a 2 year old. Your poor dd does sound like she's in pain though as the warm & Calpol are helping. If she's hurting she'll want to be cuddled/carried more too as cuddles help with pain. Warm baths are especially good for pain, maybe at the end of the day if she's been standing/trying to walk a lot. Sounds like you're doing an amazing job of fighting for her. Would definitely get a GP appointment & ask for a referral for a second opinion too.

kaytee87 · 30/12/2017 14:03

My 17mo is scared of handriers too btw

MissDuke · 30/12/2017 14:17

OP I actually feel sick reading this thread. Your poor poor dd Sad It definitely sounds like her care has been badly mismanaged by her medical team.I am so glad you reached out for advice!

My dd1 had hip dysplasia and continued low muscle tone and hypermobility. DD2 had her hips scanned at 6 weeks and they were normal. However by 8 months she could not sit up at all so I asked the GP to refer her again and she had an X Ray later that day which came back normally. She still couldn't sit at all at 14 months so she had n MRI head and thankfully this also came back normal. Eventually she sat up at 18 months and crawled soon after, walking at just over 2. I took her swimming, to the park and to soft play every single week. I really think that this helped. She still has low muscle tone but not that most people would notice. She was recently assessed by OT for very poor hand writing and she said it is due to low tone in her upper body and arms hands and fingers. She now does football and gymnastics, loads of play doh, beads etc as she likes these activities and I am hoping it will continue to help.

It is so hard to know what to do for the best, but definitely keep questioning things and looking for alternatives!

ChocolateTeddyintheMicrowave · 30/12/2017 15:14

No zoo nearby but MIL does have a very docile greyhound who would happily walk with DD - this is a dog that will literally let DD sit on her and just sleeps through it. When DD first learnt to crawl she'd stand in the middle of the living room at MILs and DD would use her as a tunnel Grin so will definitely give MIL a call later on (she's working today) and see if the dog fancies a walk tomorrow or Monday. She is also trained to walk next to the pushchair so if needs be I can take that with me.

I've started messaging some of the local hotels to see if they have swimming pools, if they do I'm going to enquire how much it would be to just use them as a non-guest. They're all within walking distance of mine/my DMs and I'm at my mums once a week so can always take her there. Not expecting replies until the new year though. This was my DMs suggestion instead of going to the council run pool in the next town, it might be cheaper too!

We've been shopping this morning and DD spent a lot of time being carried or sat in the trolley seats I didn't take the pushchair but I'm not worried. There were children older than her in Tesco sat in the trolley seats. Gave her a second dosage of calpol while there and I'll give her another when she has her evening meal at 4pmish. She napped in the car which she doesn't usually do so it must be working!

She loves baths so that's a great suggestion TheSky, she also got lots of new bath toys for Christmas so I'm sure I can make it fun.

Thank you all for the continued tips and words of encouragement, I really do want to make 2018 better for DD, and as I said I really didn't think it was fair to her when it's not something she can help.

I do have a letter the consultant wrote to the Nursery asking them to follow the advise to punish DD if she crawls so will get a copy of that, don't necessarily want to complain but don't want other parents to be told the same wrong advise so will contact PALs on Tuesday.

OP posts:
cestlavielife · 30/12/2017 16:19

If they used the word "punish" then yes for sure complain.
If they said distract or encourage walking that is completely different. Tho clearly you went away with the idea you should literally punish your child which is wrong on many levels.
The hotels may have toddler swim sessions. Ask. Play the hip problem card ....

feesh · 30/12/2017 17:41

With regards to the pain, she might not know she’s in pain if it’s normal to her. I know this sounds ridiculous, but it was only when I had my hip replace age 30 that I realised how much pain I had lived with before then. If you’d asked me before, I’d have said none. Sure, I had wee little compensations I’d do out of habit and I would always park as close to the shop entrance as possible, etc etc, but I’d never have thought of myself as being in pain.

ChocolateTeddyintheMicrowave · 30/12/2017 18:38

feesh That's interesting re pain thank you, poor baby Sad

OP posts:
kaytee87 · 01/01/2018 10:03

Happy new year @ChocolateTeddyintheMicrowave how's the wee one getting on now with the paracetamol?

ChocolateTeddyintheMicrowave · 01/01/2018 13:55

Hi Kaytee Sorry for delay I'm at my mums for NY so it's a bit hectic getting internet with everyone.

DD seems better on regular doses of calpol, she's a lot happier (which I didn't think was possible as she's such a happy child anyway) and it's been easier to get her out of bed in the morning but has started napping in the day again since being on it, which doesn't worry me and won't bother the Nursery but just wondered if it's normal? I'm going to ring the doctors tomorrow and get a telephone consultation and discuss it with the GP but just wondered if anyone on here knows?

OP posts:
kaytee87 · 01/01/2018 14:01

It's defo normal to nap during the day at that age. She's obviously comfortable enough on the calpol to nap which is great! Sleeps so important for development too.
Just shows that sometimes mums know best eh Wink
The best bit of advice I got from a midwife after having my son was to follow my instincts.

kaytee87 · 01/01/2018 14:03

Also calpol doesn't make children sleepy if you're worrying about that. It just stops pain from disrupting what should be their normal sleep.

ChocolateTeddyintheMicrowave · 01/01/2018 14:10

Thank you, yes was worried it was making her sleepy, but your probably right it's due to her not being in pain anymore.

Wondering if there's a link between her dropping her nap and the pain starting? She stopped napping in November when it started to get colder here.

OP posts:
ChocolateTeddyintheMicrowave · 01/01/2018 14:16

Happy New Year to you too Smile

OP posts:
kaytee87 · 01/01/2018 14:27

There could well be a link. I know I can't sleep properly if I'm in pain, even if I am tired. I predict a good year for your dd Smile

Blueemeraldagain · 01/01/2018 20:02

Congratulations on everything you are doing for your daughter.

It may be that she's burning more energy if she's able to be more active now so needs her nap? If she dropped it when the cold set in that might link to her being less mobile due to the temperature drop causing more pain/discomfort.

goose1964 · 01/01/2018 20:40

I have undiagnosed ( as a child) hip dysplasia although mine is quite mild. I find that it pinches of I get it in some positions, and I can also feel it slide , wondering if DD has experienced this and is worried that it might hurt if she does it again,ie walking so she doesn't want to do it.

I can remember my PE teacher telling me I couldn't be in pain doing the hurdles at school ,that made my hip slide and pinch

Flopjustwantscoffee · 01/01/2018 21:04

I see that it's now seeming likely that she is actually in pain - but I was going to comment that even if it IS just "behavioural" (i.e. Stubbornness) then the gps advice to punish her for crawling/force her to walk is crap. I have a very stubborn child and when he was a toddler it was completely counter productive to turn this into a battle of wills. He didn't have issues with walking (except for a fairly normal preference for being carried) but if I tried to force him to do something he would most likely never do it again...

ChocolateTeddyintheMicrowave · 02/01/2018 09:16

Definitely pain!

Got her up half an hour earlier today (so was up at 6.30), gave her a hot water bottle, some warm milk and put the heating on.

By the time I got her to Nursery at 7.45 she was so happy. And I had to walk there as DH was at work, she was wrapped in her favourite knitted blanket and had a thick coat on, she was so happy to see her keyworker this morning as well Grin.

I'm WFH today doing the accounts for the kitchen I work in at the residential home as if DD needs me/is in too much pain I can go get her not that my boss would stop me if I was in work.

OP posts:
MatildaTheCat · 02/01/2018 09:36

So glad you are making progress.

I was a DDH baby. This was a looong time ago and it wasn’t picked up until 18 months. I was, of course a quite late walker and dragged one leg along. I then had over a year of treatment. I did walk eventually but would say that as a child I was a very reluctant walker as in ‘going for walks’ but very active in terms of swimming, sports etc. I was bendy so enjoyed gymnastics.

At the age of 12 I had surgery on both hips. After a pretty normal teenagehood of rejecting most sports I became a very active adult. I am and was prone to pretty much a joint injuries though, so do beware of this.

I’m now much older and despite a separate injury which has left me quite compromised, I still walk the dog and swim a lot. And my hips are holding out very well.

She will get there. You’ve had lots of tips and support so I’m glad you posted. I thoroughly agree with joining a specific UK based forum for more, specialised and current support.