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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I've got an hour before I get to my mums. Please peel me off the ceiling before I get there.

414 replies

TippyTinkleTrousers · 22/08/2017 19:50

We have two boys 10 and 6.

The six year old has multiple severe allergies and an immunodeficiency and been out of hospital a lot of his life.

He's anaphylactic to dairy, egg, banana, nuts, shell fish with a moderate allergy to wheat, soya, pollen, animal dander and more.

He sees a specialist in London Eva Lina and they test him annually. The allergies are getting worse but we are aware and in control of them.

He's never stayed away from us ever.
When we go somewhere I provide all food for him to make life easier for everyone. Mainly him!

Last night he stayed at my mums because I'm on a placement. I provided all food, said he just eats that.

She called me and asked if he could have lemonade. I say yes as long as the ingredients are just water sugar etc and no allergens.

She called me later and said "Can he have Rowntrees Ice Cream?"

I said "you don't mean ice cream do you? You most mean ice lollies, just the fruit juice."

She said "yes ice lollies."

2 hours later she calls me to tell me it was 63% skimmed milk powder in it and he's fine.

Doctors have specifically told us to totally avoid milk because we tried a baked milk challenge gave him baked milk and he had crippling stomach ache and dihorreha the next day for hours it was horrible.

We are now flooring it down the motorway telling her to give him antihistamines, it will take an hour to get there.

I was angry very very angry (though didn't shout at her I had to be calm and tell her what to do in case he started reacting) but now I'm sick with worry.

I mean this is fucking life or death. I'm astounding, shocked and relieved that afte 2 hours he has no symptoms but all is not over.

I will have to take tomorrow off because with experience he will be in screaming agony like last time.

For fuck sake.

This is his first every night away from me. I really trusted my mum. I really thought she knew that ice CREAM was a sign and she knew to read labels.

OP posts:
MissHavishamsleftdaffodil · 22/08/2017 21:53

Oh OP, nightmare Flowers

Hope he's ok and it's fright that's the worst of it. Poor little boy.

CatsAreAssholes · 22/08/2017 21:54

I don't understand why she called two hours later to say it was fine after apparently checking.

Why would she check again after he was fine?

It would make me question her motives and if she did know what she was giving him.

JoWithABow · 22/08/2017 21:56

Sending best wishes to you and your boy Op, so sorry you are going through this and hope all goes ok at the hospital Flowers
Im sure he'll be in good hands there.

Can't believe how unsupportive some people have been on this thread when the Op is clearly going through an awful time, it's really disappointing

Misstomrs · 22/08/2017 21:58

My DS has CMPA, undiagnosed until he was 5 months, during which time he just screamed, 18 hours a day. i have nothing but heartfelt sympathy for you wanting to get to your son and be with him after this terrible accident. If you can then try and keep your mum in the loop in a supportive way as I am sure she is desperate about it. She will probably also want to apologise, profusely, and have a cry about it at some point. Might be cathartic for both of you. Sending nothing but best wishes xxx

AmyGardner · 22/08/2017 22:00

Some dicks on this thread Hmm

There's a time and a place for that special AIBU brand of twattishness; this thread about a potentially seriously ill child really isn't it.

susurration · 22/08/2017 22:04

catsareassholes that's exactly what I was thinking too!

OP does your mum have a bit of an 'issue' with your son's allergies? I have a couple of allergies (pineapple- gives me swelling around my mouth and minor breathing difficulties but no anaphylaxis and Quorn- gives severe intestinal problems) and some of my own family are a bit gung-ho about 'a little bit won't hurt.' To which I always reply, yes, fine but i'll be calling you from the bathroom at 3am when the 'gastro-enteritis' type symptoms hit me. Unbelievable really, the way some people just ignore allergies. I'm really hoping I'm wrong about your mum here.

I hope your son is ok and you have managed to calm yourself a bit too. A strong cup of tea is in order for your nerves I think.

Penelopeg · 22/08/2017 22:09

Hope he's ok OP this must be terrifying.

loonyloo · 22/08/2017 22:09

MIL still says " Oh there weren't all these allergic kids in my time!" like it's our fault.

The thing that older people who say things like that forget is, in the past, there were lots of 'sickly' children - nobody really knew why, but they were always ill. You get a lot less of that nowadays.

Cherrytart6 · 22/08/2017 22:10

Good luck in hospital. Keep checking in and hope he's fine 🌷

DJBaggySmalls · 22/08/2017 22:11

We had this issue with DS1 and Nursery fed him milk 'by accident'. So did several other people. I think catsareassholes & susurration hit the nail on the head.
If your mother cannot tell what is milk and what isnt, then she can't be trusted to have him unsupervised.

I hope your Ds is alright Flowers

Lukeandlorelai4Ever · 22/08/2017 22:13

Hope all ok op Flowers

Whinesalot · 22/08/2017 22:13

Hope he's ok.

Ruralretreating · 22/08/2017 22:14

Hope he's ok Flowers

Namesarehard · 22/08/2017 22:16

Hope he's ok. I'd be fumming too.

HandsOffTheJaffaCake · 22/08/2017 22:16

OP never assume - at my sons previous school they gave my son with a dairy allergy chocolate mousse. He is not anaphylactic but the consequences were pretty horrible

FredLovesWilma · 22/08/2017 22:18

Hope your little boy is ok OP Flowers

HopefulHamster · 22/08/2017 22:18

Crossing everything for you.

My daughter had a reaction at 9 months to milk/egg/mustard (we are not sure). Vomiting within an hour then after we had gone to hospital and home again, lots of bloody nappies and more vomiting. Back to hospital. Doctors said don't give her those allergens again. Had to wait two years for testing and slow (at home introductions). Now she appears mostly fine (still have to test whole egg) and my friends say things like 'I never thought she was allergic anyway'. I had all the 'a little bit won't hurt will it' comments.

Maybe it wouldn't have done. But every time there was an accident (nursery gave her milk once) I was terrified that she would start bleeding again in the night. I would be furious if my parents did the same. And they possibly would. I grew up with my dad being 'allergic' to milk. As an adult I realise he never put milk/butter/cheese into things, but he also never checked ingredients. Yet fish/nuts will make him vomit in any form. So even in an allergic house they can be lax about ingredients.

Not sure what I'm saying here tbh. Except I hope he's okay. I'd be worried too.

I certainly wouldn't be posting like a complete know it all being unsupportive when the whole point of the site is being supportive to other parents.

AnnieAnoniMouse · 22/08/2017 22:22

Thanks for the update. Poor little love, it must be so scary, but he'll feel so much safer now you're there.

Hopefully the 'electric shocks' are just his body's way of warning him he's going through throw up (I get something that sounds the same, then overheat massively before I throw up).

Tiredtomybones · 22/08/2017 22:23

Dreadfully scary for you OP, please keep us updated. Crossing everything.

Cupoteap · 22/08/2017 22:23

Poor little thing, being made scared by what he heard is horrible. I hope that's the worst it is x

Tour · 22/08/2017 22:24

Hope he's ok

AHedgehogCanNeverBeBuggered · 22/08/2017 22:24

Best wishes for a speedy recovery for your poor DS. Flowers

MrsDc7 · 22/08/2017 22:26

Oh dear hope everything is okay!

SukiPutTheEarlGreyOn · 22/08/2017 22:27

Hope all goes well for your son. Sending you all good wishes during this scary time. You're a great mum and are doing the very best you can for your boy. 💐

HuckfromScandal · 22/08/2017 22:30

Hope he is ok xx