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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

I've got an hour before I get to my mums. Please peel me off the ceiling before I get there.

414 replies

TippyTinkleTrousers · 22/08/2017 19:50

We have two boys 10 and 6.

The six year old has multiple severe allergies and an immunodeficiency and been out of hospital a lot of his life.

He's anaphylactic to dairy, egg, banana, nuts, shell fish with a moderate allergy to wheat, soya, pollen, animal dander and more.

He sees a specialist in London Eva Lina and they test him annually. The allergies are getting worse but we are aware and in control of them.

He's never stayed away from us ever.
When we go somewhere I provide all food for him to make life easier for everyone. Mainly him!

Last night he stayed at my mums because I'm on a placement. I provided all food, said he just eats that.

She called me and asked if he could have lemonade. I say yes as long as the ingredients are just water sugar etc and no allergens.

She called me later and said "Can he have Rowntrees Ice Cream?"

I said "you don't mean ice cream do you? You most mean ice lollies, just the fruit juice."

She said "yes ice lollies."

2 hours later she calls me to tell me it was 63% skimmed milk powder in it and he's fine.

Doctors have specifically told us to totally avoid milk because we tried a baked milk challenge gave him baked milk and he had crippling stomach ache and dihorreha the next day for hours it was horrible.

We are now flooring it down the motorway telling her to give him antihistamines, it will take an hour to get there.

I was angry very very angry (though didn't shout at her I had to be calm and tell her what to do in case he started reacting) but now I'm sick with worry.

I mean this is fucking life or death. I'm astounding, shocked and relieved that afte 2 hours he has no symptoms but all is not over.

I will have to take tomorrow off because with experience he will be in screaming agony like last time.

For fuck sake.

This is his first every night away from me. I really trusted my mum. I really thought she knew that ice CREAM was a sign and she knew to read labels.

OP posts:
Decaffstilltastesweird · 22/08/2017 21:23

Jesus. People on this forum sometimes Hmm.

Op, I hope you and your DS are ok. It isn't yours, (or your DS's), fault. I hope this thread hasn't made you feel it is.

Update us to let us know he's ok, if and when you can.

HaudYerWheeshtBawbag · 22/08/2017 21:24

I wasn't going to post again, however I've re-read the OP comments again and seen he consumed it 2 hours ago (well over now)

So I take back the OTT comments... in all honestly OP I'd have told your Mum to take him to the nearest hospital, and given him the emergency care plan medicine (50ml of antihistamine and 10 puffs of blue inhaler and 15ml of prediscone) and ASAP his ass to the nearest hospital.

I do apologise I missed your post you said it was 2 hours ago.

Let us know how he is.

Tanaqui · 22/08/2017 21:25

I hope he is okay TTT- take care of yourself.

HaudYerWheeshtBawbag · 22/08/2017 21:25

(Sorry that emergency medicine is my ds's care plan, your child's is possibly different)

Decaffstilltastesweird · 22/08/2017 21:27

haud, I'm sure you're really knowledgeable and that's clearly out of necessity and personal experience.

But, even your apology post has a "well I would have done this" in it. Maybe not the time for that?

BrutusMcDogface · 22/08/2017 21:29

Hope he's ok Sad

I have coeliac disease and my reactions are horrific and agonising; not life threatening though (in one off doses, that is). To the poster who is worried about a granddaughter starting school, I'm sure she'll be fine. Schools are brilliant at recognising and catering for these things. A boy at my kids' school has a special coloured plate, for example, and many of the meal components are gluten free anyway, e.g. Sausages, gravy.

I know and work with kids who are anaphylactic and it's a real worry when someone unwittingly (or ignorantly Hmm) sends their child in with something that could cause a reaction in others.

Thinking of you all Flowers

Zubba · 22/08/2017 21:32

Jeez, plenty of muppets around tonight, I see.

Op, I'm sure you're busy, off dealing with the situation and I hope your son is ok. Best wishes and a big hug. I hope his reaction isn't too serious and you can spoil him with all the dairy free treats he can eat. ❤️

TippyTinkleTrousers · 22/08/2017 21:32

He's in the back of the car, appears fine but keeps saying he's 'getting electric shocks' which after some explaining from him is shivering that starts from his head and goes all through his body.

The car is ambient. And I've wrapped him up massively but he's still shivering.

It could be fear as he burst into tears when he got to me. He heard everything my mum was saying and my eldest DS said she wasn't filtering it at all.
So he was sobbing in fear half an hour ago.

Now he's just getting 'electric shocks' as he's describing them but I'm hoping he's just cold.

He's got blankets and we are warming the car.

OP posts:
PanannyPanoo · 22/08/2017 21:32

We had exactly the same problem with randoms . They come in a bag that is impossible to read the ingredients on. Tiny writing in the seam. My daughter knew that the fruit pastile lollies were ok. so picked these out. the pictures look like ice lolly rather than ice cream. There was a long queue so we bought them. Then I googled it. luckily she hadn't had any. I can understand exactly how this happened. I hope he is ok. I hope you and your mum can get passed it. It is terrifyingly easy to get it wrong. My daughter had a reaction after holding hands with a friend who had eaten cheese and onion crisps. Another after touching a super market trolley. When you are constantly on high alert it is stressful and exhausting. Hugs to you, your son and your mum. I imagine you are all feeling fraught and upset.

PanannyPanoo · 22/08/2017 21:35

has he had anti histamine?
It could well be anxiety. is he tense?

TippyTinkleTrousers · 22/08/2017 21:35

We're going to hospital.

OP posts:
EvilDoctorBallerinaDuck · 22/08/2017 21:35

My DS1 has a disease which means that he can't digest fat without medication. He's an adult now, but when he was little, I'd have gone nuts if anyone had given him anything with fat in without his pills. I wouldn't let him stay there again OP. 💐

Decaffstilltastesweird · 22/08/2017 21:36

Good luck at hospital op. Hopefully they will see you quickly and that he'll feel better soon.

blueskyinmarch · 22/08/2017 21:38

Hope your DS is ok OP. Poor wee soul.

Ceto · 22/08/2017 21:39

How on earth did Haud manage to interpret the original post as meaning he had the lollies 12 hours ago? It's perfectly obvious that OP and her husband got into the car as soon as they heard what had happened, which was two hours after her son had had the lolly.

OP, fingers crossed that this is just shock that your son is experiencing, though I'm really sorry you've all had this awful experience.

Sadmum23 · 22/08/2017 21:39

Oh my heart goes out to you and l hope your son is ok. I have children who suffer from severe allergies and it is terrifying seeming them struggle when reacting to something . You have not over reacted . Hope he and you are feeling better soon.

winterwinter · 22/08/2017 21:39

Is it even worth waiting for you to get there?? I would tell her to get him straight to hospital, symptoms or no symptoms.

winterwinter · 22/08/2017 21:41

Sorry, just saw your previous post. Sending you and your son all the best Flowers

Allthewaves · 22/08/2017 21:41

I'd be effervescent with rage. My kids are intolerant so not even on same playing field but dairy gives them the runs, mucus coughing etc no fun. Only worked this out this year with elimination diet - they r 4 and 6.

Mil thought fu*** ice cream would be ok Friday as a treat as it was a one off. I now have snotty, barking cough children with diarrhea - thanks mil

winterwinter · 22/08/2017 21:43

I am severely allergic to peanuts (anaphylactic) and have had people ask me if I can eat snickers bars. Also had people offer to serve me food "with the nuts taken off" Confused People do tend to be more allergy ignorant than you would like to hope.

Puffpaw · 22/08/2017 21:43

Best wishes op Flowers hope your son is ok. Your mum must be feeling devastated too.

User02 · 22/08/2017 21:47

MsHarry - I would not have given a child anything other than what I was given by the parent. I cant speak for OP's DM. Perhaps she thought she was doing well asking before giving anything. My household do have experiences of severe allergies, life and death ambulance runs and private car desperate dashes to hospitals. It is frightening and very difficult to deal with.

Waddlelikeapenguin · 22/08/2017 21:48

Hope all is well & hospital just a precautionFlowers

Flowersinyourhair · 22/08/2017 21:49

Hope he's ok op Flowers

Sugarpiehoneyeye · 22/08/2017 21:51

Thinking of you, what a dreadful situation, you found yourself in.
I hope your Son is alright, please look after yourself too, shock is mean.