This REALLY isn't on is it? Wtf are they thinking?

[WhatTheACTUALaarrgghh]

Found out there's a letter in my kids medical file. Basically saying they don't have what they have. The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically.

Anyway I said to my Drs why have it accepted this? They said they accepted it in good faith? Again I said but you KNOW the kids DO have these conditions ?? It's proven so you've accepted a letter from someone who is just lying and you have the medical info and test results right there you should have written back saying that no the child does have x,y,z and that should be the end of it???

What On earth are they thinking? I'm furious and they won't give me a straight answer

1:1 was requested by consultant and school agreed it is still in place as school disagree totally with what was written

OP, can you think of any reason at all as to why she would focus on you like this, in such an extreme way?

you are ludicrous for being angry at the doctors for doing the right thing

How exactly did the doctors do the right thing? They received a request from a school nurse who had no previous interaction with their patient, to stop essential medication and, with no investigation or discussion, they did this? That is absolutely NOT the right thing to do.

I'm struggling - so she never met your child?

You seem very very defensive.

The letter 'template' was basically this

Main concerns
Attention seeking and control exerted over supposed disabilities (lists them) No medical
Evidence to prove conditions
Financial support given and daily childcare plus household management obtained due to suppose disabilities
Deliberately stopping children joining in with any activities

In which case, I would agree with other users and make a formal complaint and request further information as to why false claims had been made, especially as they contradict every other professional involved in your child's care.

You seem very very defensive.

Probably because she's being gaslit by everyone she tries to complain to, and by people on this thread!

Put yourself in her shoes and ask yourself if you'd be calm. I can't understand these replies...

Speak to a solicitor.

You're not over reacting. It's irrelevant if everything has stayed the same because of other reports. This nurse had no right to do what she's done. I'd not only want it removed from the file I'd want her to lose her job. There's no reasonable explanation for what she's done. She's fucking crazy.

That's quite extraordinary and I would most certainly be putting in a complaint to the NMC.

Please don't take this the wrong way, but your writing style can be a bit hard to follow so you may want to get some help with getting the letter and clear and to the point as possible if you do this. (e.g. be very specific about what the problem was, relate it to NMC codes of conduct, and be very specific about the outcome that you want -- and make sure it is something that is within the NMC's powers).

You may want to consider putting in a Subject Access Request to get your daughter's full medical files from the GP just to see if there is anything else in there that you should be aware of. There is usually a small charge for photocopying/admin and you will need to fill in a form (I presume you have parental responsibility etc so could do this on her behalf).

She never met any of us
Only contact was after I'd found out she had called the gp and got a prescription stopped

Ugh, that is completely horrific -- PP who are saying you are overreacting are seriously mad. Of course you are upset!

I'd be making a formal complaint.

Seriously I think you should contact the NMC to have them consider whether she was acting appropriately, because it doesn't sound like it to me. Be as clear and factual as you can about her actions and why you are unhappy about them. They will consider it carefully and determine whether her actions were appropriate or whether she needs retraining, further supervision or should be struck off the register. If she's overstepped her professional boundaries with your family she may do it again to someone else. The NMC are there specifically to ensure nurses practice appropriately and safely.
I'm not sure about what you can do about the letter in the notes, I thought there was some system for having them removed or showing they were disputed, I will see if I can find it.

I just can't work out why she would do this. There's no logical reason surely she knew there would be a diagnosis you can't just make these things up.
She had also put that I had got inecesary involvement from specialist clinics for attention, again surely she would know that you can't just do that it have to be deferred assessed and need the therapy they don't just give appts on parental demand

Referred

No advice, but you're not overreacting. The letter was bad enough, but she stopped your daughter's medication? Jesus christ! And people saying "why are you defensive" - what kind of shit mother wouldn't defend her children from someone trying to deny them medical care for god's sake!! Of course you're fucking defensive!

YANBU one tiny bit. It is disturbing how much some people will defend nurses just because of their title. Slips are one thing, of course they're human and it's a stressful job, but this is bizarre, and if she's having slips like this, it needs to be reported, it's not right.

OP I think you should do subject access requests on you and your children - find out if she was interfering in more than just what you have seen. I would complain in writing to the surgery (particularly why they stopped a prescription on her say so) and to the NMC and be prepared to escalate it further. Maybe get help from CAB. Good luck

I did that - the 40 days has passed I am still
Waiting for the file and have been chasing it up

Sorry. only got to page three.
To those saying there is no cause for complaint as its a medical opinion.
Bollocks.
A medical opinion is not like your auntie's opinion
Medical reports are required to be factual and based on firm evidence
You cannot say 'I think she is making it up'
You can say 'based on x.y.z assessments/investigations I have to conclude that P is not suffering form XXXX condition'

A nurse cannot say 'She is lying for attention'. Its unlikely even Professor McMostQualifiedDrintheWorld would make that statement.

I have seen thousands of medical reports including those of parents suspected of Induced and Fabricated Illness and not one of them was like that nurse's letter.

Complain OP

You seem very very defensive
Are you having a laugh?

I also obtained the emails where she had repeatedly in the 3MONTHS leading up to writing the letter been in contact with the hospital basically tryingto get 'ammunition' at every point they had calmly told her that there were no concerns that they had set the care plan not me, that they did the training not me, that they recommended 1:1 and that medications were reviewed and changed/stopped only by them. Even with all my eveidence etc the gp won't say that they agree it's a false document

I'm having a massive deja vu with this - I've definitely read it before albeit some time ago. Am I the only one?

I don't think you are overreacting. Based on what she has written you would have expected her to have met with your children and you on several occasions to form those kinds of opinions.

Eds?

There was some nursing organisation paperwork shared in a group I'm in recently, linking eds and MBP