This REALLY isn't on is it? Wtf are they thinking?

[WhatTheACTUALaarrgghh]

Found out there's a letter in my kids medical file. Basically saying they don't have what they have. The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically.

Anyway I said to my Drs why have it accepted this? They said they accepted it in good faith? Again I said but you KNOW the kids DO have these conditions ?? It's proven so you've accepted a letter from someone who is just lying and you have the medical info and test results right there you should have written back saying that no the child does have x,y,z and that should be the end of it???

What On earth are they thinking? I'm furious and they won't give me a straight answer

This is shocking.

Currently there are no consequences and yes I have good support from other hcps but how do I know there won't at some point be consequences and even if not, I don't want it on our records it's untrue.
I will seek advice from a solicitor
One thing on this thread rings true to me and I'm wondering if it's to do with what a poster said about is being first to access more support etc and then her trying to discredit us as costcutting ? I can't see any other reason for it

Just got to PALS or MNC and be done with it as all your other attempts have failed or unstruct a solicitor you have the evidence just do it stop beating around the bush

Possibly, schools are trying to cut money due to budgets at the mo. Hope you get it sorted out OK.

It sounds like she had safeguarding issues and she suspected you of Munchausens by proxy. If she had those concerns she was literally duty bound to raise them. Harm comes to children who are victims of this if professionals don't report concerns or hunches.

It's hard to prove malicious intent in this situation - incompetence may be closer to the mark if she had misunderstood clear medical results.

Of course this means that sometimes concerns are raised about families where nothing is going on at all - and that is horribly upsetting.

I think your anger with the GP Isis misplaced. Her letter is part of your child's medical record - outweighed by the tests letters opinions etc. It would be wrong to conceal things that medical professionals get wrong - complaints rely on the records being intact.

I'm sorry - it must be horrible to be accused. I'm guessing there may be a back story of struggling to get diagnosis and an EDS or similar complex diagnosis where professionals don't get it.

Surely there should have been meetings and a proper investigation. She should have properly asked to meet us and children. The school said they had no contact other than her going to review the file and she seemed to only work for the service while she was concentrating on us ? I need proper advice to get to the bottom of it

Just a thought - as the letter isn't signed and is therefore anonymous, plus she was an agency staff member called in whenthere is already another school nurse, added that she has focused her investigation entirely on you and the cost aspects of your DC's conditions, could she even be a nurse? Might she be higher than that, or a specialist project manager brought in to evaluate cases where the care cost is quite large compared to the costs for the same condition elsewhere?

Her letter doesn't even sound like a medical letter, it sounds like a investigator!

An*

How do we know it's even the same person who phoned the GP? The person you spoke to may not be the same one who wrote the letter. Perhaps that was the medical arm of the investigation?

I don't think the conspiracy theories about secret investigators are at all likely. It is more likely that she perceived healthy looking children with lots of medical records and care needs and was concerned about the apparent mismatch. Munchausens by proxy does happen and perhaps she saw red flags for it. Obviously her concerns were not shared by the professionals that actually know your family and it never reached threshold for any sort of investigation.

I agree that NMC is the best way to get this all out in the open if she is not employed by the NHS.

I think that this 'School Nurse' was probably drafted in (as a Consultant) by the LA as part of a wider plan to cut SEN funding. She is probably very good at the job of cutting funding to SEN pupils and that is why the LA employer her Agency (eg: her). LAs often outsource these roles.
Just a suggestion to answer your questions about why. The whole thing is totally outrageous and unfortunately these so called 'professional' opinions aren't unheard of. YANBU

But she way, way stepped over the mark - why weren't you sent a copy of her 'opinions'; why did she get the medication changed; why did she write to DLA? Who the hell does this woman think she is?

I'd be asking the Local Authority SEN Team why this report was requested, what has been done with it and why you haven't received any copies of her report.

The thing is they aren't healthy looking sometimes look quite unwell but she never even asked to meet them so can't even allege that !

How do you know she wrote to DLA etc? I don;t think they usually write unless asked.

It all sounds very odd- unsigned? I thought they had to sign things. And if unsigned wouldn't it be disregarded?

Dla sent me a letter with the document saying they had been sent it, they sent me all evidence that they had been sent for the appeal

So this nurse sent them it? That is wrong surely.

Are you sure they don't work for DLA? Some nurses maybe work for different places.

Undated and unsigned I had to obtain the date and author through the gp and then hospital as she had contacted them. It took quite a while as it seemed to be that the gp didn't want to disclose the author initially

well the tribunals service should have all your other stuff at least, consultants reports etc?

Yes they h e everything in direct contradiction to what she wrote so I assume they will see it for what it is

(Kindly) I'd be getting off Mumsnet and availing myself of the complaints procedures of the school, the GP practice, PALs, the relevant nursing regulatory body, the local authority ombudsman and the data protection commissioner. By the time everyone had waded through that shitstorm she'd be basically unemployable.

It is scary that they can write to PIP /DLA etc. I am suprised at that.

I'll probably sound like a push over but if you know they have it and your Dr knows they have it then I'm not sure why it would matter if a school nurse says something else🤷🏻‍♀️. It sounds like it doesn't matter. I'd probably be mildly perplexed by it then completely forget about it.

OP Please think very carefully before entering a "no win - no fee" scenario.
If you do win the case then a fee is chargeable, but you may not be awarded sufficient compensation to pay this fee in full.
The law firm concerned may then be entitled to ask you to pay the balance.

Oops, sorry scrap my last post. I'd missed some of the OPs posts