This REALLY isn't on is it? Wtf are they thinking?

[WhatTheACTUALaarrgghh]

Found out there's a letter in my kids medical file. Basically saying they don't have what they have. The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically.

Anyway I said to my Drs why have it accepted this? They said they accepted it in good faith? Again I said but you KNOW the kids DO have these conditions ?? It's proven so you've accepted a letter from someone who is just lying and you have the medical info and test results right there you should have written back saying that no the child does have x,y,z and that should be the end of it???

What On earth are they thinking? I'm furious and they won't give me a straight answer

Keeping all communicaions on file is NOT in any way the same as condoning or agreeing with the contents of the communications, it just confirms that the communicaion has been had and what it said.

She never met the children

Go through PALs and firmly request a proper investigation and explanation and explain why this letter is potentially so damaging. If there are untrue facts such as having a paid for cleaner, say so clearly.

Write to the surgery a very clear letter stating why the opinion is factually incorrect.

If you have no joy consider asking CAB for legal advice.

If the nurse has been found to be acting in an improper fashion consider reporting her to the NMC.

Not quite the same but I was told by a doctor I couldn't have my condition as it's children that get it and grow out of it. I didn't sit through 50+ blood tests including ones sent to the only place in England that can test for specific antibodies for nothing and I guess haematology diagnosed me for the fun of it (!) not to mention the painful drug so I don't get sepsis...
He also asked why I had this condition
"Because it's autoimmune"
"So why do you have it?"
"If I knew that I would be very, very rich"

She asked to meet my daughter after reading her file and link book as apparently wanted to see what medical equipment she had but the school told me they said no as her role was only to come in and review the files of children with health needs
She has never met me or my children I spoke ti her once in the phone after she had called my gp and requested they stop a prescription I had to get the consultant reinstate it and then asked her why on earth she had done that

But if that's the case it'll be obvious and she'll only make herself look unprofessional, in which case what are you worried about?

If the system allows school nurses to add documentation to medical files then that's just that. Anyone else medical who is riffling through is going to think she's the crazy one for refuting undeniable diagnoses, not that you are.

They can't refute or acknowledge this nurse's allegation as false because it is just a medical or professional opinion. If you have proven test results and letters from consultants who specialise in that field to say your kids have this condition then I don't understand why you are getting so upset. Her opinion is the one that doesn't correlate with the general medical consensus so isn't really that valid regarding your kids condition

Definitely a written complaint to the NMC with a demand for an apology and a retraction. I'd also lodge a formal written complaint with your GPs practice manager demanding the removal of the letter from your files. Any complaint not in writing is a complete waste of time.

Depends how far you want to take it but you may have grounds for a legal claim for defamation if you have the appetite for it. Probably not worth any money to you though.

The GP cannot just write back to a temp nurse who will not see the child again including test results

The GP can only share patients info if there is a clinical need, there is no clinical need to "correct" this nurse if she's never going to see your child again. so data sharing is not appropriate I would have thought.

Point out to all the people hiding behind the "professional opinion" mantra that the diagnoses aren't a matter of opinion, they're a matter of fact. I'd suggest considering a formal complaint to the nurse's professional body.

I just feel I'd have liked the gp support. For them to actually say yes we've had his letter we know it's incorrect but we can put a note alongside it not do what they did which was out it on all our notes keep it quiet and when I found it they acted awfully and panicked how did I see it? Did I have a copy? Etc etc and still they keep saying she did a proper investigation???! She didn't as she has the facts wrong and they know that . I've said it till I'm blue in the face to them

It doesn't make sense, why would your GP stop a prescription on the say so of a school nurse?

I think I remember your previous thread actually - was she just 'interested' in your daughter and wanted to meet her or something? No actual need.

She doesn't sound good at her job, I'll grant you, but I'm struggling to see what harm her letter will cause (except to her own career!).

I know that I have all the proof and she has nothing. Truth is on my side but I hate that kind of thing being written about us and I can't believe this woman is going into schools when she is clearly deluded

Yes she was apparently insistent on meeting her wanted to look at her equipment etc

Yes I think the NMC is the way forward

I'd be down the school asking the nurse why she sent that letter, what was the purpose of them sending it?

The chances of being there at the same time as the nurse are slim. Sadly, this isn't the way school nursing works anymore. Moving schools doesn't necessarily eliminate the problem either...centralised School Nursing teams do swap schools and each muck in because there are now so few nurses serving so many schools.

OP, a letter from a nurse won't hold much sway in medical notes. At all. What you want to ask about is the nursing notes and whether they reflect your children's additional needs. Hopefully there'll be a return correspondence in there from a doctor correcting this nurse's inaccuracies.

Did the nurse also send a copy of her letter to the DWP/DLA office?
Have you had a renewal notice or anything?

Whenever you need to contact anyone involved in your dc's care where they could access dc's medical records, make sure they see all your medical evidence.

Yes there was an appeal going on at the time the gp was asked to send a letter and form what I'm told itbwas sent to them as well by the nurse (although I'm not sure it wasn't the gp as when I asked for a copy of what they sent it was with the letter)

Ok, I know it's awful but you need to calm down! Most rational angry reactions would have the person thinking the other person had made a mistake/got muddled/wires crossed. Deciding she's deluded and intentionally wrote malicious lies make you sound a bit loopy

Dla have all the other evidence now as well so can surely see the letter was rubbish

V. Worrying.
I've read something like this before - re. a school denying a child had mental health condition so it didn't have to provide support (suggested the mum was making it up) - I think it was a blog linked on the 'taking parents seriously' Facebook page - I'm sure that person had advice based on their experiences.

as described this is in breach of the data protection act ico.org.uk/for-organisations/guide-to-data-protection/principle-6-rights/correcting-inaccurate-personal-data/
there are exemptions wrt not showing you records that will cause you harm but that is not clear here. see the link they must either remove the opinion or add a note to the effect that it is disputed.

There's no other explanation though. She, as a 'health professional' has denied genuine conditions and then made up random bits of information that I can easily disprove? Why should anyone sane do that or anyone who wants to have a career like this as surely she knew I'd dispute it and have proof ?

Just found it:
itmustbemum.wordpress.com