This REALLY isn't on is it? Wtf are they thinking?

[WhatTheACTUALaarrgghh]

Found out there's a letter in my kids medical file. Basically saying they don't have what they have. The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically.

Anyway I said to my Drs why have it accepted this? They said they accepted it in good faith? Again I said but you KNOW the kids DO have these conditions ?? It's proven so you've accepted a letter from someone who is just lying and you have the medical info and test results right there you should have written back saying that no the child does have x,y,z and that should be the end of it???

What On earth are they thinking? I'm furious and they won't give me a straight answer

rebelnotaslave "Down's syndrome is testable."

You have either misread or not understood the OP. She said:-

"The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically."

So she's saying that it's not Down's syndrome, but like Down's Syndrome it is not non-specific and untestable. That means the OP knows the condition exists in her child/children, as do the doctors.

I don't understand how she can stop a prescription. That warrants a complaint to your surgery. The rest sounds completely bizarre. You don't happen to be from Scotland?

As I said What most people's first thought would be that she made a mistake and confused two families in some way, or misunderstood something.

I know how infuriating it is when the incorrect info is put on file, I've had it frequently - ds psychiatrist clearly can't even remember what medication he's prescribed (!) . Make sure you get your response to it put on file

No from England. She basically called them said my daughter was being over medicated and stop the prescription which they did on her say so after she had been to the school
When I couldn't get it reinstated her consultant did straightbaway and then wrote to reiterate it is not to be changed unless it's on his orders

In the nicest possible way you are seriously over reacting.

It is one letter in amongst conclusive proof of your children's conditions. All of their test results and diagnoses are in their clinical system.

When a letter about a patient is received by a practice it is scanned into the patient's notes. It probably would never be looked at in the practice after the initial receipt. GPs tend not to just go through a patient's records for no reason at all, so chances are it was stuck in there and forgotten.

Of course the letter was received in good faith. All communications are.

There is no way that your GP or anyone in that practice could enters into a debate with that nurse, or give her information relating to your children's medical conditions. That is a massive breach of confidentiality and if your practice had done that then you would have the right to further action.

They received something. They filed it. They did not act on it.

I doubt that the nurse has singled your child out and is against you and your daughter / deliberately making up lies.

The nurse was probably requested to assess your child by the Local Authority, school, gp or a different health provider to give their opinion which they have done.

Do you know why the nurses involvement came about?

What's MNC?

It sounds like malpractice on the nurses part. If she's behaving unprofessionally with you, there will be numerous other victims I'm sure.

Is she definitely a qualified nurse?

I'm not sure. We had changed hospitals and new hospital have a vastly different approach to treatment and care and it was not liked by the school nursing team who work closely with the old hospital they kept saying she shouldn't have 1:1 and I think but I'm not sure hatbwas why she wanted to see her / look at files ? I'm not sure I may be working but otherwise I cannot work out why she got involved

Working=wrong

I'm 'flappy' because she has written really unpleasant things about my children and me

Sorry but this is insane!

So an agency nurse happened upon your daughter's file, asked to meet her and was told NO. She then contacted your GP to stop her medication, wrote a letter to them telling them you're a loopy, attention-seeking parent who's LYING about her kids' proven, tested conditions, sent a copy of this letter to the DLA to scupper your appeal and questioned the school on why they needed 1:1?!

What? Seriously, what?!

Who the fuck is this woman?

Definitely go to the NMC. She should have to give them an explanation for her bizarre (at best) behaviour.

How would anyone with unwell children like to be called a liar and lazy and attention seeking? Yes I can prove it's all untrue and I'm trying but I have alotbto so anyway and it's added stress we don't need
Not to mention the fact there's a seriously underqualified nurse out there who needs to actually be held to account

You can't demand the medical record be changed and you are ludicrous for being angry at the doctors for doing the right thing. Even if you dispute the record changing it has so many medicilegal implications and if this were allowed all sorts of other things would be too. Leave it be

It is possible that the assessment was requested to see if the 1:1 care was needed then. This is not unusual. 1:1 care is very expensive and only provided when absolutely necessary.

It seems that the outcome of the nurses assessment is that your child's needs are not as you say they are and the 1:1 support is not required.

When did the assessment take place?
Is the 1:1 care still in place?
Aside from seeing this letter accidentally has there been any other outcome following the nurses report?

Why is OP being called crazy? I'd be worried this woman had some sort of vendetta against me, honestly. Race/religion/stigma attached to conditions, anything.

If OP's version of events is factual, this woman had absolutely no reason to do any of this but decided to anyway, she didn't even meet the child in question

I agree with Ella

Otherwise this is all very odd

I am a health care professional and have a DD with a lifelong (and fully testable so there is no debate that she has it) health condition. I would be livid if the school nurse did anything like this. Why on earth did the GP surgery change your DD's medication on the say of someone who had never met her? If there is no other recourse (as she appears to be self-employed) would definitely report to the NMC.

All those people who think the OP is overreacting would you be happy to have blatant lies about you recorded forever on official files? What happens when she tries to renew her DD's DLA and it is declined due to what this woman wrote? These things do follow you around, and if it was me I would want it rectified.

This is terrible Whatthe. I can see why you are both outraged and concerned. The nurse sounds like she exceeded her authority in a most bizarre and unprofessional way.

I think you have every right to expect that the GPs will not put any store in these allegations and will reassure you of that. If they are disprovable, then why what possble useful infromation could they provide? As a PP said there are medical opinions and there are medical facts. If nothing else she sounds like she needs to be struck off undergo some professional development/ retraining for everyones' safety.

I'd pursue a complaint through any professional medical body you can and also look at libel/defamation. The awful woman could do real harm with such spurious allegations and you are probably not the first nor the last to on the end of her vindictiveness.

A lot of people fear malicious allegations being made to the DWP. It as a terrible worry. The fight for PIP/DLA/ school support can be very long and diffcul and utterly exhausting. Anone who has been through that process will understand the OP's horror that someone may make an unfounded allegation that attempts to and may suceed in undoing all of the support that has been hard fought for.

Stay strong OP.

How in the name of hell can a school nurse get a prescription cancelled? Surely that's way outside the responsiblities of their role?

I would actually concentrate on that OP, rather than the letter. But be prepared for it to damage relationships with your GP because I'm equally astonished that they'd do what she asked.

Has she actually written a letter to your GP saying you're lazy and attention seeking OP? I understand you don't want to be identifiable but where I'm getting the gist of what you're annoyed about, without any specifics at all what you're saying seems a bit far fetched.

I'd be consulting a solicitor.

I'd be consulting a solicitor.

Me too.