This REALLY isn't on is it? Wtf are they thinking?

[WhatTheACTUALaarrgghh]

Found out there's a letter in my kids medical file. Basically saying they don't have what they have. The conditions are not non specific and Untestable. Think for example (but it's not these conditions as dont want to give identifying info Downs syndrome, haemophilia and asthma) stuff you can't make up basically.

Anyway I said to my Drs why have it accepted this? They said they accepted it in good faith? Again I said but you KNOW the kids DO have these conditions ?? It's proven so you've accepted a letter from someone who is just lying and you have the medical info and test results right there you should have written back saying that no the child does have x,y,z and that should be the end of it???

What On earth are they thinking? I'm furious and they won't give me a straight answer

I'm another one who would go straight down the legal route. You have the letter and you have a right to see your children's medical notes. I'd be checking for any other made up shit!

You are not over reacting.

Yes I've posted before
Posting again as I'm repeatedly getting ignored every time I complain I can't get anywhere at all

I also obtained the emails where she had repeatedly in the 3MONTHS leading up to writing the letter been in contact with the hospital

Even with all my eveidence etc the gp won't say that they agree it's a false document

OP, you really need to go.down the formal complaint route. If everything is as you say it is, then this nurse has acted in a manner deserving of a disciplinary.

The school are being very supportive and have written for me. They told me as well that there was no formal investigation she only went in the once, and that if there had been any sort of investigation I'd have been involved as well as them

You need to contact the NMC. Nurses have a legal duty of care to their patients, which she has seriously neglected.
I'm not one for conspiracy theories/ dramatic conclusions, but from what you day op, she sounds almost like an imposter.

Getting nowhere at all with the gp or school nurse service it's extremely frustrating.

You need to make an official complaint - both to PALS and the Nursing and Midwifery Council - it seems totally outrageous that a temporary nurse - who never met your children

• wrote negative letters based on zero evidence and personal experience of your children that could negatively affect their treatment, school help and dla etc
• denies medical conditions which are proven to exist - with test evidence
• (and more seriously) gets consultant prescribed medication stopped without reference to the prescribing doctor

I do not understand the people who say you are "over-reacting" - I think anyone would be outraged by this type of treatment by a hcp

OP, please consult a solicitor, they will fight your case for you.

People who are telling the op she's overreacting have really not grasped the severity of the situation. I strongly suggest they read the thread again and again and don't comment again until they've understood it. Op, I would write a letter to practice manager asking them to remove the letter from the file. Also write to nurse's employer with a formal complaint. If it comes to it, threaten libel action.

The only information school nurse service would give was that she was an agency nurse. She was never on the official list of the school nurses either so no idea why she was drafted in. I had literally only met our school community nurse a month previously (and she was lovely) then it changed to this woman who went in and as far as I can tell did the same thing the first had done but without me there ? (I'd had a meeting gone through care needs etc and itbwas fine with the first nurse) wasn't expecting any more contact really so it was strange looking back that she went in so soon after

OP, very clear easy to follow steps to make a complaint to the NMC here:

www.nmc.org.uk/concerns-nurses-midwives/concerns-complaints-and-referrals/make-a-referral/

There is also a link to the correct form.

The school nurse service aren't really taking responsibility as they say she was an agency nurse and I have to go to PALS not them ?

As you have consultant letters a diagnoses for the GP that will be far more important than an opinion by a school nurse. It is concerning that she says 'no evidence of conditions'. I mean, was she not told in advance, it seems like may be some kind of lack in communication? Between the doctors and the school nurse? It is difficult to know what happened. But sounds like the nurse was not briefed of the conditions in advance, and seems to have made up her own mind based on little evidence. (hmm, starting to see similarities with those PIP / ESA health professionals who don't request info enough). It all sounds pretty odd. Hope you get it sorted out.

PALS are the Patient Advice and Liaison Service, I have found them pretty helpful in the past.

Beyond I could well believe that!

It's also the odd bits about daily childcare and household management due to supposed disabilities ? Why would you even say that ? It's easy to prove it wasn't the case and she must have realised she would be making herself look a fool.
Judging my the gp reaction I was never meant to see it so perhaps she bought she was immune and could just write what she wanted ? But why? Why jeopardise your own career ?

PALS info here:

www.nhs.uk/chq/pages/1082.aspx?CategoryID=68

Op she was not connected with the assesment ATOS type team for incapacity type benefits was she?

They have employed nurses and other health professionals.

You have every right to be seething, what a horrible shock for you.

This is unbelievable! This woman needs to account for her actions!

A nurse cannot say 'She is lying for attention'.

That doesn't actually appear to be what this nurse has said.

With respect OP, many here are riled by your account but you're giving snippets and even what you are giving us is your interpretation.

I'm sure there are others here too who have a bit of knowledge of how school nursing works. And I'm afraid that the vast majority simply don't have time to single out a child to interfere with. Nor do they usually have the clout to stop a prescription. In fact, without some discussion with the GP, the child or the parent, they'd often not know about any medications.

Without a full picture, nobody here can give you sound advice.

What was this letter in response to? What condition is the nurse claiming you've fabricated? How precisely has she phrased that allegation? How did she call you lazy? How recent was the letter? Is your family at universal level with regards to children's services or at TAF/CIN/CP? Because these higher levels of intervention are a big part of school nurse workload and would drastically alter how this whole situation reads.

Occums that's what I thought too, it sounds similar to their nonsense. (Atos)

As far as I know nothing to do with ATOS as aren't they for adult claims ?
Unsure as to why one agency nurse was suddenly on a school nursing team for a few short months and in that time she seemed to just be focusing on us ? Mar-may last year she was emailing hospital all the time. June she got prescription cancelled and I spoke to her on the phone then July last year she wrote a horrible letter. I only found out this year about it

If she was emailing the hospital wouldn't they have put her right? Are you seeing them at the hospital soon- does your DC have regular check ups? as you can keep these letters as evidence for your PIP etc. They should send you copies, if you ask.

No, Atos do PIP claims for everyone, I'm pretty sure.

And I'm afraid that the vast majority simply don't have time to single out a child to interfere with

Exactly - which makes this all the lore outrageous! Why did the nurse do this??