Charlie Gard Case 4

[LovelyBath77]

A new thread to follow on from the others about this case

Could say only GOSH supporters on here! Any other negative posters banned.

Grim. Yes i was appalled at one with a very pale sad looking Charlie and a comment about what a blooming beautiful boy he was, it was so bizarre as obviously very ill. Poor boy.

I hate the whole 'if he's still fighting then we're still fighting' tag line.

He is fighting. His body is literally fighting to die. And they won't let it.

@TheWeeWitch absolutely sickening for them to drag other little children into their campaign presumably without consent.

It would be rather lovely, to have a GOSH FB page or something online such as on the website, to share good stories of patients recovery. In contrast to all this.

Young childrens brains are more plastic than adults, and in the case of head injury or damage, a healthy part of the brain can take over the injured parts function, and so "repair".

But charlie's brain is damaged in every cell. It can't even perform basic functions like breathing.

Did you see them attack the mum of the spina bifida boy who's brain "regrew". Called her nasty, attention seeking, money grabbing, awful things.

All I can find is this so far

At the hearing, a lawyer for GOSH said the alleged "new research" had been available for the judge's consideration in April and was purely lab-based anyway, and related to patients with muscle problems only rather than brain damage

sodablackcurrant, I agree, the poor pawn that in the middle of a circus.

A Gosh Facebook page would just give somewhere else for CA to spread vitriolic hate.

I run a very small, very new charity (glioblastoma - brain cancer). I work directly with one of the world's leading paediatric neuro-oncologists. All I can say is that the blood-brain barrier is probably the single biggest challenge; believe you me, if someone had managed to breach that barrier the medical world would be all over it. Poor Charlie; someone pages (last thread?) ago said people were wishing him to die and that was bad. I actually wish he would, poor little baby.

There is some hope
One of the CA posted they wanted to leave the UK
I'll happily hold the door open. Hope they don't need an IQ test to be admitted into a different country

MommaGee, I agree, sometimes you just need to let people hang themselves and thats what they are doing when they threaten to kill doctors and nurses and threaten to bazooka them, and all the other shite thats going on with them.

CA is becoming like something from Black Mirror. It was discussed on one of the earlier threads but language around 'fighting' can be hugely damaging and is certainly unhelpful in this case.

It scares me that C&C may end up feeing held hostage by the baying mob of a monster they helped to create.

SimplyNigella, Charlies army needs taking down and closing, surely it cannot continue, its not right.

OK, as I have expressed before, my sincere belief is that, in my opinion, the best option for Charlie is that, in accordance with the views of GOSH, his treatment be withdrawn and that he be allowed to pass away with peace and dignity, as soon as possible. However, what I am struggling with is how a Judge, who is not a medical professional, should be expected to have a full medical understanding of Charlie's condition and be able to decide whether he should be kept alive to undergo this experimental treatment that the parents want, and should be expected to make a decision on whether this treatment would be an improvement to Charlie's life and make it worth living. How can a lay person make this decision?

Yes, it would need the same amount of severe moderation they give their own page (anything posted going through admin first) It would be a nightmare.

Thanks Rabbit, and Yolo, interesting.

lovelybath there may also well be tales of children who did die, but the parents are still very grateful that their child had received the best medical care with wonderful compassionate staff.

how can thy use som poor dead girls story to mak a point shame on laura

Yes the 'fighting' thing is detrimental. i often think of that used with cancer as well, and this 'winning' too. Not helpful. It sometimes is the strongest kindest thing to let go.

muckypup73

Yes, and thanks.

Yes, they could have any stories patients wanted to share, perhaps on their website free of FB antics. they do already have stuff on there, like fundraising ideas.

I think our local hospital does a magazine as well. they probably do something like that. Doubt CA would ever read it though.

I've just sent another message of support to GOSH.
My thoughts are with every member of Charlie's medical team there, who are being bombarded with this vitriol while they are just trying fulfil their obligations to their patient

Where do these oblivious bastards get off?!
Seriously, the vast majority of Barmy Army need a taxi back to planet Earth.
They should be fucking ashamed.

.

She's now posted this as an update. Don't know if it's a good thing or a bad thing. I'm off to bed : /

*Arthur Estopinan:

Let me introduce you to the loving Memory of a five year old girl, "Lillian Luttrell," who overcame challenges despite living with RRM2B for four years. A couple of weeks ago, she was received in heaven and now she is and angel fighting with Charlie! Her incredibly brave parents Clay and Theresa Luttrell from Wisconsin asked me to share this brief video that they recorded when she was one and a half years old as a TESTIMENT that babies with RRM2B can interact if they have the proper support to breath via a tracheostomy and receive nutrition via a gastro-intestinal tube.

According to Mr. Luttrell, after Lillian was trached with a ventilator she became stronger. In addition, her parents administered different types of Supplements which also made her stronger. At the time, they were unable to try experimental medications- however, they would have loved to increase the possibilities by trying. Now there are NEW experimental medications! There are seven international medical doctors and clinicians with NEW Medical Evidence to help #CharlieGard. There is an IMPORTANT difference to note between my son, Arturito's TK2 mutation, and the rare disease of RRM2B- but there is HOPE!
Charlie is NOT brain dead just like Lillian wasn’t, I witnessed it firsthand! I realize that these ultra-RARE diseases are very complicated but we are talking about the Life a baby who is defenseless and he cannot FIGHT for his life.

Please understand that the doctors have designed a medical plan for CHARLIE to help him get stronger. He is NOT in pain or his Heart Rate would reflect it and his vital readings are normal as he does not even need oxygen to breath. He is breathing on room air by himself.

I sincerely hope that YOU take a minute to watch Lillian's video as she had a Beautiful Fighting Spirit but she was not lucky enough to live long enough to be able to receive the experimental medications for RRM2B. I PLEA WITH YOU NOT TO TAKE CHARLIE THE SAME PATH OF DEATH SINCE HE CAN BE SAVED.*

Either way GOSH are going to be vilified
Turn off life support: vilified
Give him the medicine which we all know is too late: vilified for not letting him have it sooner
We all feel desperately sorry for C&C here obviously but 99.9% of posters on this thread believe he should be allowed to die with dignity so why is the press not reporting that?
The public need to make their support for GOSH known its a wonderful incredible hospital