According to the linked Guardian article, the original publicist has been ditched in favour of this 'pastor'. I've copied and pasted the following:
Re Featureworld usurped by pastor
From www.theguardian.com/uk-news/2017/jul/10/patrick-mahoney-us-pastor-campaigning-for-charlie-gard-has-history-of-publicity-stunts?CMP=fb_gu
Alison Smith-Squire from Feature World was acting as the spokeswoman for Charlie’s parents until she was usurped by Mahoney last week. She is now concerned that Mahoney is using Charlie’s plight as a political and religious crusade.
She said: “Connie and Chris have been the sweetest and most genuine people I’ve worked with. I feel they are in a very vulnerable situation and having got all this publicity, Mahoney appears to be seizing on their case to make the most of it.”
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She added: “I helped to raise the profile of their case in a very sensitive way and never asked for any money from them. Initially I advised Connie and Chris not to approach the media but to try to resolve the case behind closed doors. I wanted Gosh and the family to mediate and come to some arrangement.
“Only when it came to court did we cautiously approach the media. The story then became so big that it reached the attention okf the pope and Donald Trump. After Trump tweeted things started to change. I was no longer in regular contact with Connie.
“From the day Trump tweeted he [Mahoney] had been there, wheeling his way in with his supporters. I tried to tell Connie that this could be negative for her, but she didn’t come back. And they seemed to be being told to take a much more confrontational approach with Gosh. It was wrong to march to the hospital. All the doctors there have got a very difficult job, and I felt it would be disruptive.
“I was looking after them in an ethical way and I was keen to pursue a non-confrontational approach with Gosh in the interests of everybody involved.”