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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Charlie Gard Case 4

970 replies

LovelyBath77 · 11/07/2017 08:15

A new thread to follow on from the others about this case

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Thread gallery
21
LovelyBath77 · 11/07/2017 21:21

Some of the CA posts are so daft, one comments about him lying there relaxed so couldn't be in pain, and that the morphine is doping him up.

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Lexieblue · 11/07/2017 21:24

I've just seen a terrible post, admittedly an article by the fail of a mum withdrawing life support for her newborn baby and the comments from CA are just Shock

LogicalPsycho · 11/07/2017 21:24

I said this a few threads back, but when my relative was having life saving treatment in a highly respected children's hospital, there were cameras, reporters there. This was absolutely horrendous for everyone, as we were already struggling with very difficult situations.

If you look at the photographs Connie and Chris have posed for in the hospital, there isn't a wall behind them- there's a standard curtain divider.
Meaning there's sick children and their parents in the ward bay with them, while Featureworld photographers pop in and out to take pictures to sell on.

For anyone who doesn't know, all images of Connie, Chris and Charlie are copyrighted and published through Featureworld, a story selling site which the family have hired to handle their media exposure.

They take the exclusive photos, and get a commission each time they are used.

redshoeblueshoe · 11/07/2017 21:24

Mypuppy - that's actually made me feel sick.

smilingmind · 11/07/2017 21:27

On my short foray into CA today I read that the morphine was given to cause brain damage and kill him. GOSH were doing that so their previous treatment would be exposed in the court.
CA should contact GOSH and suggest calpol instead as a PP read.

TinselTwins · 11/07/2017 21:28

I've just seen a terrible post, admittedly an article by the fail of a mum withdrawing life support for her newborn baby and the comments from CA are just

Yeah. Haven't seen that article but have seen other posts from CA being horrible about parents who have had their babies life support switched off, including "I can't believe so many parents would agree to kill their babies just to save some hassle"

BoreOfWhabylon · 11/07/2017 21:31

TinselTwins it doesn't matter whether they are a nurse, cleaner, admin or anything else, if their profile names the NHS organisation that employs them they will be in breach of social media policy and will be in a lot of trouble.

WannaBe · 11/07/2017 21:31

Would the judge be in a position to stipulate no social media I wonder?

I doubt that he's remotely aware of the whole charlies army stuff or the merchandise shop etc, but if he was, he could surely speak out against it in the hearing as well? After all, the involvements in social media activity plus merchandising etc are presumably all good reasons to consider making Charlie a ward of court? If that was a possibility the parents might think twice before remaining involved on that scale?

TinselTwins · 11/07/2017 21:31

I took a whole bottle of morphine home with me after facial surgery!
Didn't know I was being sent home to die! Oops! I just thought it made me feel comfy and embarrassingly talkative I must have escaped their evil eugenics program somehow by fluke?

LovelyBath77 · 11/07/2017 21:31

What!! How dare they comment on other parents like that, having been through he death of a child. It's horrible. They were going on about how people in the street passing by a protest (near me, shudder) were as bad as GOSH and murderers too. (showed a pic of a mum with babes in a pram passing by). What is wrong with them? Most of them are also mothers..

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sodablackcurrant · 11/07/2017 21:32

This should be a private thing.

As many other forgotten parents' trauma in similar cirumstances is.

Circus maximum money is right.

Lexieblue · 11/07/2017 21:32

Shocking stuff tinsel can they not see how they contradict themselves? C&C can do no wrong at all, any question of them is met with furious rebuttal and how could you say that when they are going through this, yet Poor parents of those babies, I imagine they are torn apart inside already but to see those things written about you :( grim.

TheWeeWitch · 11/07/2017 21:34

@LogicalPsycho they've cut ties with Featureworld now. The featureworld woman is quoted in the DM (I think? A few threads back now?!) as saying she's been ousted and Reverend pro-life is now the family's spokesperson. I'll try to find the link again.

BoreOfWhabylon · 11/07/2017 21:35

This reply has been deleted

Message withdrawn at poster's request.

MissHavishamsleftdaffodil · 11/07/2017 21:35

I would think it likely GOSH are monitoring CA facebook quite carefully for various reasons, and that at least some screenshots have been shared as part of their evidence of stress/pressure on the staff. The Guardian is also going to be aware of the webpage, the merchandise and the family's role in CA as part of their picture of the family situation. So it's more than likely the judge is quite well aware.

Lightlovelife · 11/07/2017 21:36

I thought the Pastor had gone back to America.

redshoeblueshoe · 11/07/2017 21:38

Logical - that's dreadful. At least where we were the press were reporting on something that had happened previously, so the media were in the hospital grounds, but not on the wards and you had to be buzzed in to nicu, so no fucking random strangers were there.

BoreOfWhabylon · 11/07/2017 21:38

LogicalPsycho Featureworld have been elbowed out by the pastor. The featureworld woman is very unhappy about it.

I posted something of hers on the last thread - will see if I can find it...

TheWeeWitch · 11/07/2017 21:40

Here it is. It's in The Guardian, not the Fail, sorry.

"Alison Smith-Squire from Feature World was acting as the spokeswoman for Charlie’s parents until she was usurped by Mahoney last week. She is now concerned that Mahoney is using Charlie’s plight as a political and religious crusade."

www.theguardian.com/uk-news/2017/jul/10/patrick-mahoney-us-pastor-campaigning-for-charlie-gard-has-history-of-publicity-stunts

LovelyBath77 · 11/07/2017 21:41

Most recent post on Charlie's Fight FB Page:

Charlie Gard #charliesfight
20 hrs ·
If your child was ill and you had the choice of giving them a non harmful medication that clinically had a 10% chance of important improvement would you take that chance? This is why we are fighting! #charliegard #ifhesstillfightingwerestillfighting

Presumably this is written by the parents (it's the blog page). So why are they still giving this statement about the 10% improvement..

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TheWeeWitch · 11/07/2017 21:41

Interesting formatting in my last post! Sorry. Here's the link.

www.theguardian.com/uk-news/2017/jul/10/patrick-mahoney-us-pastor-campaigning-for-charlie-gard-has-history-of-publicity-stunts

sodablackcurrant · 11/07/2017 21:42

Some here might be well aware of the donations to someone's personal bank account WTF, but anyway.

Others are on FB and not aware and will not be. Sadly.

Money that some people can ill afford is being sent to them.

It should be for your own family/children now. No question, no reasons.

AlabamaShakes · 11/07/2017 21:42

The pastor said he would be back in America tomorrow, so hopefully he's had his bags packed for him and the door hit him on the way out.

LetsGoFlyAKiteee · 11/07/2017 21:43

The whole Pastor thing is so uncomfortable and you could tell it was his gain. If cared that wouldn't be published photos..he wouldn't be on social media going on how he wasn't allowed in he'd be trying to sort it privately.

It became all about him. His comment 'here I am' about the photo with the parents and with some awkward smile...

GabsAlot · 11/07/2017 21:43

not that id t5rust any publicist but sh sounded genuinly upset that connie was ignoring her calls in favour of some nutter from america