To be worried

[nobullshitallowed]

Sorry I'm posting for traffic, have already started a thread and had barely any replies. Not sure what I'm looking for really, a handhold or people who have been through similar.

Around 6-7 weeks ago, my ds aged 6 suddenly started complaining of hip/joint aches and pains. I put it down to growing pains.

3 weeks ago he went really lethargic, he sleeps 6-6.30 so is having enough sleep. His teachers started commenting that he was tired in school, told he has gone from a really happy active boy to quite irritable.

Managed to get him into the doctors, who checked him over, went through quite a lot with him. He's now urgently requested that he have full bloods done. And referred him urgently to a children's hospital.

He then told asked me what I thought they would be testing for, I have been googling and each time it comes up with leukaemia . So I told asked my doctor that. He said that was a big worry and it's why he is referring him so quickly. He said the way my son has explained the pain and pointed it out it rules out other causes.

He's at hospital next Thursday, and I'm bloody terrified. Feel awful for not taking it seriously at first. I honestly just thought growing pains.

My other ds 3 is diagnosed epileptic, I'm petrified for what's to come for ds 6 now

Would be grateful for anyone who has been through similar to reply.

Thanks for reading sorry if it's all mumbled I just feel so numb and not really explaining myself properly.

[nobullshitallowed]

Thanks again everyone.

His bloods are at 4.30 today. He's begged to go to school today, they are doing an Easter egg fun day with non school uniform, I've arranged with the school for him to do half a day. It's so hard, I just don't know what to do for the best, I want to keep him home with me where I can look after him, but I also want him to carry on as normal, and still be able to do the stuff he wants to do.

I know it's crazy thinking like I am, we haven't even got a definite diagnosis yet, but I think deep down I know it's not going to be good news, and I'd rather prepare myself for that.

Feel like such a failure ignoring it for so long, I just never thought anything of it. It's only when he started really getting tired that alarm bells started ringing. Should have just taken him straight in when I thought something was wrong.

[ohfourfoxache]

You are NOT a failure and you have NOTHING to feel guilty about xx

Kids get growing pains. They fall over, get scrapes, pull muscles, limp, get bruises, wear plasters. How on earth were you supposed to "know"? With a crystal ball?

You've done the right thing as soon as it was evident that he needed to see a Dr. Please please please don't feel guilty love - you are a fabulous mum xx

[LoriD]

Thinking of you op

[GlitteryFluff]

Thinking of you.
Glad dr was able to get an earlier appt for you.

[TiredMumToTwo]

Best of luck for this afternoon, hope all goes well. I would try & focus on the fact that you have no idea if this is even anything to worry about until you get the results. My DS has a life threatening condition, my nephew is now in remission having had leukaemia so I know you'll get through it if it does turn out to be something serious but at the moment there is nothing to say it is serious so keep positive & stay strong. You've got this.

[joannegrady90]

Thinking of you op

[nobullshitallowed]

Trying to keep positive. He's in school now. Taking him in this morning was horrible but I trust that he will be well looked after, he's with his favourite teacher today.

I've got a few hours to compose myself a bit. It's nice having somewhere to talk so thanks for that xx

[MrsMozart]

You are most definitely not a failure, so get that thought right out of your head now lass.

Children, and adults, and everybody inbetween, can seem a bit off/not right and then bounce nack large as life. If we all went off to the docs every single time then we'd end up moving in.

He's on the right track now with all on the case.

Everything bendy is tightly crossed for good results.

[RiversrunWoodville]

Just seen the thread and you are not a failure op you have pushed and fought to get this done fast for ds. Sending you all the hand holding and un MN-y hugs for 4.30 and hoping bloods come back with something relatively innocuous. If not as pps have said the remission rate is high and all of MN will be hoping, praying or sending positive vibes according to beliefs for you and your family

[Lukeandlorelai4Ever]

[Starlighter]

Oh OP, i really feel for you.

We've just been through something similar with our DD (4). First two lots of bloods came back abnormal (high APL) and we were distraught. Nhs appt was too long so we went private and she had a lot of tests. All came back clear! Must be growing pains as everything has come back fine.

I know it's hard, but try to stay positive.

[Iamthedogsmother]

You're not a failure. If I'd taken my dcs to the Drs every time they had an ache or pain, I'd never be away from the place. There's no way of knowing. The main thing is that you're getting it sorted. Got everything crossed that the loss tests are able to put your mind at rest

[swaddleaholic]

I hope all goes well for your son and there is possibly another explanation. xx

[sailawaywithme]

Sending best wishes from across the Pond, and hoping the results are good.

[PovertyJetset]

You have nothing to feel guilty about, kids present with all sorts of things that we analyse and dismiss. Don't feel bad. If I took my Dd everytime she said she was unwell
Or tired I'd have to move into to the GPs!

You're doing something now because you noticed it was getting worse. You did everything exactly right.

[Labtest7]

My daughter was diagnosed with leukaemia in 2011 at the age of 4. Her only symptom was a sore leg. Luckily she was diagnosed the day she first complained about her leg as our GP sent her straight to hospital (thinking irritable hip) and bloods were done when we got there. She had just under two and a half years of treatment, and has been fine since. She's ten now.

Obviously I hope this isn't what your son has, but if it is the odd are in his favour and it I should possible to lead a relatively normal life while on treatment.

[MrsSeverusSnape]

Another one checking in for hand holding. I know how scary it is, as we went through it with our oldest when he was 8. It was terrifying. His first tests came back worrying, but when they were repeated they were normal. We never got to the bottom of his aches and pains but the other symptoms were allergies.

[Madeyemoodysmum]

Really hope you have had some encouraging news today Mumsnet will be here for you what ever the outcome. 💐

[Cubtrouble]

Hope you're ok op. Very scary, can't imagine how you feel.

Hope results come quickly.

Don't be scared to push push push for answers and treatment, don't be fobbed off, no one knows your child as well as you do.

Best of luck and hugs for you all

[nobullshitallowed]

Had the bloods done.

Just got home, hospital said they will call as soon as they are in. Dh comes back tomorrow so grateful for that.

Hopefully the results are quick.

Thanks again for everyone's replies x

[DontTouchTheMoustache]

op you are doing so well you should be so proud of yourself. My heart is honestly breaking for you. I remember when I was 19 one of my best friends was taken to hospital with suspected leukaemia and I remember the agonising hours waiting for answers and the phone call with the news it had been confirmed. I've never felt as scared and broken so I when it comes to your son I genuinely can't even imagine what must be going through your mind. Please don't be angry with yourself for not taking him sooner I can't imagine many parents having the medical knowledge to know that it could be a symptom of leukaemia. Whatever happens you know he is in the best hands.

[AliciaMayEmory]

Just adding my support, OP. I have my fingers crossed that the tests all come back clear.

[incogKNEEto]

Just seen this and posting to send support. I hope the bloods are back soon x

[bumblebee50]

Can I also just add my support to you OP? I hope the blood results come back soon and are all clear. You've been very brave to deal with this on your own and we're all here for you.

[ohfourfoxache]

Thinking of you

How's he doing?