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AIBU?

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To be worried

511 replies

nobullshitallowed · 22/03/2017 13:19

Sorry I'm posting for traffic, have already started a thread and had barely any replies. Not sure what I'm looking for really, a handhold or people who have been through similar.

Around 6-7 weeks ago, my ds aged 6 suddenly started complaining of hip/joint aches and pains. I put it down to growing pains.

3 weeks ago he went really lethargic, he sleeps 6-6.30 so is having enough sleep. His teachers started commenting that he was tired in school, told he has gone from a really happy active boy to quite irritable.

Managed to get him into the doctors, who checked him over, went through quite a lot with him. He's now urgently requested that he have full bloods done. And referred him urgently to a children's hospital.

He then told asked me what I thought they would be testing for, I have been googling and each time it comes up with leukaemia Sad. So I told asked my doctor that. He said that was a big worry and it's why he is referring him so quickly. He said the way my son has explained the pain and pointed it out it rules out other causes.

He's at hospital next Thursday, and I'm bloody terrified. Feel awful for not taking it seriously at first. I honestly just thought growing pains.

My other ds 3 is diagnosed epileptic, I'm petrified for what's to come for ds 6 now Sad

Would be grateful for anyone who has been through similar to reply.

Thanks for reading sorry if it's all mumbled I just feel so numb and not really explaining myself properly.

OP posts:
PovertyJetset · 30/03/2017 20:22

You're both so brilliant. Hope all
Was ok today and you felt supported and the hospital was patient with both of you.

TheDogsEatingCaptainAmerica · 30/03/2017 20:34

Just read this thread. What an amazing Mum you are. I wish all the best for you both, Dylan sounds like an absolute sweetheart Flowers

nobullshitallowed · 30/03/2017 21:14

D has got Polycythaemia. Also had/had an infection in his joints. He's had iv antibiotics again today. And bloods taken after so will see when the bloods get back tomorrow if the infection is gone I think.

Haven't got much understanding on polycythaemia yet. Got some reading material to get on with though x

OP posts:
Rescuepuppydaft2 · 30/03/2017 21:54

Ah that makes sense and also explains his tiredness and bruising, hopefully they have some idea of how they want to proceed treatment wise!
www.nhs.uk/conditions/polycythaemia/Pages/Introduction.aspx

Stuffofawesome · 30/03/2017 22:15

My dad had that op. Lived a long and productive life. Beat wishes to you all

Mcchickenbb41 · 30/03/2017 22:39

Glad you finally found out what was wrong. That's half the battle. How are you both feeling ? X

nobullshitallowed · 30/03/2017 22:56

D is fine, fed up with the needles and hospitals. I'm a bit overwhelmed with the information. Just need to get my head around it all x

OP posts:
Mcchickenbb41 · 30/03/2017 23:02

Ok I was faced with a load of information recently. I sat down with pad and paper and made notes of the most relevant. It helped me. One step at a time op it's been a bloody hard week Flowers

fuzzyfozzy · 01/04/2017 14:55

Hi. I've just been diagnosed with the same. Pm me if I can help.

nobullshitallowed · 01/04/2017 22:48

Sorry to hear that @fuzzyfozzy, I'm. Not sure how to pm only how to reply to them. Xx

OP posts:
fuzzyfozzy · 01/04/2017 23:41

TBH me neither Smile

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