To be worried

[nobullshitallowed]

Sorry I'm posting for traffic, have already started a thread and had barely any replies. Not sure what I'm looking for really, a handhold or people who have been through similar.

Around 6-7 weeks ago, my ds aged 6 suddenly started complaining of hip/joint aches and pains. I put it down to growing pains.

3 weeks ago he went really lethargic, he sleeps 6-6.30 so is having enough sleep. His teachers started commenting that he was tired in school, told he has gone from a really happy active boy to quite irritable.

Managed to get him into the doctors, who checked him over, went through quite a lot with him. He's now urgently requested that he have full bloods done. And referred him urgently to a children's hospital.

He then told asked me what I thought they would be testing for, I have been googling and each time it comes up with leukaemia . So I told asked my doctor that. He said that was a big worry and it's why he is referring him so quickly. He said the way my son has explained the pain and pointed it out it rules out other causes.

He's at hospital next Thursday, and I'm bloody terrified. Feel awful for not taking it seriously at first. I honestly just thought growing pains.

My other ds 3 is diagnosed epileptic, I'm petrified for what's to come for ds 6 now

Would be grateful for anyone who has been through similar to reply.

Thanks for reading sorry if it's all mumbled I just feel so numb and not really explaining myself properly.

I hope the scan went ok, it sounds like you have a brave little boy

I hope the news is good OP.

Hope things are going as well as they can be.

Funny how children come up with their own solutions, and the knitting will help distract you too.

I hope you get some answers soon x

Hope his scan went ok knitting sounds like a great project

Thinking of you both, hope the scan went well. Dylan sounds like an amazing little fella!

for you

Knitting sounds like a great idea. Sending positive vibes x

Hoping all has gone well with the scan today, the hospital sound lovely and caring.

If the news is bad, then please do find out whether there is a childhood cancer support worker based at the hospital. When DS was diagnosed we were introduced to a support worker funded by the charity for his cancer type and they were a huge help.

Thinking of you and your boy and hoping for best outcome.

So sorry you don't have anyone close by for emotional/practical support but we are all thinking of you.

Stay positive xx

Hope the scan went ok. Really hope that it is good news for you.

My DS has a life altering condition and in the early days of diagnosis when they were unsure if it was life threatening, I remember the feeling of being totally overwhelmed with everything and all the information we were given. I found it helped to keep a note of what was being done and what was said, just helped me in the down time to collect my thoughts.

I think the knitting project together sounds lovely.

You and Dylan will be in my tboughts

Thinking of you all.. waiting is nearly harder not knowing xxx

Just found this thread, thinking of you and your little boy OP .

I had ALL (acute lymphoblastic leukaemia) when I was 13 and I remember everything happening so fast. Literally, the initial blood test to diagnosis was within 24 hours, so would have thought if it was this then you would know by now? My case was 20 years ago now so perhaps procedures etc have changed, but the good thing is that he's receiving attention. All of my symptoms could be explained away (anaemia, beginning menstruation, history of cold sores etc) so it took months before I was looked at properly. The good news is that treatment is so effective now (I'm still here!) so god forbid it is that, then there are many avenues to explore. I know this doesn't help how you're feeling at this moment, but he's in the best place with people who know what they're doing. I'd be happy to answer any questions you have if you wanted to PM me?

again xx

Sending you and your family hugs. Worrying your child is poorly really is the pits

Sending massive hugs for all your family especially D who sounds very brave! You're doing brilliantly too OP! Xx

Thinking of you both

happily my daughter was diagnosed with ALL 6 years ago, at the age of 4, and she was diagnosed on the basis of a blood test too. From blood test to diagnosis also took around 24 hours.

Labtest how is she getting on? Is she still on maintenance chemo or has she come off that now? Some for you too.

My DD was also diagnosed with ALL at the age of three in September 2009. She's a tall strong young lady now who is hardly ever off school ill. It's a difficult journey but most kids who get leukaemia now will be OK. Fingers crossed it's something much simpler and quite minor just giving you a scare, though. Thinking of you.

happy Thank you, she finished treatment 3 and a half years ago and is doing well now at the age of ten.

Wishing you both all the luck in the world.

Sending hugs and best wishes to you all.

Hugs to you both. Hope you find out soon

For you and Dylan x

Lots of love

Lots of love xx