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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be worried

511 replies

nobullshitallowed · 22/03/2017 13:19

Sorry I'm posting for traffic, have already started a thread and had barely any replies. Not sure what I'm looking for really, a handhold or people who have been through similar.

Around 6-7 weeks ago, my ds aged 6 suddenly started complaining of hip/joint aches and pains. I put it down to growing pains.

3 weeks ago he went really lethargic, he sleeps 6-6.30 so is having enough sleep. His teachers started commenting that he was tired in school, told he has gone from a really happy active boy to quite irritable.

Managed to get him into the doctors, who checked him over, went through quite a lot with him. He's now urgently requested that he have full bloods done. And referred him urgently to a children's hospital.

He then told asked me what I thought they would be testing for, I have been googling and each time it comes up with leukaemia Sad. So I told asked my doctor that. He said that was a big worry and it's why he is referring him so quickly. He said the way my son has explained the pain and pointed it out it rules out other causes.

He's at hospital next Thursday, and I'm bloody terrified. Feel awful for not taking it seriously at first. I honestly just thought growing pains.

My other ds 3 is diagnosed epileptic, I'm petrified for what's to come for ds 6 now Sad

Would be grateful for anyone who has been through similar to reply.

Thanks for reading sorry if it's all mumbled I just feel so numb and not really explaining myself properly.

OP posts:
TheMerryWidow1 · 27/03/2017 13:19

xxxxxxx

kissmewherethesundontshine · 27/03/2017 13:43

Thinking of you both today Flowers

PovertyJetset · 27/03/2017 13:46

Usbourne books are so good! Glad you found them.

Hope you have good news today and please know you have a wealth of support right Here on MN.

I am in the SW if you want real life support?

Keep on keeping on and try to take it slow. Deal with each thing as it comes and don't let your worries get away from you.

nobullshitallowed · 27/03/2017 14:42

Still waiting to go down for the scan, but have spoken to the doctors and nurses who have made Dylan feel a lot better. We've opted (well D has) to have 'some special medicine to make him feel sleepy for the scan' so he's less panicky about that which is great.

Feeling a lot better today, wouldn't let the doctor go until he'd answered all my questions and he let D ask some too. We will hopefully get some answers today fingers crossed.

D has asked if we can knit a blanket together, should add I can't knit neither have I ever knitted so don't know why that's come about, have ordered a how to book on Amazon and we can learn together.

They do want more bloods but have said they will put a canular (sp?) in so it's a lot easier for D.

Nothing more to add at the minute, will update when I know more. But we are doing ok today, we were told in depth today that leukaemia (if that's what we are dealing with) is treatable and manageable. As you've all been telling me. So grateful for all your continued support through this, D knows I'm talking to you all about it and wants to send hugs for 'all the nice ladies' Grin

Will be back on hopefully after he's had his scan. Thankyou everyone xx

OP posts:
RufusTheRenegadeReindeer · 27/03/2017 14:44

Ahhh bless him

Hugs right back at you both

Take care

Nifflerbowtruckle · 27/03/2017 14:46

If it is leukaemia (fingers crossed it isn't) speak to them about having a line put in straight away. My partner had a midline and then a PICC line and he said the PICC line made it so much better as he couldn't feel the chemo going in and they could take bloods from it without needing another needle.

Littleballerina · 27/03/2017 14:49

Nobullshitallowed- Thinking of you and D. I have no experience and can't begin to imagine but you sound absolutely lovely.

picklemepopcorn · 27/03/2017 14:50

Well done no bullshit. Hang in there.

FacelikeaBagofHammers · 27/03/2017 14:56

Big hugs for you and Dylan. He sounds like a lovely boy. Fingers and legs crossed here. xx

Mrsfs · 27/03/2017 14:59

Sending lots of support your way, thinking of you and DC xxFlowers

flownthecoopkiwi · 27/03/2017 15:04

good luck, he's got a great Mum looking after him xxx

2017SoFarSoGood · 27/03/2017 15:33

Oh thank D for the lovely hug. So warm and cosy. Knitting a blanket is such a great idea. Watching it grow is a really want exciting process. Some good videos online. You may tell D I learned to knit when I was 4 and in hospital for several months. It was a great way to spend the time.

theworriedone · 27/03/2017 15:39

What a little charmer your Dylan is!

Sending a hug right back at you! X

Frogtits · 27/03/2017 15:45

I'm sorry you're are going through this with your dear son - my heart goes out to you.

My sister had a leukaemia scare in childhood. It turned out to be a problem with her kidneys, not that I'm suggesting that D has this.

I really hope that this is a false alarm Flowers

rainbowstardrops · 27/03/2017 15:50

Wishing you all the best Flowers

Natsku · 27/03/2017 15:51

He sounds brave and determined, and sweet to send hugs to the nice ladies! What a lovely lad. Fingers crossed that all goes well, whatever it turns out to be.

e1y1 · 27/03/2017 16:02

Hand hold and thinking of you and your DS Flowers

Havanaclub · 27/03/2017 16:05

I hope everything will be ok for you. Sending positive thoughts.

The hospital will do everything in their power to get Dylan ok again..

And it may not be the L word either. Focus on that. X

Topuptheglass · 27/03/2017 16:39

Big hugs for you & Dylan x

SoAngryArghh · 27/03/2017 16:43

OP sending hugs for your and Dylan. Brave boy and mummy. Flowers

HCantThinkOfAUsername · 27/03/2017 16:54

hope the scan goes smoothly and you get the resuts asap so you know what your dealing with.

PatMullins · 27/03/2017 17:01

What a lovely mum you are Flowers it's sounds so hard but you will get through together Smile

FeralBeryl · 27/03/2017 17:01

Hi Dylan

That sounds like a fantastic project for you to both start, if (and hopefully not) you do have more trips there it will be something that will wile away the hours.
The woolly hugs gang on here are delightfully bonkers will help out with anything too, nothing is too much trouble for that lot.
Hope today passes gently and quickly for you both Flowers xx

pink1173 · 27/03/2017 17:02

Thinking of you and your little boy x💐

ohfourfoxache · 27/03/2017 17:04

Oh bless his wee heart Smile

He sounds like an absolute gem.

Re the knitting- there are lots of lovely ladies on the arts and crafts board who I'm sure would help if you need it. Blankets are quite easy (even I have managed to do some!) and are a perfect beginner project.

Sending you both big hugs xx

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