HoldBackTheRain
You just made me feel a whole lot better about myself.
I had my first daughter at 26 and she was born with significant leaning disabilities. Of course those difficulties were not properly diagnosed by any doctor or specialist until she was much older.
It was only myself who knew that she was not quite the same as everybody else's baby. She wasn't doing the stuff that she ought to be doing at her age. But nobody really believed me.
It wasn't until she was 7 years old that we had DNA tests and she was diagnosed as having Angelman Syndrome.
I wanted to go out to work. I needed to go out to work. I needed to
go out, if only on a part time basis, to maintain some normality in my life. To talk to other grown up people and be a part of the business I'd worked in for seven years previously.
But no, I could not do that. My daughter is also epileptic, so I would need to leave work if she took a fit while I was at work.
I got a job at my local pub, in the kitchen, so that I would not be missed that much if I had to leave.
It happened that I had to leave early quite often. Nobody said anything, and nobody minded. But still, I knew it was unacceptable.
That's enough , really.
I would have loved nothing better than to have a proper job when my kids got to school l age. But I had a child with severe LD and alsio given to the odd epileptic fit. So I had to stay home with her, bless her little cotton socks.
So I am left with no pension and no recognition of how much cash I've saved the government by single handedly caring for my daughter until she is 34 years old.
I could have had a job that would have secured me a pension.
But I couldn't keep the job because I have cared for my LD daughter.
For very many years. It fucking sucks because I loved my job and I would have hoped I could carry on doing it.
Most peeps here have 'normal' kids and could probs get an auntie or uncle or sister or brother or granny or granddad or maybe even friends to keep any eye on their babies for an hour or two.
that was never an option for me. I had NOBODY.
For 10 years I went nowhere.