to go to A&e with my dd3 *pictures*

[littlemaemae]

My DD who is 3 has been having stomach/bowel problems for the last year. Diagnose as constipation. She can not pass a stool for weeks despite fantastic diet and laxatives and weeks is in severe pain most days. She is very petite and skinny but her stomach has swollen to look 9 months pregnant. Getting no where with doctors/hospital etc.
Aibu to think this is not how a heathy child's stomach should look.

"We are going to send you home"

Start practicing what you will say in response to this.

What do you mean you are sending my ill daughter who has been screaming in pain home? She hasn't had a bowel movement in X days, in addition to the X sachets of movacol which have resulted in now movements, only liquid overflow, you have administered an enema which has not worked. Can you guarantee that there is no blockage causing this problem?
Can you guarantee that she is not at risk from sepsis?
Can you guarantee that she will not suffer from a perforation having been left for so long with no help or hope of help?

OP, you are fighting for your baby so so well. You are amazing. Sending you strength

I'd be thinking over 3 weeks without a poo and a stomach that distended is a medical emergency.
It is like they are waiting for sepsis and untill then nothing.
Keeping my fingers crossed for you and sending hugs

I am so furious on your behalf. I think at this point you should refuse to leave if they think she should go home. Say that the care you've received has been appalling. Contact pals there as soon as possible. Write down everything that is said to you and take names. Your dd must be in agony.

You are doing well. Your dd comes first, not them thinking you're a nuisance. I hope you get some help soon.

LittleMaeMae, if it helps i will tell more of our story .
I went absolutely mad with a registrar at one point with a very young Ds as I was so fed up of being fobbed off,I felt SURE they were wrong with his diagnosis as I had already been there with his elder sister.
I told the doctor that I was familiar with procedure & that if she sent me home & something happened to my Ds I would have her job.
I'm not proud of my behaviour by any means but i had literally reached the end of my tether seeing Ds suffer knowing full well what was wrong as we had already been through it.
After being admitted as she finally decide his current condition warranted it (surprisingly)He took a turn for the worse & was actually operated on at 8am the following morning , I dread to think what might have happened if I had gone home as I used to with DD.

You know DD ,you know this isn't right !
MAKE them listen & refuse to go home

I will make a new one called '
get it out before she pops 2' in aibu if somebody could link it here

I think you need to make it first! But I can link to it after

If they try to send her home again I don't think keeping their good will spirits up will help. They need to realise that they will be accountable if they send this I'll child home yet again and something goes seriously wrong.

I'm all for getting along nicely and cooperation. But this is beyond unbelievable

No she's not gathering evidence for a case but if something does go wrong and wants to complain then she should have who said what and if they stand by what they say, shouldn't have a problem of any complaints etc to go back to them for them to explain away.

When complaints are faceless and there's no proof who said what then things are harder to prove. Op and her dd have been treat like shite and any HCP who's "back has been put up" and can't give relevant care because of that shouldn't be doing that job.

Yes very much with twinjocks and giraffes.... There are no garentees..
I spent a long while convinvincing my dr there was something not quite right with my child....they have a life threatening condition. Not to say yours has..just best to be completely sure they are okay. Best of wishes xx

get it out before she pops 2
http://www.mumsnet.com/Talk/amiibeingunreasonable/2605196-get-it-out-before-she-pops-2

littlemaemae" I am absolutely outraged on your behalf. I would also add to Lougie's questions "can you advise of the % risk of sepsis?" and also "would you see your own child go through this?"*. Ask who is Consultant on call tonight and pose these questions to him/her. Tell them you are not leaving without either a scan or evacuation of your daughter's bowel. I would also further confirm that you will be speaking to PALS and making a complaint with the Chief Exec of the Hospital Trust (not to mention the Primary Care Trust regarding crap GP). I am at a loss to understand how they can allow a 3 year old child to be left like this.

Speaking to fellow mnetters, can we get on Twitter or something? I'm not suggesting the OP is outed but we could at least tweet the hospital/trust.

I think you are doing brilliantly OP. I realise at the moment you just want to get your little girl comfortable and thoughts of complaints are far from your mind. When she's better, I would be going nuclear with my complaints, your MP, local tv, everywhere.

for you and your lovely girl. xx

Bold fail - sorry

I've made the thread. Will read though latest comments when I get the chance she's feeling very unwell

Are they monitoring for sepsis?

Something needs to be done for this little one,far to many mistakes,it's not on

OP I have yet to hear why you and your dh have refused the offer of cash from PIL to go private? Other than the usual objections? This is the real time of need, why do you keep belieiving the nhs is about health? It isn't!! It never has been. It's about acute care and its utterly rubbish with bowel. Don't keep subjecting your child to this madness if you have a choice. Please.

Hoping that Dd has been treated & is settled now

Not satisfied with disbelieving Op on one thread ,you have to start on her other one perfumed?

Do not leave. REFUSE TO LEAVE.

Say "I am not leaving without an X-RAY" " I am worried she will get sepsis, I AM NOT LEAVING "

DO NOT LEAVE THE HOSPITAL UNTIL YOUR DAUGHTER IS BETTER. it does not matter what they think of you, do not leave or go home again. Stamp you foot, and threaten legal action if you need to, but stay there and fight.

Good luck.

Perfumed. There's 970 messages on this thread. The OP is tearing her hair out going round in circles trying to do the best for her DD in the system we have. Who the hell do you think you are expecting demanding explanations for anything from the OP!? Maybe she is chasing up the private option but is doing this as well in the meantime, because she loves and cares about her DD.

lougle we had an X Ray, scan barium meal for my daughter, but it doesn't change the treatment order for my DD. It's hard knowing we have to go through this on a monthly basis. Being so invested in my child's poo is really something I didn't think of when I became a mum!

I wondered how you are this am op?

Headofthehive OP has moved over to a new thread. Link is further back.

Perfumed wind your neck in. I work in the private hospital sector and no hospital would touch this case at this stage. There is very limited private paediatric provision and none on an emergency basis. Private hospitals work on referral basis (not for all cases, but certainly paediatric) and would require a letter of referral from the GP and some history before even booking an elective out-patient appointment.

There are no emergency services as the specialists consult twice weekly/weekly/fortnightly, usually around their NHS clinics. Paediatric specialist nurses are not always on duty as it depends the days that a paed consultant has a clinic. It is not as easy as just turning up at you local BMI/Spire/Nuffield with a credit card and getting gold standard treatment. Whilst wards are staffed overnight with a resident doctor and consultants are on-call, this does not offer the level of service littlemaemae needs just now.

The priority is immediate medical treatment in a paediatric ward. When the impaction has gone and more is known about the cause, this is the time for possible private treatment and to use the private sector. I hope this clears up the common misnomers about private hospital treatment.

All the best Littlemaemae - keep fighting, hope today is a turning point.

Well said WhiteWhine

What white wine said to perfumed.