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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

to go to A&e with my dd3 *pictures*

975 replies

littlemaemae · 29/03/2016 13:57

My DD who is 3 has been having stomach/bowel problems for the last year. Diagnose as constipation. She can not pass a stool for weeks despite fantastic diet and laxatives and weeks is in severe pain most days. She is very petite and skinny but her stomach has swollen to look 9 months pregnant. Getting no where with doctors/hospital etc.
Aibu to think this is not how a heathy child's stomach should look.

OP posts:
littlemaemae · 01/04/2016 21:58

Landrover, I am so so sorry for your loss. My heart breaks for every lost child xx

OP posts:
mcdog · 01/04/2016 22:00

I have commented a few times now (HV here). I am utterly deplored by the actions of the NHS, and am embarrassed that I work for them.

I sincerely hope you will consider a full formal complaint when all this is over. It's a catalog of failures from every professional you've seen :(

Titsalinabumsquash · 01/04/2016 22:01

I've been following your thread, as someone who had to fight hard to get my child diagnosed with what turned out to be cystic fibrosis I urge you to keep making noise until you're happy that she's sorted, I know that's not even remotely the same as what your DD is going through but I got constantly fobbed off by doctors and specialists and in the end my DS's lungs collapsed and we came so close to losing him, I just knew something wasn't right.
You're doing superbly at fighting for her. I hope you get some joy over the weekend. Thanks

RunswickBay · 01/04/2016 22:01

Landrover I'm so sorry for your child.
How is dd Maemae?

snorepatrol · 01/04/2016 22:03

If I were you op I would insist on bringing her back through open access exaggerate the pain if you have to and then refuse to leave until they've sorted her out properly.

I think sometimes it can be a case of out of sight out of mind but if you're sat right in front of them they have to do something.

I really hope you're sorted soon I feel genuinely upset for your poor little girl it's appalling the way she has been treated. You're doing so well fighting for her but the truth is it shouldn't be a battle this hard for quality care so I'm sorry you're going through this.

While you're there insist on the booking of tests for things like coeliac or barium meals before you leave.

Also as you're under the hospitals I'd involve PALS it's amazing how quickly things can shift into action once PALS are involved.
Flowers

TheDailyWail · 01/04/2016 22:04

Oh my! I do hope they ring you back soon. You have been absolutely amazing for your child. I wish that they had taken you seriously from the start. Just beggars belief!

ADishBestEatenCold · 01/04/2016 22:05

Have been following, too. Have heard you voicing your lack of confidence a few times, questioning your own ability to cope, sounding very unsure of yourself ... and I just wanted to say, littlemaemae, if I was in trouble and up against it, I would so want you on my team!

I think you are doing a great job! I am so very sorry your poor little girl is having such a dreadful time, but she's got a great mum, who will move mountains for her!

monkeyfacegrace · 01/04/2016 22:06

For fuck sake, TAKE HER TO HOSPITAL and refuse to leave.

Just do it, for her. Waking up crying in pain is not right, not acceptable and not on.

Time to put on your big girl pants and do it for her.

TheFairyCaravan · 01/04/2016 22:11

I showed DS2, he's a student nurse, the photos and explained what's been going on. He said go to A&E and refuse to come home until someone actually does something.

There is absolutely no way on this earth that they would leave an adult like this. Your poor little DD must be feeling so, so poorly. I'm really cross on your behalf,

MiscellaneousAssortment · 01/04/2016 22:11

I think you're doing a great job too, you poor thing. Did they ever ring you back? Flowers

badfurday · 01/04/2016 22:12

I'd take her to hospital and refuse to leave. Poor little mite must be in agony. She surely needs thorough investigations now and something urgent needs to be done.

perfumedlife · 01/04/2016 22:13

I really think the euphemism 'poo', so twee and cosy, protects us from the harsh reality of what's going on here. It's not poo, it's excrement, toxins, lots of them in a very large colon and capable of very serious illness or death if not evacuated.

We have to stop being so bloody British about toilet habits. This is dangerous, it's serious. Go to the hospital now.

whatamess0815 · 01/04/2016 22:16

oh, OP. your poor Dd Sad

hope you are on the way back to hospital. if not, just take her. you had no investigations so far and don't know for sure what is going on.

ImNotThatGirl · 01/04/2016 22:20

Please take her back in and don't leave. I'm a fully grown adult and have severe constipation as a result of complex gastrointestinal problems. It is beyond painful; uncomfortable to be full up to the ribs and miserable as sin. Waking up in pain and falling back into a deep sleep suggests something is really not right. Poor little lovey. :(

kipperydippery · 01/04/2016 22:21

I've been following this thread & posted a few pages back. The waking crying in pain & then going deeply asleep rings alarm bells for me.

You know what is best for your DD, but if it was me I would be going back to hospital & refusing to move.

If she is so tired she can sleep through pain, she will sleep through noise on a childrens ward & still get some rest. My thoughts are with you.

LionsLedge · 01/04/2016 22:22

This reply has been deleted

Message withdrawn at poster's request.

MrsNutella · 01/04/2016 22:25

Just checking in before I go to bed.
You're doing a great job op. Sending you lots of energy and strength! I hope that the dr called back or you're already on your way in.
Great big unmumsnetty hugs for you and DD! ThanksBrewCakeCakeCake

GolfIsBoring · 01/04/2016 22:27

By our poor dd. :( hopefully the ward has called you back and you are on your way in again.

lostscot · 01/04/2016 22:27

I've lurked now for days and kept hoping dd would have improved, I'm so sorry for all of you. As a adult that suffered similarly and was given morphine in a&e then ignored with no pain relief on ward I really feel for your poor little girl. I remember the agony well and I can't believe so many doctors are happy to leave her like this.
I'm really hoping you are back in hospital being looked after x

summerdreams · 01/04/2016 22:27

Been following this and cannot believe your still going through this. Hope tonights the night things actually start getting sorted Brew

GolfIsBoring · 01/04/2016 22:28

Oh your, not by our!

TheGhostOfBarryFairbrother · 01/04/2016 22:30

Sending lots of v unmumsnetty hugs. You poor old things xx

whois · 01/04/2016 22:31

I can't believe this thread is still going on :-( FFS you are being given such shit treatment. Please please please take her back in first thing tomorrow and refuse to move until someone does something to sort out the blockage and work out what is causing it.

Howaboutthisone · 01/04/2016 22:31

Another lurker who can't believe what your poor Dd is having to go through and the lack of action of hcp. Keep on fighting for her as you have been.

whois · 01/04/2016 22:32

OP please lodge a complaint about the treatment you've been given.

Also what the fuck were the hospital doing, sending you home after the enema and expecting it to take effect in the car? As if they couldn't have kept her in for an hour or so to see if it worked!

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