to be absolutely disgusted at this

[Edenviolet]

Dd2 has been unwell for 3plus weeks.various symptoms including fatigue, sleeping all day, erratic blood sugars (shes diabetic), looks pale, memory issues, headache sore throat tummy ache and backache
Saw gp three timea this week and they couldnt find the cause.she was so sleepy and had very sore eyes yest so we went to a and e today.
They were absolutely fucking hateful to us.dismissed our worries and laughed in my face when I said I was worried dd may be anaemic
They looked in her throat said it was fine and declared she looked well to them when they have not seen her over the last three weeks ill and this week in particular.
I asked about a full blood count and they got agressive saying I was asking for a blood test for my own reassurance and proceeded to talk about bleeding a child and sticking a needle in dd just to reassure me it was horrendous.
Dd has to have procedures done reg due to her other problems and they were terrifying her and being rude and dismissing us.
Im so worried about dd and now so angry and upset.she isnt right and nobody will take it seriously

I'm worried too, today she is resting, seems ok but still has conjunctivitis and says her throat hurts.
She is eating and drinking more but think I will go to gp in morning. Really just need to fast forward to Thursday as she has a consultant appt and bloods will be done etc. I know they will take me seriously but Thursday seems a long way off.

Have a look at pharyngoconjunctival fever or Pool Fever it presents with symptoms similar to your dd's.

Hedgehog - maybe post the medical side on children's health.

I know nothing about diabetes but if the numbers aren't making any sense maybe there is something else going on?

The practice nurse told me, she was the one who swabbed and diagnosed impetigo when I took DD back the second time. Makes you wonder what's hiddeb in children's' medical records tbh; there was absolutey no reason for a doctor to suspect anything amiss in DD's care :(

So sorry, posted before I'd finished. Hedgehog lovely, I hope your DD is feeling better in the morning, and Thursday's appointment brings answers.

hedgehog 80. If you are on Facebook and if you are not already, I would highly recommend you join the group 'parents of type 1 diabetics' or any of the other specific type 1 groups to gain loads of support from others in a similar situation.

hope things are getting better now.

Dd seems a bit more 'herself' and managed a morning at school

However, the gp phoned today to ask what is going on, they are insisting dd should have had a mri scan and tests at hospital and have asked to either return to hosp a(the one we went to on fri) and I said no as I will never go back the after how they treated us or hosp b which is equally as bad and had misdiagnosed dcs on more than one occasion. I also don't want dd sitting for hours in a waiting room surrounded by contagious illnesses/vomiting etc as that then affects her diabetes if she catches other illnesses.
There is no option apparently for an urgent neuro/scan appt on nhs so we have booked privately to see a neurologist this week and get either a ct or mri done. Have scraped the £280 consultant fee together fr the appt and will borrow off family (hopefully) for the scan.

Glad she's a bit brighter.

Would the GP assure you that hosp A will do a scan and tests if you went today? Would you consider going if so? £280 is a lot of money...

The gp said she couldn't say that and we would have to wait in a and e with everybody else (its always packed and if dd catches anything else on too of what she already has I'll be so upset) then we would be apparently kept in overnight and tests done when they could fit us in.
It is a lot of money to go privately but means we have a def appt time to see a consultant and get tests done and we can arrange childcare for other dcs around it.

It's odd that the gp hasn't phoned the ward and referred you directly.

I am very confused- if your GP thinks she needs an urgent Neuro appt they can refer her. Why is it not an option on NHS? What does your GP think may be the matter?

The gp said its either go through a and e for an appt this week or an urgent ref which is 4-6weeks wait and she said that's too long hence us making a private appt.
Gp said today "your dd needs a head scan I can't explain away these vague moments and memory problems as something to do with her diabetes she needs to be seen urgently"

I understand if you just want to pay the money and have the peace of mind of the private appointment.

But it could be worth phoning PALS, explaining whats been going on and see if they can help.

PALs definitely! Good luck Hedgehog.

Ithink its just the worry we always have over a and e visits. Its always busy and nine times out of ten we have been stuck in waiting room with some very unwell children and due to dds other health problems its an absolute nightmare if she then catches something else, particularly a sickness bug so by going private we willbe eating beans on toast for a few weeks but hopefully avoid her catching something else.
Some hospitals have open access for dcs with conditions like dd to avoid a and e waits when it could be detrimental but none of the hospitals near us do this which is a great shame.

Don't get it . We can be referred by gp straight to a paeds outpatient, same day fi needs be. Given your dc history I would have thought there would be similar available.

That's what I had expected. The gp said she had discussed dd2 in the daily meeting and what the options were to get her checked ASAP and was told by the senior drs that it was a and e to get seen and relevant tests or a ref but that it would take 4-6 weeks.
I don't understand why there isn't a more urgent ref system to be seen within a week or similar but she said those were the only options

Not sure where you are but here in Scotland we can phone nhs24 after GP surgery hours. You explain the symptoms etc over the phone and a nurse calls you back with an appt time for your local hospital. We've had to use it several times for various things with the DC. Appt time is always within a couple of hours of your call, maybe slightly more if they are very busy but if it's something that you feel needs to be seen before GP surgery is open again then you should use it (if it's available where you stay). Means you don't have to sit in a&e for hours as well.

Gp cannot order MRI it has to be a consultant. So paed or neuro.

Keep pushing and don't take no for an answer. You know your child. Forty years ago I was in a similar position, although I was treated with respect, 10 month old daughter ill, cried out when arm moved. X-rayed but A&E could not find anything wrong. Took blood tests to be on the safe side. Had to return next morning for results. Consultant in A&E had students there as baby was a 'good learning case'. Blood tests has shown osteomyelitis in elbow which was uncommon. Emergency, she was operated on that afternoon. I remember the consultant telling the students to always listen to what a mother has to say, as she knows her own child better than anyone. Just to add, she was fine after op, now married with a daughter of her own.

Hi Hedgehog, how is your dd now? Have you seen the Consultant yet? I've been thinking of you.
We have open access here, it would make things so much easier for you.

We saw diabetes consultant on thurs, he was wonderful listened to the symptoms and ordered a lot of bloods to be done to cover everything then said if positive we will deal with it and if negative he will refer to a gastroenterologist about tummy troubles so we will get the help we need.
Neurology appt was changed to Monday so hopefully after that we will have some answers. Dd seems ok in herself but things change quickly with her so I'm keeping a very close eye.

Saw a neurologist who suspects migraine but thankfully nothing else although has requested an mri and EEG to be done in next few weeks so feeling reassured