My son is 9 and autistic with ADHD, his difficulties with his sensory environment are largely managed with 1-1 support and Medikinet to help with the ADHD. Using Mediknet was a last resort for me but within three months of starting the drug a year ago he finally learned to read and I could not ignore how much he caught up.
His maninstream school are fabulous with him and he has gone from below average attainment to average within a year.
So.....this week he came off of Mediknet on advice of the GP, to cut a long story short his blood pressure is sky high and it's likely to be the Mediknet wwhich has caused this.
The following day he went into school as usual and it was a disaster - DS ended up under a desk with hands over his ears as he could not cope with the noise in the classroom, his lovely LSA took him out to a quiet room so he could adjust. DS also had a part in the school concert which he has been so looking forward to and the school allowed him to take part as planeed because he had calmed down so much. He got half his lines done and then in error the children missed a small section of the play - this is no big deal and they carried on as planned but for DS it was a disaster as he giot confised and bewildered, he was on stage when he should not have been and evidently realised this as he looked distressed. He then came off the stage and found his 1-1 who tried to calm him down because he was cying not loud as I was in the second row and could just see the tears. His 1-1 took DS out and another child took over his part.
I collected DS from school just after lunch as they could not cope any longer, when I turned up DS got very emotional and started to cry, he cuddled into me and just sobbed and kept saying "I'm sorry, I'm sorry, I'm sorry" over and over because he felt like he had upset everyone.
I kept him off for the last two days of term wth permission of the headteacher and managed to get an emergency appointment with the paediatrician for Wednesday to try and sort things out. It has been a few days of hell trying to get help sorted etc
Then on Friday evening I got a phone call from another parent to tell me that DS had been referred tpo on a Facebook discussion by another parent as "the little shit who ruined the Yr 4 concert". I am devastated because this parent knows me and knows my DS, she is more than aware of his diagnosis. It will have been obvious to all the parents reading this who "the little shit" was.
Even worse this woman has a disabled child herself so should understand the issues but evidently not. Of course the twofaced bitch woman is really nice to my face.
My husband sent her a message (not rude) but just a polite message reiterating that DS is autistic and had become bewildered and confused when the play changed.
Her response was horrific
She was not sorry for referring to DS in this way
She calls her own kids "little shits" sometimes - Nice!
DS ruined the hard work of all the other children
The school were at fault for allowing DS to take part
She "knows" about special needs as she has a disabled child
DS "misbehaved and got away with it".
I have actually deactivated my Facebook account as I don't trust myself not to send my own reponse (which would not be polite).
I have written to the headteacher saying how angry and hurt I am by the comments made about DS on such a public forum and am passing on ALL her negative comments about the school.
I am trying not to let this eat me up but I am struggling I really am. My DS has such a difficult life at the best of times without people making comments like this on Facebook.
Can the school do anything?