To say well done to my super nephew...

[Theglassishalffull]

My 10year old nephew had new splints fitted. The man who fit them was not his normal one, so when he came to fit them my nephew said to him"I think that they need to be cut more."
To which the fitter replied "Well I have had 24 years experience doing this so I do know what I am doing."
My nephew then turned to him and said " Well I have had 10 years experience at being disabled so I know what I am talking about.
I thought that was brilliant.

People tend to 'lash out' when others refuse to listen to real experiences.
I was extremly abrasive to the sonographer who looked at her fucking watch when my daughter was screaming in agony. My lovely, quiet and private girl.
I didnt deserve to be dismissed. I deserved a medal for not smacking her in her stupid gob and shoving that watch up her arse.

HRH, I don't see this as a competition. I merely stated thet i believed that the op's nephew was rude. I only mentioned the fact that i was a Human Rights lawyer, because i was accused of being anti-diability.

HRH... I would also agree with you about consultants, generally. When I meet a decent one, it takes me all of my restraint not to comment on his/her marvellousness. They should all be marvellous, having worked so hard to get where they are, but I think many of them have 'lost' the reason for their calling.

cory
that has bought tears to my eyes.
You do your best, you bring your child up to be polite and respectful and look where it gets you.
Its not fair.
You should feel proud, its not your fault that other people cannot respect your DD.
Maybe it is their parents who should be ashamed.

Where was this child's parent/guardian during the consultation with the fitter? At 10 years old, I would not expect them to be unaccompanied and I would expect the adult to speak up - politely but firmly - to make sure that the child's concerns and worries were properly addressed.

Cory, you made me cry. You shouldn't feel bad but the people who treat your DD badly are the ones who should!!!

I also work with children who have disabilities - severe special needs and some who are physically disabled and are also non- ambulant and non verbal.

I also am responsible for the behavioural management in the school - (part of a team). If I am responding to a violent incident we ask the adult what happened and where possible the pupil. If it turned out the adult was ignoring the opinion of a child with communication difficulties, who's non verbal or generally dismissing a pupil then the staff member would be getting advice on how to deal with the pupil appropriatly to prevent re-occurence of the situation. It is not always assumed the adult is right. We have high expectations of our pupils - behaviour included - but we are the role models and should be setting a good example. You cannot simply assume the child/ pupil is in the wrong.

I have also have had to advocate for non ambulent and non verbal pupils who have AFO's that have caused damage to their feet - meaning they cannot wear AFO's, pedros' shoes etc - meaning they cannot stand/ go into a stander. Meaning they can't put their bodies in a good position, meaning their organs can be affected and their bowels may become sluggish meaning the get painful constipation. For those who have done long car, plane journies just think how that makes you feel after a while and then imagine experiencing that everyday for weeks on end.

The child can experience all that ^ - but yet them preventing themselves being in that position because the 'expet' announces they know better and them then suffering is rude? I am astounded.

MrsDV

Sorry to go slightly off topic, but I recently had to be rude to a ward sister who was insisting my mother could be discharged from hospital 4 days after a triple heart bypass

She couldn't walk.
Was hugely swollen, which meant her heart wasn't working properly
Had not been able to wee for 12 hours
And her blood pressure was dangerously low.

She wouldn't listen and would only do so when I started to get rude. In the end my mum stayed in hosp for another week.

What the hell are people including dc, supposed to do if people in charge DO NOT LISTEN?

Lying I will be with my ds tomorrow when he gets his new splints and I will have a good look both at the splints and at my ds's face and body language, but again he will have to express whether they fit well.

Oh yeah! I remember the last time we were ever-so-polite in an NHS setting. I was being told by a junior midwife that I wasn't having contractions, just "niggles" and to come back at 8 the next morning as there wasn't really anything happening. Baby was born at 4am.

I bloody wish I'd had the presence of mind of the OP's nephew.

youarekidding good post
Lying,
yes it is great when you get a good one, the new dentist is brilliant.
Cory, that is so awful word fail me,
MrsD xx
Forehead you have lost.

and anyone who would call a child brat because speak up for themselves, need to imagine being in pain and not able to tell anyone.

Lying I was always with my DD.
I did used to speak up.
I was often told 'Now Mum we prefer the children to talk for themselves'.
They would then go on to ignore what DD was telling them.
Little things like 'I am allergic to blood products' or 'I want to be sedated when you put that tube down my nose'.

Not even ignored really, that would infer (imply?) that someone had actually listened to her and then decided to ignore her. No, it was more like they just didnt hear a word she said.

I have had to stand infront of a HCP and insist that they did NOT put a needle into her portacath until they read her notes properly.

I never left her (unless her dad was with her). Not in two years. I dared not.

QuickLookBusy oh yes you have to get angry and Rude.
when my dad was in hospital, dying because of a brain tumour(and away with the fairys) the man in the nest bed told him to shut up very rudely.
I told the nurses to move him or my dad, or else.
next time the rude man was off in a room on his own.

Rudeness isn't ever a course of action I'd advise, but he was forceful with his opinion (and actually fairly witty with it) when it was important that he was. Good for him.

Hugs to all posters on here with suffering children, until it happens to your child you have no idea.

Op your nephew is lovely xxx

Ohdo is you DD better now?

MrsDeVere, that is so awful

but I know exactly the kind of thing you're talking about

This thread is the reason that I have lack of faith in the human race as a whole.

He was not rude.

I'm actually fuming at some of the replies on here. You complete and utter fuckwits. I was going to apologise for my language, but since somebody has already called a disabled child an asshole I think the name quite fitting.

Sorry, but I have a very dim view of adults who don't listen to DCs.

The radiographer who grabbed DDs broken arm when she'd being cradling it for the last 2 hours and knew exactly how to move it without pain made me and her very

cory

HRH, speaking up for oneself and being rude are enturely different things. I really don't understand why you are trying to turn this into some kind of competition. However, if the fact that i have 'lost' makes you feel better, then so be it.

Not that under some of the circs mentioned here I'd condemn a little rudeness of course ...

i think the OPs nephew was being a smart arse, but perhaps it was warranted if the fitter was being dismissive?

i suppose it depends on the circumstances more than anything tbh.

No glass she died 6 years ago.
I think it might be relevent to mention to some of the posters that I have PTSD.
This is not as a result of her death but of the two years spent in hospital with her. Watching her suffer and the continious stress of trying to keep her safe. Having to be hyper alert and being her advocate in matter of (literally) life or death.
It has left me unable to pick up the phone to make a simple medical appointment without suffering a panic attack.

I am not a wimp or a trouble maker or a drama queen. PTSD is much more common than you would imagine in parents of children who have survived or died from cancer. The reasons are not as simple as it being upsetting to see your child in pain or being sick or losing their hair.