STAND UP AND BE COUNTED AND STOP THE ATTACKS ON SN PARENTS

[4madboys]

ok NOT an aibu, but this is where it will be seen the most and it NEEDS awareness.

quite frankly, i along with others am appalled at the comments that are being made and left to stand, toward the SN community, they are downright offensive and quite simply appalling.

i am sure (or hope) that the majority on here do NOT agree with them but yet the SN community on mn are not being supported, whether this is because people do not know what to say, or they havent seen these posts i do not know?

BUT IT IS ABOUT TIME THAT THINGS CHANGED, so this a thread where you can stand up and be counted and say that you do not agree with the disregard, blatant trolling and offensive behaviour towards our lovely mn who have or are dealing with sn in their family.

they need this place for support, not the vile behaviour that they are getting.

so please post here and show your support and help make a change for the better.

all it takes is a smile next to your name to show you agree :)

Of course you can be in the fanciest, nicest part of Italy or Germany and then something happens and you're off to Holland, Afganistan or Slough.....

The majority of disability is acquired not congenital. Something all parents of NT children would do well to remember I think and I include myself in that.

Granny?

I remember going on AIBU and posting about my dd symptoms over a year ago, some helpful MNetters suggested that she could be Autistic, or have SN, I was like my dd does not have SN, all children are different and develop at different rates, she will be fine. But I think that the defining moment came when she was with her peers at drop off, she stood out like a sore thumb, in a corner, back to her peers with a plastic toy in her mouth. Then we saw a range of professionals who all agreed that something was up, that she might have ASD, just got a formal dx of developmental delay of 2 years, with some autistic traits, but not enough to make a full blown dx.

meant at pre school drop off

She has come on leaps and bounds since then, and we are getting her draft statement through this week. She now loves to be around her peers, and interacts with them, and has stopped putting things in her mouth which is great.

No, we were just ignoring you, startAfire

Neuro-typical.

neurologically typical

I first realised the Christmas morning after her second birthday, when dd didn't want to open any presents and cried to have her breakfast as usual. Jeez, I was a fucking mess for about two years- I'm sure I would have been even ruder than normal if I'd been posting on MN at the time. I'm alright now though.

As a sn parent I really like the Holland Poem (page15)
It really captures for me how I felt after ds was diagnosed and my world was turned inside out and upside down. I wouldn't change him but there are times when I wonder what if...? I think most sn parents will feel that at some point.

Maybe I am wrong and most other sn parents see it as patronising and never wonder about what if..? It does make me sad and angry.

But we do need to change the way sn is bashed on this site. I hope MNHQ are going to do something

It gets right on my tits, I have to say. But if it helps some people, great. I don't like it being banded about as a set of platitudes by people who don't actually have a scooby, though.

leBOF my dd exactly the same. Birthdays are a no no, she does not like candles and singing happy birthday and blowing out the candles. Spends all the time with her hands on her ears shouting.

She likes the party though and presents now, just not the cake and candles bit.

Hope I'm not too late to add my support. Having worked in a mainstream school with a 20-25% SN register, I was always shocked at how some parents are treated so badly by others purely because their child has SN. They are subjected to horrific comments and shunned, their dcs excluded from party invites etc. I would much rather spend time with people with SN than those who are afflicted by total ignorance.

I remember your thread Piglet, you were shocked about suggestions of a SENCO becoming involved, if i remember rightly

The Holland thing and being disappointed about Germany. Ds was rushed to intensive care the minute he was born and spent 2 weeks there, it was touch and go quite a few times. I just wanted and was happy to have ds, whatever shape or form he came in. So it doesnt really reflect how i felt.

Oh yes claw thought that had best been forgotten . I guess its the denial process, but as dd gets older the differences become clearer between her and her peers.

nchanged (was ImeldaM)

Piglet, my first post on here was when ds was 3 years old, i had concerns, not sure i was ever in denial as such, i just didnt know the first thing about autism or sn's. The more i learnt, the more it became obvious, so it was a gradual process and i fully expected an autism dx by the time ds got it. I would describe my intial feeling as one of relief.

I refer to my non SN dcs as 'average'.
When I was 20 wks pg with dc3 we were told he had a strong chance of having Downs. We researched it, didn't go for amnio and decided to wait until he was born to find out one way or another. The hassle and negativity we got was unbelievable. Even from close family. Tears, accusations, complete lack of understanding. He didn't have it in the end and we actually felt a bit deflated when he was born. I know that may sound odd.
I have the utmost respect for anyone who has SN, whatever form it may take, and those that love and support them.

Adding my support as a long time lurker and very occasional poster.
I have four boys and a girl, DS1 (12) Aspergers, thankfully not too affected, severe dyslexia, DS2 (11) ADHD, DS3 (9) possible ASD, but definitely traited, ADHD and hypermobile, and DD (5) bright as buttons and just as much hard work!
I also have hypermobility syndrome, and fybromyalgia and am currently not working fully supported on benefits.
My first three children have a different father to my daughter.
I live in social housing.
Do I win Daily Mail Bingo?
I find the opinions of some recent posters both offensive and mind boggling. If they ant a cat fight, they're all welcome to pm me and see how far they get, especially if it keeps them off everyone else's back.
No one needs to justify themselves to people like that, and I will be making an effort to post more often to make it clear to such people that this is the case.
Also, hope to get to know you all better :)

I have posted many times, started my own threads since finding mn and entered loads of competitions (and won twice!)

I have always found good support here and good advice, especially in times of dire need and I would hope everyone who comes here does. It really saddens me when I read others have had such bad experiences.

So I add my :)