TO SAY Camerons Policies are in danger of getting all disabled people labelled as "Scroungers"

[ScousyFogarty]

That is a wicked thing do do and David Cameron beeds to apologise or more likely get one of his flunkies to say SORRY

I've just found out that a wonderful young woman who has the same diagnosis as myself has just died, not four months after diagnosis. She has left behind a devastated husband and her young family

Still, that's a saving of £125 a week eh. Every little helps.

Still jealous?

did i upset her do you think as i did my huge post earlier and repeatedly asked what she would have me do and then she went off and has not returned im so bad

sorry to hear that wubblybubbly i do hope for your sake your hear giving us your insiteful wisdon for many moons to come (((hugs)))

Nope, no wind out of my sails, you were off target.

But I'll take the wish for the deed: you tried to crush a potentially terminally ill person with a taunt about their impending death or extreme penury.

Niiice.

Oh god, wubbly. So sorry.

Thank you smile.

I just don't get why people struggle to understand that those of us who have to deal with disability, be it our own, or that of our loved ones, would hand back that £125 in a shot, in exchange for good health.

I'd give everything I own to see my son grow up.

omg so many people out there with no knowledge of what they spout off about and absolutely no empathy its a very nasty world out there how can some of you live with yourself

Nah you crashed and burned ThisIsANiceCage. Plucked from your premature crowing into a nosedive of shame.

One of your cohorts just referred to Hitler. :)

i know Wubbly it worries me sick if i cant get any help or respite what will happen if i get ill and what if i die my family will be split up my DS especially would not cope hes autistic how would he understand why mummys no longer here to wash ,feed, dress and be with him he thinks im his friend too im with him 24/7 im scared for him so in that way i understand your distress bless you im not blessed with the best health myself i was born with a hole in the heart but im hanging in there i only feel ill sometimes from extreme tiredness so tired i want to vomit in mornings when i wake up not really helped by usually having to clean bottoms and change soiled bed linen . i do hope you have some kind relative not to far away? my mother was my only help but sh has died now and ive no other family my sister ran off when faced with family responsibility and my DH has no family so wish i had a brother or sister to share our worries with at least

im not a cohort if you would like to scroll and read previous posts you should be ashamed really ashamed

Crashed and burned? Mynotfinkso.
Some of us are giving out reasoned responses rather than posting deliberately inflammatory comments, which is your style all over.

Ohhh to have pressed post at the last bit I typed, but I don't rise to idiocy.

Mind you, I can understand the comparison to Adolf.
There have been posters on here that have alluded to eugenics and euthanasia as the solution to the disability rights/benefits/services issue. You have supported that. The simple fact of the matter is that these were the policies of Adolf Hitler. It's a reasonable conclusion as far as I can see.

Thing is what utterly sickens me is that if the self same comments were addressed to ethnic minorities or those of other religions then other posters on this board and MNHQ would be all over it and it would not be acceptable.

Why is it that simply because your mind or body does not work as well as those of others then this kind of bile is tolerated, accepted and even approved of?

yep Fascism is alive and well in the uk it seems the person i said that to made her ethos quite clear people like my dh who is ex seviceman and disabled during deployment and children like my ds should be eliminated either and she did say this either never to have been concieved as we shouldnt be procrating and/or hidden away put into institutions and she said i was selfish and didnt think of others like her friend who could lose his job and was struggling to pay his private school fees read back why that might offend cant be asked to re write it all

My DH is reducing his hours right down, so that he can take over the care of our DS, just taking him to and from nursery at the minute, but more as my illness progresses. It also means he will be here for DS after I'm gone. The £125 helps a little, but doesn't really compensate.

It's not ideal, financially. In the short term we'd be better off if DH gave up work altogether, but long term that would be financial suicide. He works in IT, so things change very quickly and he would struggle to get back into the field at his current level after a few years out. He's dyslexic and worked so hard to get his degree as an adult, both working and studying full time, after going through the education system being labelled as thick and lazy.

It's also hugely important that he has some sort of normalcy to his life, this is very hard on him too, we've only been married coming up to 4 years and he is facing this. I feel I've let everyone down very badly, although of course there was nothing I could've done differently to change things. Shit happens to the best of us.

My priority now is making as many good memories for our 4 year old as possible, I've been told by MacMillan that it's important to do that. I'm slowly starting on his memory box, but I can't do much as every time I try, I cry my daft bloody eyes out.

Actually, I've cried my daft bloody eyes out just typing this out and it's not really relevant to the thread, too personal, a bit tiny violin, but I'm posting anyway.

aww thats lovely iveone of those for my kids with there nans things in photos pictures they made for nan as she used to be with us all the time she lived near and visited practically every day then i used to help her mornings and evenings for dressing washing and feed her lunch but the memories of her spending time with the kids are so important to them and to me its what keeps me going that and my lovely dcs if i didnt have my DH though eventhough hes disabled i dont know how id cope you need another adult to talk to dont you he never complains he was happy serving his country thank goodness he doesnt come on here id hate him to have seen some of the awful comments today i wouldnt want him to feel as i do that he wasted his health and happiness he has a forever shinning personality he laughs at everything i dont know hoe he does it hes my hero and mums like you too

He is a hero smile, you're right. It's beyond my understanding, some of the comments directed towards the disabled on here.

It's not all doom and gloom here at all, most of the time we're laughing and thinking positive - no one knows what is around the corner, I could be hit by a bus tomorrow so what's the point in worrying?

Anyhow, I'm off to see Take That tomorrow, I have lovely friends as well as a wonderful family

Why will autistic people not pass the new tests to still get DLA? Surely for anyone autistic, they won't be able to follow all of the instructions? And if they were told they were well,surely it will be overturned on appeal?

oh wow i wish take me with you lol well have a nice day and some peace wubbly im so glad youve a good support network of people around now THATS what life about previous poster family good night wubbly and glitter x drink your horlicks some of the others and pray...pray a lot

And just to say, I know that lots of people can have the same diagnosis but have very different degrees of symptoms. But rightly or wrongly, posting about one illness you have will inevitably lead to some people thinking - well so and so has that and they are working.

So I have a friend who has a hole in the heart for many years that has recently been fixed and had a pacemaker fitted. She also has a leaky valve they can't repair. She has other heart abnormalities. And yes it has affected her ability to walk more than short distances. But she has always worked.

I don't think it is an issue with people with severe disability e.g. autism, but the reality is that there are many many people with disabilities who do work. I remember hearing David Blunkett arguing that people who are blind shouldn't get DLA as he knew from experience that blind people can work.

So simply posting and saying I have a hole in the heart sorry, isn't that strong an argument. Posting and saying I have a hole in the heart so I can't walk across the room without going blue, is a very persuasive argument.

I know the other argument is that someone with a disability may not find an employer who will give them a job. I have mixed feelings about this argument as there are lots of people who struggle to get employers to give them a chance e.g. single mothers, people close to retirement age, etc. Your chance of getting another job if you are unemployed and over 55 is tiny because of prejudice from employers. But we don't say these people need not look for a job.

Lesley, DLA has nothing to do with working It's to help disabled people overcome the barriers they face in accessing ordinary life.

Ok Lesley. Up until now I have justified myself to you and to others. Maybe due to habit because of governmental expectations to do so.

Enough.

I'm not justifying it any more. If you're really interested in why those with Autism would have difficulty with the PIP reform then visit the National Autistic Society website and do the research yourself.

Fair enough Glitter I wil do so.

wubbly - Sorry i know you can get DLA if you are working. But it is to help with tasks that you can't do yourself. Many disabled people can manage to look after themselves fine without any help and so wouldn't be entitled to DLA e.g. my friend with major heart defects. And I'm not saying that this means that anyone who has major heart defects shouldn't get DLA - obviously the individual situation varies.

I am just saying that there are lots of people with disabilities who do manage to look after themselves and so rightly aren't entitled to DLA. To just post I have x condition so I need DLA, while it might be correct, isn't a persuasive argument in itself.

And DLA awards are indeed decided on the "can't walk across the room without going blue" bit. Not on the name of the condition. Precisely for the reasons you explain.

(I think there are exceptions after lobbying by specialist single-condition charities - but that's another whole can of worms.)

But I doubt it was DLA David Blunkett was arguing against - it would be Incapacity Benefit. IB/ESA is an out-of-work benefit. DLA is for extra costs incurred because of disability, including for working people.

No expert, but I'd guess Blunkett would incur additional costs because he cannot drive and may need travel help (eg accompaniment on some journeys), plus the dog's bills, of course (the dog not being an optional pet). He may also need help with cooking a meal from scratch and keeping the bathroom and kitchen sanitary, etc. So I'd imagine he'd get DLA if he applied.

See, that's how the media portrayal has made it, DLA handed out like monopoly money.

It isn't.