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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be in a total state over ds7 having his tonsils out and considering cancelling

152 replies

MilaMae · 26/03/2011 11:17

Ds has an enlarged tonsil.

When he's ill it swells up,it annoys him all the time.He constantly throat clears,coughs etc.It drives his peers mad(and he gets teased).

When he does a lot of activity(eg long bike ride,running around) he has to catch his breath more than his twin.He dislikes reading aloud etc.He ended up in A&E with flu at Xmas due to the damn thing making him think he couldn't breath(his twin didn't).

Anyhow I was thrilled we'd got a date but after a hospital visit(form signing etc),speaking to friends etc I'm now crapping myself,seriously. The consultants are happy to do it but kind of handed the decision over to us.

The dtwins are long awaited IVF twins and I feel like I'm spirally back into this fraught filled ttc,newborn anxiety days ie convinced he's going to be taken away. We've been the 1 in 10000 before so even though there is only a tiny chance of anything bad happening I've blown it up big time.

I get really tearful when thinking about it,can't think about it etc. He's very excited which makes it worse. If something happens I'll never be able to forgive myself as obviously he could poke up with it.

Really don't know what to do.I know I deserve a virtual slap and many mothers have far worse to worry about so I feel bad being so silly but I really am terrified.

So should I cancel or not?

OP posts:
follyfoot · 26/03/2011 22:54

Am sad that this thread has been hijacked. Mila's child would be incredibly unlikely to need a transfusion, the risk of getting anything from a bag of blood would be infinitesimally small, and instruments are single use so I have no idea why anyone is banging on about that. Its all irrelevant and I'm cross that I let myself get dragged into a side issue - my apologies Milamae. You must do what is right for you and your lovely DS.

Bogeyface · 26/03/2011 22:55

Well done KM, hope you are proud of yourself.

Thanks to you there is now a woman who is even more worried than she was before and possibly a child not receiving a much needed operation. You should be fucking ashamed. Angry

CoffeeDodger · 26/03/2011 23:03

This reply has been deleted

Message withdrawn at poster's request.

TechnoKitten · 26/03/2011 23:57

You're not being unreasonable to be worried - of course not. Every mother is worried when her child has an anaesthetic, you are handing your precious children to the care of someone else and your fear is understandable.

It is not helped with irresponsible friends (GP or not) saying they wouldn't let their children have an op (maybe her kids don't need it - I wouldn't let mine have their tonsils out at the moment, but that's because they've never had a day's sore throat in their lives and there's no indication to do it) or saying that 7 is the worst age (which is complete rubbish).

Tonsillectomy is definitely worse in adults - they are in more pain afterwards and the post operative recovery period is of the order of 1-2 weeks as opposed to 1-2 days in children.

I have not met a single anaesthetist who would ever say to a patient "Things go wrong more often than you'd think" - mostly because it's not true but also because it's completely bloody irresponsible.

Unfortunately everything in life has a risk associated with it (there are several injuries a year related to putting on socks) and part of the surgeon's job is to inform you of those risks so you as the responsible adult can decide if the risk of surgery outweighs the risk of leaving things as they are. From my perspective the fact that it's impinging on his ability to cycle, do sport etc with family and friends would be a pretty big incentive to getting it done but I know everyone's attitude to risk is different.

MilaMae - what will happen. You will chat to the anaesthetist on the ward beforehand. They may listen to your son's heart and lungs - a benign murmur is nothing to worry about but they may want to give antibiotics during the procedure (some surgeons I have worked with do, some don't). Your son may be given a premed (painkiller mixed with sedative) if they feel he would benefit from it (again, I tend to use it a lot but I know some of my colleagues don't).

When he comes to theatre he will sit either on your lap or on the table depending on how he's acting. They will put a small peg like monitor on a finger or toe to measure his pulse rate and oxygen levels. They then either put a small drip (via a needle) into the back of his hand and give him the anaesthetic through it, or they hold a facemask with oxygen and anaesthetic gas mixture gently over his face for him to breathe. Either way, you'll be with him as he falls asleep. Once asleep, you'll be asked to leave (and you will probably cry in the corridor) - if a drip wasn't put in to get him off to sleep, they'll put one in then. He'll have a breathing tube put in to get oxygen and anaesthetic into his lungs and the rest of the monitoring put on (ECG dots for heart rhythm, blood pressure cuff which cycles every few minutes).

The surgeon will take out the tonsil in question, during this time the anaesthetist gives medicine for pain, sickness, to reduce swelling etc through the drip. At the end, the anaesthetic is turned off and as your son breathes it out and breathes in oxygen, he'll wake up and spit out the breathing tube.

Risks I quote to parents before the anaesthetic are: waking up with a sore throad, some post operative sickness or vomiting and very rarely, damage to teeth (caused when we open the mouth to put in the breathing tube - occasionally wobbly teeth come adrift. Very rare though!) There is also a very rare chance of being allergic to one of the anaesthetic components - estimated as occurring every 1:1000 to 1:20000 anaesthetics (yes it's a wide range) - the reactions vary from an itchy rash to anaphylaxis which can be serious. However you have to remember that these are extremely rare and that anaesthetists are trained to recognise the signs of any adverse reaction and treat them immediately.

Your son will wake up in recovery with the peg monitor on measuring his heart rate and oxygen levels and a clear plastic oxygen mask on his face. He is likely to be extremely grumpy, thirsty and disoriented - all of these improve when you come up to recovery to cuddle him and he is given a drink.

Nothing anyone says will allay your fears entirely and ultimately it is your choice - nobody will force you into signing a consent form and nobody will mind if you change your mind. You don't need a virtual slap and you shouldn't cancel or not based on the responses you get here.

Have a virtual instead!

nooka · 27/03/2011 00:05

I used to work with a doctor who was on the DoH advisory group for new variant CJD. As far as I understand it the risk of transmission through surgical instruments is very very small, but even so reusable instruments have not been used for many years now for tonsillectomy. It's worth knowing that there have been just 170 cases of vCJD since it was first reported in 1996 and only three of them are thought to have been infected via secondary transmission, none due to surgical instruments - it is a very very rare disease.

So it's really not a very relevant worry, but the OP should ask her surgical team for specific reassurance. They will in any case discuss all the risks again prior to surgery, so if the OP is still anxious at that point she can still say no then. The Royal College of Anesthetists also has some really good leaflets on risk www.rcoa.ac.uk/index.asp?PageID=1406 which might be helpful, including a more general leaflet about GAs for children: www.rcoa.ac.uk/index.asp?PageID=1494.

Any operation is scary, and it's a very hard thing to have to say yes to an operation for something that isn't life threatening, but it sounds like this little boy's quality of life is being seriously affected by his tonsils.

seeker · 27/03/2011 00:27

Look, I have been on mumsnet long enough to remember some of the other bonkers things kerrymumbles is frightened of. IGNORE HER. I am all ready to be attacked because in some people's eyes she is 'mumsnet royalty" but as far as I am aware, she has never yet posted anything sensible about anything. And I am prepared to provide a few examples if necessary.

IGNORE HER SHE IS TALKING BULLSHIT.

cumfy · 27/03/2011 00:41

We've been the 1 in 10000 before

What happened ?

It's entirely natural to be scared shitless really worried if you've previously had a very bad experience.

Beaaware · 27/03/2011 11:16

boosmummie, so in other words what this is suggesting is that they do indeed have to use disposable instruments for this type of operation, glad to hear this and very reassuring for the OP. I know from experience that in some private hospitals certain instruments are disposable certainly for cervical smears & endoscopies, this highlights how seriously they are taking the rogue prion transmission via surgical instruments to prevent the spread of vCJD.

boosmummie · 27/03/2011 13:07

Beaaware That is EXACTLY how it is. I only looked under Tonsillectomy/Adenoid and ENT general to show Kerrymumbles that what she was saying was utter tripe. I'm sure if I delve further it will be pretty normal practise.

follyfoot · 27/03/2011 13:15

And they have been doing this since 2001, so its not exactly anything for Mila to even think about. Quite why it was ever raised in the first place in this thread I have no idea.

boosmummie · 27/03/2011 13:31

Folly I think from what Seeker said, Ms. Mumbles appears to lob crap into lots of threads. I was particularly amused at emkana's comment last night about unaccompanied minors on flights.

It's a shame, as poor old Mila is desperately worried for son, and a massive majority have told her nothing but happy, sensible reasoning for the op. Not least yourself, having 20 years of experience in theatres and the lovely post from Technokitten which says everything in one beautifully written and comforting post.

princesspuds · 27/03/2011 13:46

Mila, I can totally understand your anxiety, my dd is 6 and has had 4 ops to date, 3 of these were major as my dd has a condition called Spina Bifida, she was 19 hours old and had an op to close a 3cmx4cm hole in her back.

When she was 4 days old and recovering from the 1st op, she had brain surgery to insert a shunt to drain off fluid as she had developed Hydrocephalus (fluid on the brain)

She has also had bladder surgery at 18 months and an op at 5 on her leg.

The op on her leg was purely cosmetic to enable us to get her dressed easier and enable her to use her standing frame more efficiently, sadly this op was unsuccessful.

My dd also has MRI's every year and needs a GA for that too.

I understand how scary it is for you, but you will be surprised at how hardy our lo's are, you will find its us parents who are in bits about the whole thing whilst the kids take it all in their stride.

There are risks but they are few and far between, we have to be aware of these otherwise the staff would not be doing their jobs properly.

I have the prospect of my dd having rods inserted into her spine and a bladder augmentation in the future, but if it needs to be done then so be it.

One thing I will say is if you are going in when your lo is put under, it may upset you when they give them the gas as it acts quite quickly, this is one thing I never get used to and always come out crying my eyes out.

Please don't cancel because you are concerned, ask to speak to someone and tell them how worried you are, your lo will benefit from having the op sooner rather than laterSmile

JustaNickname · 27/03/2011 13:47

I had mine out in December and it was the best thing I ever did even though I was scared shitless! The 2 weeks after surgery are the worst but its worth it. Also I did get ice cream in the hospital, nice strawberry one at that :o

GeraldineAubergine · 27/03/2011 14:10

Im not sure people are correct in thinking only single use instruments are used for addenotonsillectomies these days. As far as I'm aware single use instruments were withdrawn in 2001 as they were not as safe to use as the reusable instruments. Instead the quarantine on contaminated instruments was improved. You would really need to check on what instruments the surgeon intends to use as reusable instruments are still commonplace.

Fresh2death · 27/03/2011 14:15

Dont be selfish, if he needs them out he needs them out.
Helped me out hugely, suck it up and be an adult

boosmummie · 27/03/2011 14:17

Geraldine I was going on what the Department of Health's own site has stated.

GeraldineAubergine · 27/03/2011 14:26

The advice you linked to changed in 2001 after an audit. I think it changed again in 2004 and reusable instruments reintroduced. These documents are also available on the doh website.

washnomore · 27/03/2011 14:31

Geraldine if you look at my earlier link it summarises a report which found single use instruments to be as safe as reusable, back in 2005. It was carried out in response to the safety concerns you mention. It applies to Scotland but I would expect the situation to be similar throughout the UK.

GeraldineAubergine · 27/03/2011 14:55

i think it's best to ask the surgical team whether single use instruments will be used or not. In my trust, reusable instruments are used.

BigFatSpider · 27/03/2011 15:57

Hey Mila. Absolutely YANBU to worry - it's the natural state for parents, and deciding on an op for your kids is a big deal! But please, seek out the posts from Folly and TechnoKitten in particular (as professionals in the field), talk with the anaesthetist who will be looking after your DS, ask questions and seek reassurance on anything that's concerning you, and make your decision based on those discussions.

I had my first bout of tonsillitis at 21 and then with growing frequency over the next 10 years or so - finally had tonsillectomy at 32 after 8 bouts within about 6 months. It was not a pleasant experience as an adult, very long and painful post-op recovery (in my case, off work for 4 weeks) and my surgeon's opinion is that it's always much, much better to deal with the problem when kids present early with symptoms that can be addressed with a routine op, than leave it until later in life.

Good luck!

jasminetom · 27/03/2011 16:31

If the NHS is prepared to do it then he must need it. However, understand your worry.

MilaMae · 31/03/2011 17:38

Hi all just thought I'd update.

Haven't been sleeping for worrying but finally came round to accepting the risk from GA is probably worth the benefits then we read about the patients in Wales at risk from CJD so in a complete tizz again.

Dp rang the consultant and they don't use single use instruments as they aren't as effective and have caused bleeding. Said consultant is ringing us Tuesday pm(we must sooooo be known as the pita parents)to give us more info.

The long and the short of it is I don't know what to do.I'm really hoping the consultant will allay all fears but the articles in the news section have scared the s**t out of both of us.

OP posts:
StewieGriffinsMom · 31/03/2011 17:47

This reply has been deleted

Message withdrawn at poster's request.

springbokdoc · 31/03/2011 18:36

Oh Mila I'm sorry that some people have added unecessary worry to an already hard decision. I'm a surgeon and we are very risk averse especially in children. Talk to your consultant - if he is willing to do the operation it means that he views the benefits outweigh the risks. He will understand what it is like for parents - he probably has been asked the same questions multiple times. The only thing I'll say is that you probably won't ever feel 100% happy to have this done, just because this is the way that we are programmed to feel about our children. Just try and get your main questions answered.

All moms (and dads) worry about any op their child has to undergo - almost all cry once they leave the anaesthetist's room. It's ok and now that I have a little one I imagine I would do the same.

FWIW, I cannot imagine any anaesthetist saying that adverse effects happen more often than you think. Really? It doesn't.

CocktailQueen · 31/03/2011 20:08

Oh, I feel for you. My dd had to have a benign tumour removed from her throat under GA 2 years ago and it was a terrifying experience. The doctors and anaesthetists (sp!) do it every day though. And it sounds like your poor ds's quality of life is really being affected by it, so I'd have the op. As another poster said, it's a cost/benefit ratio that you have to weigh up. Hugs.

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