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Struggling with DD who has autism [Title edited by MNHQ]

212 replies

lollipoprainbow · 27/11/2022 23:25

Following on from the 'fucking dementia' thread can I start one for autism.

I've had the worst weekend with my dd10 and all I feel I've done is yell. The final straw was going into her room just now and finding boxes of revolting slime festering everywhere and charms, paint, paper etc all over the floor. Feels like having a toddler she's so messy.

I feel like a horrible shit mum.

I'm not sure I can do this for much longer.

OP posts:
MrsThimbles · 02/12/2022 17:36

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MrsThimbles · 02/12/2022 17:38

And you’ve had my post removed. Well, that’s fine by me. It doesn’t change the fact that autism isn’t all about those who are on the spectrum - especially on a thread like this.

Simplelivingisharderthanitlooks · 02/12/2022 17:39

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Interested in this thread?

Then you might like threads about these subjects:

MrsThimbles · 02/12/2022 17:43

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

That’s two times now you’ve said your not arguing with people and I’m going to assume it’s because you like joining threads then running away because you know you don’t really have much to say that is factual.

and I’m quite happy for my post to be reinstated regardless of what people think about it.

PipMumsnet · 02/12/2022 17:59

Hello everyone - we just want to tiptoe in to gently remind everyone that we do not allow personal attacks on the boards. We are getting quite a few reports about this thread and have had to delete several posts because they break out Talk Guidelines - please bear these in mind when posting.
MNHQ 💐

MrsThimbles · 02/12/2022 18:00

@Simplelivingisharderthanitlooks

to clarify, I haven’t asked for any of your posts to be removed. I’m quite content for other posters to see what replied to/and the way I replied. I’m not one for running away.

TangledWebofMincemeatDeception · 02/12/2022 18:16

There was some truth in that comment. It may upset people to hear it, but the person with autism is not the only person in the scenario. And they are not the only person affected by it. That doesn’t take away from their experience at all, but it does mean that others are allowed their feelings about it too. Saying a lot of pretty words, or changing the language around it, might be perfectly true and might make some people feel better or more positive some of the time, and that’s brilliant for them. But it doesn’t necessarily change the reality of the situation for other people.

Many situations in life are extremely burdensome at times, and difficult to cope with. That has nothing at all to do with how much an individual is loved, cherished or cared for, or how much that individual might see things differently, or want them to be different. It also doesn’t mean that one person always has it more or less difficult than the other. It isn’t a pizza, it doesn’t always fall into exact quantifiable slices.

There should be room and space for people to seek solace where it’s needed. Otherwise before we know it a lot of very loving, caring and devoted parents will find it almost impossible to continue looking after and supporting the children they love so much.

Life isn’t a book. It can’t simply be re-written to make everything right and fair and good for everyone all the time.

TangledWebofMincemeatDeception · 02/12/2022 18:18

Again, I’m going to genuinely give Flowers to every person whatever side of the discussion you happen to be on. These topics are not easy to navigate.

lollipoprainbow · 02/12/2022 18:22

@TangledWebofMincemeatDeception Flowers I got into work this morning after another hellish morning with dd and just burst into tears, it's relentless.

OP posts:
TangledWebofMincemeatDeception · 02/12/2022 18:35

You’ll get through it, together. She’s only young, she’s overwhelmed and anxious, I’m sure. There’s light at the end of the tunnel. Day by day. Cake Brew and Wine where needed. One of my daughters had such a hard time between 10-16, it was very difficult. She made it through, and so did I.

MrsThimbles · 02/12/2022 18:50

lollipoprainbow · 02/12/2022 18:22

@TangledWebofMincemeatDeception Flowers I got into work this morning after another hellish morning with dd and just burst into tears, it's relentless.

Lollipop, if you want to say what happened that had you both at the end of your tethers I’m sure there are people here who wouldn’t mind if you PM’d them and let them help you pick it all apart when you’re feeling better.

And if you don’t fancy doing that there’s the Challenging Behaviour Foundation who are a good help with advice. You can even phone them.

And something else that may be of help to your girl and the family is the Low Arousal Approach to autism. Like the organization above they look at Autism from the bigger picture and also concentrate on preventing family meltdown.

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