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Struggling with DD who has autism [Title edited by MNHQ]

212 replies

lollipoprainbow · 27/11/2022 23:25

Following on from the 'fucking dementia' thread can I start one for autism.

I've had the worst weekend with my dd10 and all I feel I've done is yell. The final straw was going into her room just now and finding boxes of revolting slime festering everywhere and charms, paint, paper etc all over the floor. Feels like having a toddler she's so messy.

I feel like a horrible shit mum.

I'm not sure I can do this for much longer.

OP posts:
lollipoprainbow · 28/11/2022 09:08

@MrsMarkRonson yes to a WhatsApp Group! How do we do it though ?

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lollipoprainbow · 28/11/2022 09:11

autism is a superpower' and a load of crap about Holland.

Ha ha I wrote a post on here ages ago about an autism on line course I did, the leader talked about it as a superpower and everyone chuckled and agreed. It most certainly isn't and I don't want to go to Holland.

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lollipoprainbow · 28/11/2022 09:13

@Ericaequites the independence thing terrifies me, I'm on my own with limited family and I worry what will happen if god forbid anything happens to me. I don't think she could cope on her own as an adult.

OP posts:

Interested in this thread?

Then you might like threads about these subjects:

Grey23 · 28/11/2022 09:13

I've had a crap weekend with autistic ds. Feel exhausted today and tearful

lollipoprainbow · 28/11/2022 09:14

@NiteWotcha gutted the other thread was pulled, I won't get to see any shared experiences or suggestions to cope. Unless it got nasty ?

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AllOfThemWitches · 28/11/2022 09:15

Does she go through 'cycles' of behaviour like my nearly 10yo? At the moment, he's very easy (albeit messy) but then he goes through phases of relentless violent, destructive behaviour and it's after a while of that that I feel I'm struggling to cope.

lollipoprainbow · 28/11/2022 09:16

@JoanOfAllTrades thank you, thank you, thank you for your helpful post, not condescending at all. You can be my mum if you like I've just lost mine 😢

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saraclara · 28/11/2022 09:17

lollipoprainbow · 28/11/2022 09:14

@NiteWotcha gutted the other thread was pulled, I won't get to see any shared experiences or suggestions to cope. Unless it got nasty ?

No, on the whole it was very supportive. Just a couple of people with autism themselves who struggled with it. But might watch said that it was a TAAT and that the nightwatch forum wasn't the place for a long conversation on the subject of the report.

blackheartsgirl · 28/11/2022 09:18

I hate autism.

I’ve just had a horrible weekend with ds 23
whi also has adhd, my dd1 has asd and I have adhd, dd3 I also suspect has adhd.

my run in with ds who I love to bits has made me realise sadly I need to put some boundaries in place for now to protect myself and my dds mental health. He doesn’t live with us thankfully.

lollipoprainbow · 28/11/2022 09:19

@ExhaustedFlamingo yes I definitely need to calm down, I hate myself for yelling and rising to it but I get so frustrated with the autism which is of course part of my dd so she's the one I take it out on. I hate how it stops us having an easy, fun life. I need to work on myself it's not fair on dd.

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AllOfThemWitches · 28/11/2022 09:20

Solidarity to everyone struggling, people who don't have 'ND' children will never really get it, despite what they say. It's a hard, sometimes scary experience and when you've been repeatedly hurt, had things thrown at you, had your house destroyed and your stuff broken, you do end up feeling as though you're on the verge of a breakdown.

AllOfThemWitches · 28/11/2022 09:21

That's not to mention the CONSTANT worries about the future.

TangledWebofMincemeatDeception · 28/11/2022 09:23

The other thread would have become a little too heated overnight I think (understandably so, it’s such a complex and difficult topic with strong feelings either side), and as @NiteWotcha said, it’s not the place for long-running conversations/discussions.

But this one can be a supportive space for you and others @lollipoprainbow.

I’m very sorry to hear you’ve lost your mum, no wonder you’re struggling to cope right now, on top of everything else. Have a Brew and a Cake today and good, long snuggle with DD (if she is the snuggly type).

lollipoprainbow · 28/11/2022 09:24

@Whatnextiwonder exactly, I'm not sure I would have had a child if I'd known they'd be autistic. For her sake I mean and mine, I feel terribly guilty that I've brought her into this world and she will struggle for the rest of her life and probably be unhappy. She's unhappy now and I worry about her mental health so much, she often says she wants to die.

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megletthesecond · 28/11/2022 09:25

Sympathies.
Today I am walking to the shop for carpet cleaner after my 14yr old threw spaghetti and meatballs down the stairs. That's after emailing school about her near meltdown earlier and not doing all her homework.

lollipoprainbow · 28/11/2022 09:25

The thing I'm really struggling with is acceptance of the autism. How do you all deal with that? I find myself wishing she was NT on a daily basis but it's never going to be they way and I have to accept but I can't. As I mentioned her two friends are NT and

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lollipoprainbow · 28/11/2022 09:27

Sorry posted too soon!! Her two friends are NT and I find myself wishing she was too and like them easygoing, confident, happy but she's a little ball of anxiety.

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Bubl · 28/11/2022 09:30

lollipoprainbow · 28/11/2022 09:08

@MrsMarkRonson yes to a WhatsApp Group! How do we do it though ?

I would also be up for a WhatsApp group.

Choconut · 28/11/2022 09:36

AllOfThemWitches · 28/11/2022 09:21

That's not to mention the CONSTANT worries about the future.

Yes that's me, ds is a pretty easy teen, don't have to worry about drinking or girlfriends, did great at GCSE's, doing A-levels, will probably be ok at uni......but then is going to have to cope in the real world.

Job interviews are going to be a disaster for him, he really struggles to talk to people he doesn't know well, constantly being rejected from jobs would put his anxiety through the roof and kill any self esteem he has. He could live alone but would never go to the doctors or dentist, would never get a plumber out if there was a problem or call the electricity company as he doesn't like using the phone and definitely not to call people he doesn't know. He would forget to do his teeth, would wear the same clothes till they fell off....He's so great but I have no idea how he is going to cope.

I'm planning on living till I'm 100 as I need to be around to help him navigate life, hopefully by then enough will be in place that he'll be able to cope!

FruitToast · 28/11/2022 09:49

I'll join you in a moan. Lost my temper with diagnosed 7yo DD and 'not diagnosed but if he's NT I'll eat my hat' 4yo DS this morning. Spent the morning chasing naked children around the house, forcing them into clothes, forcibly cleaning teeth etc as they blatantly ignored any other attempt for me to get them ready for school. Both DD and I cried on the drive to school. Then I had to beg school to take them for breakfast club as we were late. That's after a weekend where they repeatedly tried to wander off on a day out and were generally just a nightmare. I was even bitten right in front of Father Christmas. What hope have I got if they can't behave next to the guy that's meant to bring presents for being 'good'? Now I'm sitting at work staring at my screen trying to recover from the stress of it all. I wouldn't change them for the world but it's all so physically and emotionally draining sometimes.

AllOfThemWitches · 28/11/2022 09:52

Choconut · 28/11/2022 09:36

Yes that's me, ds is a pretty easy teen, don't have to worry about drinking or girlfriends, did great at GCSE's, doing A-levels, will probably be ok at uni......but then is going to have to cope in the real world.

Job interviews are going to be a disaster for him, he really struggles to talk to people he doesn't know well, constantly being rejected from jobs would put his anxiety through the roof and kill any self esteem he has. He could live alone but would never go to the doctors or dentist, would never get a plumber out if there was a problem or call the electricity company as he doesn't like using the phone and definitely not to call people he doesn't know. He would forget to do his teeth, would wear the same clothes till they fell off....He's so great but I have no idea how he is going to cope.

I'm planning on living till I'm 100 as I need to be around to help him navigate life, hopefully by then enough will be in place that he'll be able to cope!

That's it, isn't it? My mum died before she was 60 and as well as obviously being heartbroken, I was awake for hours every night thinking 'what if that happens to me?' In a way, I feel that we're lucky because my son is nonverbal and will never, ever be able to live independently so at least he will be looked after. But if we are not around, no one can love him as much as we do of course. I feel guilty but at the moment, he is generally a happy and content little boy who just wants his needs met!

lollipoprainbow · 28/11/2022 09:58

@FruitToast 'bitten in front of Father Christmas' I'm sorry but that has given me a much needed giggle this morning!

I took dd to a Christmas light up trail last year thinking it would be all lovely and Christmassy, she hated it, all other families there having a lovely time and she was in tears walking round. She had a meltdown because she wanted her photo taken next to a light up 'love' sign but there were other children having their pic taken and she got jealous. In the photo I eventually took she is smiling but her eyes are red with crying. It was bitterly cold and she refused to wear her gloves to top it off we got stuck on top of the Ferris wheel ride. Never again !!

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BrioLover · 28/11/2022 10:03

I feel this thread. Not so much because of the behaviour (my autistic and ADHD DS9 is not very defiant) but because of how it holds him back. He overthinks everything and it's so damaging to his self-esteem. He hates that he can't cope or do some thing like his peers. It breaks my heart when he is trying his best to fit in and I can see the other kids are thinking the equivalent of WTF because he just doesn't react in a typical way.

I'd love a WhatsApp group. I have zero capacity to start or manage one but if there is one I'd love to join. It's a lonely place, this type of parenting.

MrsMarkRonson · 28/11/2022 10:32

@lollipoprainbow @Booklover3 @Bubl And anyone else I've missed - will try and start a whatsapp - so if you want to join PM me. Warning - I'm rubbish at technology so might take a while, also not in UK so just heading to bed.
XX to everyone on this thread dealing with autism, asd, adhd and everything else

MrsMarkRonson · 28/11/2022 10:33

Oops left you off last message accidently @BrioLover !