What are you up to today if you have a chronic illness? Thread 🧵 9 Summer's Coming

[MewithME]

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5524497-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-8-plodding-on-gently

You know the rules...let's be tidy and fill number 8 up first 😁

Text from DD1, still stuck in hospital for the foreseeable. She's surviving on WH Smith sandwiches and DGS's unwanted puddings...says sod the diet 😂

@CoffeeBeansGalore if the cold does that, would it be worth trying a heat pad for a bit of relief? Yes, cocodamol wipes me out as well and makes me drowsy so I try to just take paracetamol but sometimes you need something stronger

Sounds like you deserve a medal!

@JewelleryCat Thank you. I'm keeping it warm.

@TeaAndStrumpets Ouch back at you. The feeling of going down uncontrolled is just horrible.
Normally the floor is clear & I don't wear slippers so I can feel with my feet. Next time I'll get DD to do a clear sweep before I even stand up.

Oh I love hospital puddings! Once made my exH drive to the hospital to buy a pudding with custard for me. It was an emergency

Edited to say I hope they aren't in too much longer

They are very soothing aren't they! Nice if you're feeling a bit stressed. DGS fussy about his food and never touches cake etc so always spare pudding!

No idea when they'll go home, he's fluctuating a bit.

Have been away for the weekend visiting DH's family, which was lovely but tiring. You forget how much effort small children are and I was only watching! 😆

Stopped off at a farm shop on the way home to stock up on pasties 😋

In bed now with a cuppa contemplating eating a pasty, but honestly I think I'm too hot 🥵

Stay cool everyone 💕

You could chill your pasty for a while, then use it medicinally to avoid heat stroke 😉

Unaccustomed walking the last couple of days (not a lot) now feel as if I've got a sprained ankle! How annoying. This sometimes happens I jump off a step or something, my joints are pathetic.

You definitely deserve a medal @Tiredandwired2

Welcome back @BlackeyedSusan

@TeaAndStrumpets Oh poor DGS & his mum. She deserves all the puddings! I couldn’t eat much in hospital, Think I lived on toast and the odd sandwich but I did quite like the ice cream! Sorry to hear about the ankle, hope it eases with rest.

Sounds a lovely weekend @Swanhilde

@CoffeeBeansGalore grumpy mule beans being apt for DH made me smile. My DH is also a freshly ground coffee fan though he uses an aero press so might look them up for him! It’s quite the routine each morning 😊 I can’t be bothered but must admit if he’s ever away, I do miss his coffee!

@TodayIsatrickyone We get ours from Costco but you can order direct ftom Grumpy Mule, Amazon & I believe M&S do them as well.

Morning all!

It was a bit cooler overnight, this is just a brief reprieve I think!

Both ankles misbehaving, I think it's from walking about on Friday very briefly along a cobbled street. If so that is ridiculous! Left ankle has got an egg shaped swelling, right ankle same but smaller. I should probably put some tubigrip on.

DGS discharged 11.30 last night with very little in the way of instructions or any follow up with the diabetes team but back today for blood tests so hopefully it will be sorted out then.

35° tomorrow!

Stay cool everyone 😎

Do you have hypermobility @TeaAndStrumpets? Or have you previously damaged your ankles? My ankles get swollen on and off because I damaged them because just walking on a cobbled street shouldn’t cause anything

My relative was diagnosed type 2 and no one really told them anything. I don’t think the nhs are good with imparting information!

Morning All

No hypermobility as far as I'm aware. I do sometimes get strains randomly but I put it down to having very few muscles! I am being treated for sciatica so my knees and ankles get affected when it's bad. Maybe it's that, I assumed sprain because of the swelling but perhaps I should get my osteopath to take a look next time.

I've scared myself reading about type 1 but there are so many improved monitors etc it will hopefully be manageable. Yes NHS is fine except when the systems don't coordinate.

Morning all, hope your ankles recover soon @TeaAndStrumpets and DGS gets some better info from the hospital.

I think I feel OK from swimming yesterday, but a bit bruised from the falling over, and my stomach isn't happy (probably the giant slice of cake).

Remembered last night that I'd bought some cooling towels last summer when I was running a lot, so have got a couple of them wet and in the fridge.

Just an ordinary sort of day of work today, plus counselling appointment. And emailing people about houses, again.

Morning @ValleyClouds !

@martha79 those towels sound wonderful. Hope you find a lovely house.

Morning

Love the dog and the snail story, very cute

@TeaAndStrumpets might be worth your DD asking about 24/48 hour access back to the ward. Whenever I've been in or worked on a children's ward we were always given/gave out instructions that we could return within a set period bypassing A&E. Wonder if that might help whilst he is so up and down.

I had a bit of a funny turn on Saturday. I'd volunteered at a scouting event in the morning with DS and there was a local fair on at the finish point. We met DH and DD there and started walking around the stalls. My Hayfever had been driving me bonkers and I just felt tired and hot. It was decided I'd drive home and then come back and pick them all up a few hours later. I walked back across town to the car and then felt quite light headed, I then panicked because I thought I was going to pass out in an empty car park. I didn't but I had to sit in the car and do some breathing exercises. I drove home and literally sat on our bed with a cold drink, my cooling towel stripped down to my underwear. I felt better after an hour but I felt so angry at feeling so useless. Then yesterday I twigged that actually I have a cold alongside the Hayfever. Unfortunately I can't take any decongestants as they don't agree with my meds. I shouldn't also take paracetamol as it can mask a fever when I am already at higher risk of sepsis. My temperature kept fluctuating and ideally I should ring the 24 hour chemo line but there is no way I was being admitted with these higher outside temperatures. It really messes with your head at one point when my eyes wouldn't stop watering and went red I panicked that I had measles. I've woken up today feeling like I'm now on the other side of it and can breathe slightly better so now just to fight the rest of it off.

Due to get up to 40 degrees here on Thursday. Kids have gone into school in plain clothing rather than uniform. I expect school to close Weds/Thurs, although I'm intrigued to what they are doing about Sports Day on Wednesday.

Oh dear that sounds so worrying. Maybe hide from the sun today (and this week!) it sounds as if you are a tiny bit better but I can appreciate the urge to do normal helpful things.

DGS is going back to the hospital for a blood test this morning, hopefully some information will be forthcoming. Alarms went off in the middle of the night so DD1 had to look on Youtube for how to do an emergency reading as no one had shown her but DGS. He is soaking up the instructions easily as he has a very good memory but it is a steep learning curve for everybody else.

Morning
@TeaAndStrumpets Glad DGS is home. Hopefully more info forthcoming. If it's any comfort, my cousin was dx with Type 1 at 4yrs old. He's a stong 6ft 45yr old now. Played football, stayed fit. Had a good typical teenage social life & has his own family now.

@Oioiqueen That sounded awful. Hope you can have an easy day today.

@martha79 Hope your stomach forgives you for the (delicious & well deserved) cake.

Take care in the heat this week.

@CoffeeBeansGalore thanks so much I really needed to hear that, your cousin sounds amazing!

I suppose I am so used to worrying about how DGS will manage in the adult world with his ASD I hadn't worried about his physical health! He is also very tall but woefully skinny at the moment, so hopefully he will be much improved very soon 🙂

Morning all, hope everyone can stay cool. We took dippy dog out early as she won’t get walked in the heat. Bit of a faff with the scooter and DH had a grumpy face at being bounced into it as he’s not a morning person but needs must! Otherwise resting and maybe sort a few bits out for the holiday so I can get organised early and rest the few days before.

Glad DGS is home @TeaAndStrumpets and hopefully support will be forthcoming with learning to manage it. Good idea from oioiqueen to ask about a direct number for the ward. I was given this when discharged recently or told to tell the ambulance so they could bypass A & E and get straight to the stroke ward. I scared myself so much googling when I first got home so although info is good, bear in mind it’s often generalised and doesn’t take into account age/ health/other factors.

@Oioiqueen that sounds awful especially on your own but hope you can take it easy for a few days and carry on fighting it off. Blimey 40 degrees in UK is just crazy! I think you’ll be safe from sports day though! We've got 34 forecast on weds I think which will be bad enough. 🥵

Ooh how soon is the holiday? I bet you're fantasising about sea breezes! It will do you so much good! I hope the little dog has found a shady corner to rest 😎

DH tried to take DDog out early this morning, but DDog refused to come out of the bedroom because I was still asleep and he was busy guarding mum. He is a German Shepherd, (DDog, not DH) and takes his guarding mum duties very seriously. So now he can't go out until about 9 this evening as its too hot, and he is giving DH a hard stare because in his mind DH has failed to give him his morning walk. I am staying out of this domestic dispute.

😂 😂