What are you up to today if you have a chronic illness? Thread 🧵 9 Summer's Coming

[MewithME]

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5524497-what-are-you-up-to-today-if-you-have-a-chronic-illness-thread-8-plodding-on-gently

You know the rules...let's be tidy and fill number 8 up first 😁

Morning all 😊

Hope you have a restful time off work @MewithME

Rest definitely sounds like the right plan of action @TeaAndStrumpets hope your hot water bottle helps.

woke up early-ish for me today struggling with pain in my hands a little but not too bad everywhere else. Planned to go for a coffee with a friend later on this afternoon will be first time I’ve done anything without a family member with me for quite a while so am a little nervous.

I need to start planning routine where I can into my days now I know there will be a while before I can return to work as my days are just blurring into one and not doing much and it’s getting me a little stir crazy. It seems like I’ve been resting a lot in the hopes that I feel well enough get back to work but the CFS clinic have said I need to view rest as pro active and not reactive which is what I tend to do at the minute.

Like all good diets 😂 I plan to start on Monday so if anyone has any advice around how they structure their day it would be greatly received!

Morning

That sounds rough @TeaAndStrumpets

My doctors appointment…. Still at square one. They say I will have to wait for an op, which I was already doing.

I went to see The Odyssey. Good in parts but episodic and long

It's a weird quirk of me in holiday mode but I've been up and showered and dressed and out to the shop for milk and now sat in the garden with a coffee and it's only 10am!

Good grief!

I am going to rest a while now. Must be good and not go crazy tidying up because everything has been neglected when I'm working.

@Dozymoo42 proactive not reactive are words to live by! I just forget that part.

@ValleyClouds What a treat to go to the cinema though. One reason I'm planning to get a bigger TV...everything looks very tame on my 32" screen!

@ValleyClouds I love a good cinema trip when I'm up to it with recliner seats especially....not sure about Odyssey with my almost 15 year old. I need to watch some trailers with him.

We're going to watch all the Spiderman films at home though starting tonight 😊 we have popcorn and pizza 🍕

@TeaAndStrumpets my telly is normal size but loads of people would think it too small. Saw my friend last weekend and her DH has bought a new HUGE one after their last one mysteriously broke! It's so big it would give me a headache because their room isn't wide enough to sit far enough back!

@MewithME I think there's some sort of distance guide online but it suggests sitting far closer than I could tolerate! I think about 40" screen would be my maximum, and not hung over the fireplace to give a crick in the neck.

My late brother always bought the latest and biggest and it was rather overwhelming. He liked underwater documentaries because he had been a keen diver and it was like being back in his happy place!

@TeaAndStrumpetsyes it is a treat because it’s SO expensive but I really wanted to see this one

@MewithME It’s very good but it’s so long. Big fan of the Spider-Man franchise here, hope to see new one in the cinema but unlikely - I tend not to go in school holidays because of poor behaviour etc

@TeaAndStrumpets my tv is also 32 inches. I think it also depends on the size of the room and what could comfortably fit where you want the tv placed

@ValleyClouds did you enjoy the cinema? I haven’t been to the cinema for years. I just watch whatever film catches my fancy on tv

Yeah @JewelleryCat I struggled a bit to find a comfortable position to sit in and stay in but the film was good and I am glad I went

Ohhh I've overdone it. I thought I'd be sociable for DSs sake but it is so difficult to look after your needs with other people isn't it?

I wanted to be home by 4pm so I could rest before the shopping was delivered but friends were late and then they didn't want to leave quite as early so I got home and the shopping arrived bang on time so now I am exhausted because I couldn't pace.

I think sometimes friendship is too hard to keep going with MEcfs. That sounds terrible doesn't it? I'm grateful for them but also find it v hard to see them.

@ValleyClouds I'm hoping we can see that and yes I know what you mean about poor behaviour. Feels like a gamble these days.

sometimes friendship is too hard to keep going

I don’t have ME BUT I do have 3 different diagnoses and I’ve seen a lot of friends come and go who just don’t understand or can’t handle it. So I hear this hard

Evening all. Hope you can rest this evening @MewithME

I've had a friend visiting for the day - we've been friends for nearly 30 years and usually meet up a few times a year (she lives 4 hours away by train - we often meet in the middle) but I've not seen her since I've been ill, apart from one of those meeting in the middle trips in late November when I really wasn't feeling well but didn't know why. Anyway, she volunteered to come for a day to help me with packing up the house, and it's been really nice. Did some good catching up but we're also good at sitting in silence together. And we got some decent chunks of work done. I did have to flop after lunch, put a film on and we both dozed a bit as she'd had an early start to travel down. She's headed off home now and I'm flat out on the sofa.

Definitely an early night for me tonight - tomorrow morning involves transporting some stuff over and waiting in for my new bed to be delivered!

@MewithME oooh not good. Do what you can to take it easy.

@martha79 glad your friend could help.

Thanks @CoffeeBeansGalore and @martha79 and @ValleyClouds . I just had a nap!

Morning all.
Another night with only a few hours sleep. Haven't slept past 3am all week.
Getting fed up of this insomnia lark.

Hope you all have a nice relaxing Sunday.

Morning.. yawn. Sorry about the bad sleep @CoffeeBeansGalore. I was in bed by 7, think I slept about 11-5 which isn't too bad I suppose.

Morning! I've been awake since 5, got up in the end because I was quite cold. Summer duvet a bit thin. Last night I went to bed with a hot water bottle! Partly sore tum, partly I thought it was quite chilly. Wrapped in my dressing gown now, waiting for the Waitrose delivery.

Morning all. Have had terrible indigestion/acidic feeling stomach at night now for about a week. It's waking me up at 3.30am every day and I'm having to have a drink and glug gaviscon before I can get back to sleep, then I'm waking up early hungry. It's been a nightmare so I've just ordered myself some lansoprazole off the online pharmacy. I told dh who then was offended I didn't want to eat the chilli he made that gave even HIM heartburn!!
Bland diet for me the next week I think.
Digestive issues are a nightmare.
Mad neighbour was blaring nightclub music to the whole neighbourhood last night so I've put some more fat balls out (fave of the pigeons).
Off to a fossil museum with dh today! Can't wait!

@bedfrog you can have a little smile to yourself as the pigeons dive bomb those fat balls.
I wouldn't dare go to a fossil museum. They might try & keep me in 🤣
. . . I'll get my coat 😁

@bedfrog sorry you're suffering. Funnily enough I had a terrible sleep. I was totally exhausted last night so was dozing in the evening and then woke choking on acid. I couldn't get rid of the burning or taste for ages. So I was dozing propped up on a stack of pillows.

Fossil museum sounds good. We enjoyed the museum in Lyme Regis on holiday a few years ago. Was stacked with them! Keep meaning to visit the one nearer us. Typical we often don't do the ones near to us.

So far today I've put a wash on and decided it's time for a new machine. It's going mouldy and making a weird noise! So I think I will take the plunge this week.

I'm just pottering but DS looks bored already 🙈

When I think about my childhood ..my parents got off lightly on the entertainment front! I just cleared off to my friend's house most days!

Hope your stomach feels better soon @bedfrog

I've had a productive morning unpacking at the new place, but also slight chaos as the Argos lorry couldn't get up the street to deliver my bed! So had to reschedule that and it's now going to be a week on Monday as they're so busy.

Feel quite exhausted and wobbly now so having the afternoon in bed. I've got a waste collection booked tomorrow for a load of stuff so do need to get up later and sort things out for that.

Oh @martha79 what a pain, hopefully it will be there before you move in, is your sofa comfy enough to sleep on?

Sorry so many of you have had poor sleep lately, it really doesn't help matters on top of everything else.

I'm Feeling a lot better today after a few days with Fibro revenge, I don't know what I did to set it off this time, but it seems to have buggered off again.

Any way, I was rummaging around the top shelf of the larder today, looking for some ramekin dishes, and found a load of Christmas things I had deliberately hidden from myself a while ago and then forgotten about. So this afternoon I am mostly eating.....out of date Quality Street.

They're fine, but it seems a bit wrong to be eating them in the summer. I don't think they taste as good in the new style wrappers, which I know is stupid, but I miss the old style shiney festive ones.

I feel a bit sick now, so I'm hiding them again.

Ooh I've not had Quality Street for ages @danglethedingle

The sofa is another story - it won't quite fit up the stairs to the flat so I'm going to have to dismantle it to move it. And then get someone to help me put it back together. Once that's done, it is actually a sofa bed so can sleep on it.

I'm also waiting for a delivery date for my new mattress - will it come before or after the bed now? 🤣

I think at least one of those things should be sorted before I need them though 🤞

Sorry for everyone's bad tummies and poor sleep.

I fell asleep after lunch so feeling quite revived. I always think it will stop me sleeping later but at the moment I'm so weary I think I'll drop right off.

We are running out of cereal bowls and I've been browsing replacements online. Our everyday stuff is 20 years old but still turns up unused on ebay. I am very fickle though and keep seeing ones I prefer, so will probably end up totally non matching! The rest of the set is immaculate but I would love a change. We have got loads of teasets and dinner services from my late MIL but they all have gold on them. If it can't go in the dishwasher it's no good to me! Likewise silver cutlery.

I also do the thing of trying to get more of the same tableware on Ebay @TeaAndStrumpets but I caved recently and bought new side plates, I was down to 2 and they were 20 years old