What are you up to today if you have a chronic illness? Thread 5

[MewithME]

Here we are again. 😊

Link to last thread 🧵 https://www.mumsnet.com/talk/_chat/5458553-what-are-you-up-to-today-if-you-have-chronic-illness-thread-4

@MewithME I’m so sorry. I wish you had someone that could come in and just give you respite for a few weeks.

God don't I know it! It's sod's law. Maybe when your DS has calmed down he can help you with cushions etc...it's easier with a second pair of hands. I suppose he frightened himself, poor lad. Xx

Oh no @MewithME that sounds like such a stressful start to today that you really didn’t need. As long as it’s mostly mopped up, leave it for now and take a beat so you can just breathe for a bit and then work out what to do when you feel a bit calmer.
At the risk of being outing, one of my close family has a brain injury and doesn’t cope with any kind of stress, it’s utterly exhausting for those of us around them so although not the same situation I do feel your pain when you have to manage a meltdown whilst sorting out the issue and it then affects your own energy envelope.

Not the best nights sleep here as teen was out and heard her come in at silly o’clock as the dog went crazy! Luckily she’s not out that often so its not a regular occurrence but then Diddy dog woke up early and wanted to go out for some reason so that was me awake. I’m showered and dressed and not planning much. May attempt the bird watch thing later( perhaps from my window rather than sit out!) and we have the new episode of Astrid in Paris to watch which is probably as exciting as it will get around here today!

@TeaAndStrumpets hope your outing goes okay and we await news of the scrubber thingi!

@TodayIsatrickyone SO excited about Astrid in Paris! May save up the episodes to binge. Have you watched Mademoiselle Holmes? Stars the actress who plays Rafaelle. It's a hoot.

Hello all,
@MewithME I'm sorry about the sofa incident. Hard to deal with at the best of times, and if its not the best of times then just RAAAH. How old is your son?

I'm feeling slightly virusy this morning. I didn't sleep very well last night so I'm hoping it's just that. It's my birthday tomorrow. I'd rather not be ill for that.

Happy Birthday for romorrow @FuzzyPuffling. Hope you are feeling more chipper by then.

Hope you feel better for tomorrow @FuzzyPuffling

I’d forgotten about Astrid in Paris @TeaAndStrumpets until I saw an ad last night and got very excited! I’m not sure if I can wait to save them up tbough it’s a good plan.
Ive been learning French on Duolingo so be interesting to see if I can understand any more than last time. I’ll drive DH mad if I do saying ‘ Oh I understood that!’ all the way through. 😂

Sounds really stressful @MewithME hope it doesn't wipe you out too much.

DH keeps sneezing and blowing his nose today. He says he doesn't feel ill and if he is he doesn't know where he caught it from. This is despite him having been in several shops this week and the swimming pool three times. I'm fed up of him or the kids bringing constant germs in the house. I'd like one week where I'm not masking up and hiding or stressing my chemo is going to be cancelled if I catch it. I don't expect my family to hibernate or stop their leisure activities, I guess I don't know what I'm asking for. Possibly a week of not having health anxiety or fretting would be nice.

@Oioiqueen that sounds really hard. Are they good at hand hygiene and cleaning touch points around the house? I hope you avoid it if it is a bug

Pre emptive happy birthday to @FuzzyPuffling in case my brain fails me tomorrow (probably). Dose yourself up today with tumeric and ginger and zinc and vit c! And rest as much as poss. X

DS is 14, he'll be 15 this summer but the ASD means he's quite young for his age. He's generally adorable which makes up for a lot but god I am just exhausted. My friend's daughter can cook a roast at the same age! Mine can't get a glass of juice without major incident. It's probably my fault. I've probably just been so exhausted, I've not taught him enough or worked as hard on his independence.

I've got the fan on the cushion. Washing load 1 is on. Another 4 ikea bags full to do but as long as bloody school uniform and sofa cushion is done the rest can wait a bit. (So another X2 to go).

Hope you are enjoying my dullness 🤨😆🙈

I've resigned myself to not going out for lunch. Cooking again. Sick and tired of it. (Moan moan moan... sorry).

We all wash hands when we come in from outside first thing and I do try and go and clean touch points when I remember to. There will be a time when I inevitably get something and things change. However I think I need to psychologically get to the first scan and know if the treatment is going the right way before I'll start to relax a little. I'm still waiting on counselling so I'm hoping whatever this mind block is i'll be able to shift it once I start to untangle everything. Its frustrating as I had a touch of health anxiety about reoccurance before my secondary diagnosis and I felt that I was finally turning a corner with it. I'm starting with a PT next weekend in a group of others with a secondary diagnosis funded by our local charity. Exercise was my release and way of coping which I had to stop when I was ill however I just can't get going with it again despite now physically being much better than I was. So he is going to work through that mental anguish slowly so I can return to something that works.

Hello, can I join? I have autism, CFS, joint pain and probably some other stuff I can’t remember at this time. I’ve been reading and you seem a friendly and supportive community 🙂

What prompted me to join is a couple of you talking about Astrid and I love Astrid: Murder in Paris. I do watch Patience as well but I don’t think she’s a patch on Astrid even though the actress herself is autistic and the British version has just copied the storylines but for the last couple of episodes, I think they’ve done original ones which I do like more instead of copies

Anyway, sorry this is long and I hope I’m welcome

Of course you're welcome @JewelleryCat and hope you will forgive my moaning about my tribulations with my autistic DS today. He is wonderful in so many ways...I'm just worn out.

I didn't get on with Patience. I thought it was a bit too contrived. Haven't tried Astriid. But I have a ton of other stuff to watch before I add it to the list.

Joint pain is part of CFS and peri and lots of overlapping conditions. Mine is bad just now.

Afternoon all, hope you're ok @MewithMEand everyone else.
Had a difficult week just wanting to sleep constantly. On full flexi at work but signing in later and later. Landlord and next door issues ongoing still.
Ran out of HRT, I've been in a fog since before Christmas and didn't realise my prescription was waiting at the pharmacy. Managed to collect it yesterday and restart.
Pretty down and depressed, weather doesn't help, rain, everything damp and cold. We had put wood chip on the garden to help with mud.
No suitable houses but DH wants to wait it out here as we have a lot on our side and to move will affect MIL.
Got some energy today so am going to pack away the puppy stuff and tidy the utility room. DH doing a bit outside. Had 3 tiny sips of DH port last night and head is banging.
Left the house twice since Christmas, DH has been doing the shopping so freezer is full of odd things he likes. Did a quick Sainsbury's run yesterday so at least have biscuits now!
Love to all.

@MewithME my joint pain is mostly in my hip and knees at the moment. I’ve been recommended voltarol so im going to try that, have you used it? I’ve used other gel but it only works for a short time and I find mine is worse is colder weather. Don’t apologise, we all need to rant sometimes

Astrid is French with English subtitles so you need to really be in the mood to read the subtitles otherwise you do miss things

@stressybessy I hope your HRT helps a bit. It must feel so unsettling house hunting but maybe something perfect will just pop up.

@JewelleryCat a warm welcome! We gave up on Prudence after a few episodes. I think a lot was made in reviews etc of the fact that the actress has autism - as if this somehow gave the show extra points. In fact the casting of Astrid in Paris and the script were just so much better. I liked the developing friendship of Astrid and Raphaelle.

I agree about subtitles...it's just that little bit of extra effort on a tired day but there is some fabulous stuff available. When/if our TV gets replaced we plan on goung a bit bigger just for this reason.

@MewithME I agree about the maturity with ASD. My grandson floundered at secondary school for this reason, but he is slowly catching up with his peers. It just takes longer sometimes. He used to have epic meltdowns but now age 16 he is more likely to go to his room for a grump and come out apologetic.

In my experience, 14/15 is the height of nobby behaviour in boys, ND or not. I hope things are settling down chez ME.

And welcome to @JewelleryCat .

He doesn't mean to be, he's just a dufus and clumsy and doesn't think things through.

I swear to god... today can get in the bin. We popped out to have coffee and cake and a breath of air after all, even though I was knackere. DS managed to "have an accident" while we were in the café. Cue endless faff, and instructions on how to deal with it shouted through the toilet door and pants in the bin and home for a shower....... just....omg I'm done. I'm in bed with a gin and tonic. Going to watch Idris and cheer myself up.

Ridiculous day..I've told DS I am going to lock him in his room tomorrow 😂(He did laugh and knows I am joking).

Sofa cushion still drying and the cover. House like a laundry.

@FuzzyPuffling thanks for the welcome 🙂

@TeaAndStrumpets I did have high hopes for patience because it’s set in a beautiful city and I was intrigued to see how someone with autism could pull off an autistic character and whether I could relate but for me, I relate to Astrid more even though the actress doesn’t have autism. I need a Raphaelle in my life!

Oh, none of them mean to be, it's just that the brain hasn't formed meaningful and timely connections with the mouth, arms, legs, voice box etc yet! 😀

😂👍🏻

Welcome @JewelleryCat nice to have another Astrid fan join us. DH & I watched after it was recommended and really enjoyed it. We then watched one episode of Patience thinking it might be easier without the subtitles but I totally agree it’s not the same. I like the whole French vibe of it too.

Sorry it’s been a difficult week @Stressybetty and I hope restarting HRT helps. I may have said but I stopped it for a couple of months thinking I was perhaps post menopause and no longer needed it but really struggled with sleep and anxiety so re started the patches and things seem to have better mood/ sleep wise at least.