What are you up to today if you have chronic illness? Thread 3

[MewithME]

Link to last thread.

https://www.mumsnet.com/talk/_chat/5406424-what-are-you-up-to-today-if-you-have-chronic-illness-part-2

Can't believe we filled another one.

Is great that your husband is supportive.

Definitely try and find a private consultant. I have just found out today that they are going to add another medication to help hypotension so it should help my health even more. I wish I hadn't suffered for so long though. I'm considering going private because even though I'm in the system the ability to consult with the cardiologist is awful.

I have just managed three minutes on the exercise bike and a shower. I feel like I’ve climbed Everest.

I am now back on the sofa in my giant pink dressing gown. It haz a zip don’t you know.

I’m going to look up the self heating blanket.

Hope everyone's ok. Been freezing here today too. I love my heated blanket & my under bed heated blanket. I have also bought some heated hand warmers which I used for the first time today.

Been to the doctors this morning with DD. Then I have been home and god knows what I have actually done but the time has flown by. Looks of little adminy things and browsing. Pizza and chips for tea.

Then plan to relax. I did a Suzy bolt yoga nidra class on YouTube yesterday and it was so relaxing. Slept awfully but I don't think the two are related. I think I'm going through a big grief over my marriage. My theory is I was too unwell and stressed with other life things before. It's so so draining.

Welcome to the thread!! I hope you managed okay getting back out to the pharmacy.

I LOVE yoga nidra on YouTube, it's the best, I don't find the time often enough to do them, should really make it more of a priority.

Morning all, today is my 14th wedding anniversary. DH is working today, we've got steaks in the fridge for a nice dinner tonight and then afterwards we're going bowling with our son. I tend to just throw the light children's balls and always lose lol.

Quite a bit of pain this morning but enjoying catching up on the thread, a good distraction.

Went in for the monitoring ECG and blood tests yesterday, managed not to sleep through the appt this time! Made a silly mistake with the weighing machine in the waiting room, kept my backpack on then was flummoxed why my weight was so high- had to go and get another token from the receptionist and explain which was a bit embarrassing. Find the doctors a bit stressful.

Had a text later from the GP to say the ECH was normal which I appreciated as I know how busy they are to be telling people normal results, anyway on the antidepressants I have been on fluoxetine on and off since the 1990s and think it helps a bit. Also on HRT

Did ask them about duloxetine in the past (think that is one of the ones helps with pain) but they were not keen for me to swap for some reason. Another one which can help with pain is low dose amitryptilline but I stopped that as well can't remember why. Seem to have tried so many things.

Not much on here today except might try and make a butternut squash curry to use up a squash I have, might be warming as well in these cold times.

Hope you all have a good day with some time to rest if needed.

Happy Anniversary @Realisation14 Hope you have a lovely day!

Still resting today, managed to get dressed in stages. I am really getting stiff with my legs up on the sofa. It is rock hard though. It had feather seat cushions originally which need constant plumping so we had them replaced with a medium density foam. For me it is bum numbing. Everyone else is fine with it, I'm just the Princess and the Pea!

Hope you all have a nice day and are sitting comfortably!

Welcome @WWLD and happy anniversary @Realisation14

I have had second round of blood tests today - GP says if there's nothing there to explain my symptoms she will refer me to the Fatigue Clinic.

The sensible thing would have been to come home afterwards but instead I decided to run a couple of errands. Silly mistake. However. I did get a brilliant looking jigsaw from a charity shop which I am really looking forward to starting. Rock and roll hey.

Happy Anniversary @Realisation14

I’ve been listening to the calm Christmas podcast. It’s lovely. It is really nice and divided into different segments. I fell asleep when I tried to listen to it before. I’m sure someone here recommended it?

I love a jigsaw puzzle. Got to be 1000 pieces for me.

Happy anniversary @Realisation14. That sounds like a lovely day.

@FurForksSake the christmas podcast sounds good. I will have a look.

My day has included a short dog walk, frustrating call with the cardiologist secretary. Not her fault but so annoyed that the cardiologist can't advise on medication tweaks after prescribing it. Looks like private may be the way forward.

Trip to beauty salon for 48 patch test. Booked myself in for eyebrows on Thursday for the first time in 6 years. Then a small Tesco stop for food. Prepped dinner this afternoon and done some online orders.

Writing that makes me realise how much better I am doing. I am feeling the internal vibrations today and leg pain so need to slow down but it's been a good day paced day with rest included.

Sorry for those struggling 💐

Currently sat in doctor's waiting room, next to a coughing child, all to get my X ray and ECG results because nobody bothers to tell you otherwise.

(Still feeling crappy and grumpy... If there's another five of us we'd make some good dwarves!

Crappy
Grumpy
Achey
Fluey
Dozey
....? )

Aww @@MewithME I hope you aren’t in there long! Do they have the nhs app where you are?

im tired and sore and my brain isn’t firing properly. I’m feeling a bit sad and crap. Tomorrow I’m going to make a list of little jobs I can do and be at least a tiny bit productive. I’ve been surgically attached to my phone and the tv and it’s not good for me.

@FurForksSake make sure they are VERY little! Prioritise your test.

But yes, even tiny jobs are satisfying when you can tick them off and feel that you've achieved something.

I've worked on DD's cassock a bit, but now I need her for a fitting. It weighs a ton!

Can I be Arsey? I never am, so it would be a lovely change!

@VikingNorthUtsire thank you, I’m cuddled up under my new very expensive (£100!!) wool blanket and long will that continue. Definitely thinking tiny, I’ve got some Ocado star reviews to write and some meal planning for Christmas. I’m also going to write a list of the deckuttering I need to do.

That must be some excellent fabric! Still, it will keep the cold out. Good old mum.

Yes this is true! I am doing tiny bits of Christmas shopping, and DGS3 is 12 in December. What I find tiring is the mental gymnastics to make sure I give fairly equal birthday cash/presents to 12 year old as he is keenly aware of what 16 year old DGS2 received last month. Then there's Christmas....luckily oldest boy is now 23 so likes a bank transfer!
Colditz was a big hit last Christmas.

Home from work and absolutely knackered 😴

Watch tells me I'm not sleeping well - combination of DD being a noisy night owl and eating too much cake ie. sugar I think. DD is now back at uni and I've told DH to finish the cake 🤞 to a better night tonight.

Anyway I'm home now with a cuppa. Had to walk up some stairs today when I accidentally went down a fire exit and couldn't get out any other way! Still getting lost after all this time - putting it down to fatigue/brain fog.

DH is cooking so a quiet and relaxing evening here.

@FurForksSake if I had to write a list of decluttering to be done it would take me months! We have lived here 40 years and have a LOT of stuff. We did a bit prior to having our house ready for sale, but it's not very minimalist. Also, we have a storage unit, so a lot has gone there to be thought about 'later'. DH will try to save every little thing.

Sleepy and Foggy spring to mind but I’m loving Tea’s suggestion of Arsey too 😊

Bloody dreadful day here following a sleepless night worrying about teen DD who has had some health issues lately and heard Dr wants to refer her to hospital for more rests which sent me spiralling with anxiety yesterday.
I feel like everything is hitting us at once just now and my health has not been stable since the summer. I think I’m getting there, then something else sets me back. PIP reduced my rate despite no changes and I don’t have the energy to fight it. So all feeling too much today. Got out of bed for an hour at lunchtime and heart rate rocketed and I felt dreadful so back upstairs where I’ve stayed.

Nah, it's polyester. But made for a Rugby no 8.

She's just let me know she's been given a second one, equally badly fitting!!

My dwarf name -Snarky.