If you can’t work due to health problems but don’t get PIP what do you do??

[Endometriosisproblems]

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

Do you have savings?
Do you own your house?
I don't understand how benefits work, but I can't work, but own property I don't think I'm entitled to any help.
Bought my own mobility scooter, mobility aids, reconfigured how I live etc
Citizens advice? Social worker? Womens charity? Dr? Job center?

Im not sure the government should be paying you to stay out of work while you prioritise another baby. There are really no jobs you can do in the mean time but yet your well enough to look after another baby?

You may be able to get UC, but it sounds like you might live with a partner, in which case how much UC you'd be entitled to would depend on their earnings and your household savings. The gov.uk website has links to benefit calculators you can use to check what your UC entitlement would be. Run two calculations - one for if you're found fit for work and one for if you are found to have limited capacity for work.

If no UC entitlement, depending on your ni record you may be able to get new style ESA.

However, lcw or new style ESA would generally require you to be significantly affected for the majority of the time. One thing you can find with gynae issues is that people are seriously unwell about a quarter of the time - too much to be able to hold a job, but too little to be able to get out of work sickness benefits

Owning the house you live in doesn't stop you being able to claim benefits.

I agree x10. Why are you planning children if you’re reliant on benefits for the foreseeable? It’s a poor decision. Please for the planned childs sake. Don’t bring another child into a life of poverty. What about if child wants to go to uni in 18 years? How will you fund this? PIP? Or for your child to also rely on the government (tax payers)?

I would say re look at the PIP application - which is a flawed process to be fair but if you're so impaired you can't work then you can re apply if it has already been declined.

But - if you're well enough to get pregnant and then mother a child, I'm struggling as to how you can then validate any application you make for support. Will the pregnancy get rid of the gynae problems?

Ffs people do you not realise how big a decision it is to have a hysterectomy!!!
Do you have any idea what it's like being utterly crippled by your own reproductive system? Do you have any idea what it's like to have to give up on having kids because your body is failing you.
Good this forum makes me angry sometimes

@notanothernamechange24 my post and questions aren't being snarky. It's a genuine question re the pregnancy and the condition.

It's absolutely horrendous being a mum and being seriously unwell. It is terrifying bringing a life into the world and being unwell long term or permanently. Genuine questions for consideration to find out more.

I agree with this, sorry. It’s a personal choice you are entitled to make but I don’t think the taxpayer should be paying for it.

LCWRA and PIP are not linked, so you can have one without the other.

I am on LCWRA and don't get PIP.

I would be having a hysterectomy after if was lucky enough to get pregnant again. I’ve given myself another 12-18 months of trying and if it doesn’t happen I’ll probably have to just have a hysterectomy done then but I’m only in my thirties so I’m not ready yet. Once my uterus is gone I won’t have any issues so it’s a short term problem.

PIP isn't to do with ability to work. If you can't work you get a fit note and get ESA or the UC equivalent and after about 6m they stop needing fit notes. But they might expect you to look for eg part time or non manual.work.

When I've been told to see what I'm "entitled" to it's nothing. Maybe I'm checking wrongly?

I understand the desperate maternal urge to have another child and I'm really sorry for your health struggles. I really do feel for you.

However I can't help agreeing with other posters.

If you're not well enough to work, will you be well enough manage another pregnancy and then parenting another child?

Of course many parents become ill after already having kids but that's different.

Please bear in mind the children too. I know someone who's too unwell to work (she'd already had children). Her eldest in particular does a lot of caring for her and it does impact on the child's life. It's tough. They love their mum and want to help and it's not her fault she's unwell. But, and I don't mean to upset you, it's not a situation my friend would've chosen for her children if she'd had the choice.

Yes my partner works full time but I can’t manage to anymore as have been really unwell for quite a while, I just wasn’t sure how it all works. I’d had a look at benefits calculators but then saw that they are apparently unreliable

Really? You think that?
You can have a kid and not be capable of work.

When I was pregnant with #1 I was actually really well as obviously no periods ! If I’m lucky enough to have a second then it will be the same and I would have a hysterectomy at some point afterwards. I have severe endometriosis, adenomyosis, I’ve have surgery for the endo and recently had fibroids and polyps removed . I also severely anaemic and had to have an iron infusion recently

You are best just getting an appointment at the Job Centre, and getting the ball rolling with any benefits you might be entitled to

I don’t want to not work. I’m just in a temporary situation where the nhs can only offer the majority of treatments if my family is complete which it isn’t

Why don’t you claim pip if your condition is debilitating?