If you can’t work due to health problems but don’t get PIP what do you do??

[Endometriosisproblems]

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

I'd definitely try Citizens' Advice for help working out whether you're entitled to any benefits while you're too ill to work. Various factors are taken into account, such as any partner/spouse living with you, savings, N.I. contributions, then of course you'd need medical evidence and it's best to get help from Citizens' Advice or another organisation filling in application forms as they can be complicated. P.I.P. is hard to get, but you might be entitled to other, temporary, sickness benefits.

Ah okay, apologies for prying but thank you for answering. Good luck to you, you have my sympathies, it must be really tough to live with. X

Not in the job I was doing up till recently , potentially another job but I doubt anyone would want to employ someone on such a short term but it would be a possibility

@Davros someone else has helped with details.
I've very obviously not gone into detail, regarding savings, property, marital status, possible partners income etc

I’ve reported the baddist. Quite possible one of the nastiest posters I’ve come across on MN for a long time.

whatever your personal opinion is there is no need for vile personal attacks. Horrible

If you have worked 6 months out of the last 2 years you can apply for contribution based ESA.

You will need to provide sick note. You will get £90/ week in the work related group unless you are assessed to be unable to work, and put in the support group (unable to work) then will get £130/week.

The £90 group pays for 1 year but the £130 group will continue as long as you are too ill to work.

You don't need to do any of that for PIP and you don't need to buy your own mobility scooter or pay for other adaptations, regardless of your personal situation

When I've looked at PIP I've got nowhere, so I bought the things I needed

Hi OP

Could I suggest you spend time studying your condition and the solutions available to you more than the benefits, the benefits will be a tricky one to navigate but fingers crossed you can get something.

Only reason I'm posting is that some of your endometriosis cures are NHS bullshit that GPs are telling you - a hysterectomy will not cure your endometriosis, but yes it will stop the bleeding and adenomyosis.

But so will the mini pill or the coil.

Please don't let them inject you with zoledex or any other drug to put you into menopause, to stop bleeding the side effect are bloody horrendous, and they should not be using this as a "cure" even short term there are risks with bone density issues. Read more before agreement to anything like this.

The gold standard for you endometriosis surgery is wide excision surgery, read about this vs ablation. Essentially ablation is like laser treatment and wide excision is getting the endometriosis out at its root. You really don't want ablation, you'll be in and out of surgery's for years, you can wait and insist on a wide excision specialist.

So minor things you can do to help in the short term are taking antihistamines, low inflammatory diet and exercise. (Just walking helps) I do understand the pain and how crippling this disease is.

Good luck with future babies! It is possible at your age I did manage to conceive my 2nd even with extensive endometriosis.

@greenrollneck even before surgery? My consultant (before he went off sick) has advised temporary menopause to shrink(?) the endometriosis before they do the excision

I'm under a specialist accredited endometriosis centre and it'll be with an endometriosis surgeon and a colorectal one

me too.

Try the turn2us benefits calculator. That's very good. If you need help with personal care and/or mobility problems, you may well be entitled to claim PIP. Take a look at the eligibility criteria.

Regarding your endometriosis, I know someone who has this condition and she was advised to have a second child as it does seem to keep the symptoms at bay for a couple of years. She had her second child in July so fingers crossed she will be fine for a while. Prior to this, she would often be in terrible pain.

I'd say let your partner support you. I don't think it's fair to expect taxpayers to support someone who has rejected the obvious medical solution to her issues.

In all this if so unwell but with hopefully a cure how do you cope with your current child? Some people have permanent disabilities and all the treatment, love and positivity in the world cannot help them.Pain is unbelievably draining, I have been there though other physical chronic pain. Consider the childhood of the child you have right now.

Totally agree. I have the same condition as OP, and have worked through it. No baby, no benefits.
@Endometriosisproblems not everyone can get what they want, it's not a "right".

Some people here are completely incapable of empathy! My take on this post is that, if the OP's gynae issues were resolved, which can only be done when she has completed her family, she would be able to work??

Why on earth should people have to give up their dream of a child because of ill health? Is it too much to ask to be able to have TWO children, really??? OP isn't trying for a 14th or something!

Some of you should hang your heads in shame, you really should!

@Endometriosisproblems ignore the limited in understanding and do what you need to do. Speak to CAB re benefits and get pregnant as soon as you can, so you can complete your little family, have the hysterectomy and get on with your life. I wish you the best x

There’s a lot of clueless people on this thread. OP is in a short term position of not being able to work, she isn’t a long term “scrounger” off the taxpayer. When she has a hysterectomy and has recovered from it the bleeding and anaemia will stop and she’ll be able to work again.

The same thing happened to my friend, who had endo just about everywhere you can have it, it was beyond grim. She had her ovaries removed too, so she went into immediate menopause and was given HRT. It sorted her out really well, she was perfectly able to look after her baby and has worked perfectly fine at a job ever since.

I think it’s possible to have a hysterectomy at the same time as giving birth if you have a caesarean, which is probably the most likely option for you.

Good luck with having another baby OP. Sorry I’m no help on the benefits side, just wanted to offer support with the other stuff.)

That's very sad but it's not the fault of the OP or anyone like her.

OP please don’t let anyone minimise this or shame you for wanting to make choices about your family. I would be that those people have had that freedom themselves.

You are totally ignoring the nature of the condition! Your posts are just awful. Do you have no compassion?!

Not everyone experiences this condition in the same way. You should consider yourself fortunate that you have been able to work.

@adriftinadenofvipers true but i don't really have a choice. My pain is excruciating and the bleeding is bad but I don't have anyone else so all the bills fall onto me
It's either work or lose my home so I prioritise work over everything else. Some days that's finishing work, eating a piece of toast and going to bed and spending the weekends sleeping because of the fatigue

I'm so sorry you are experiencing that and I hope your gynae has a plan in place to help you x

I am fairly certain that OP is equally glad that you’re not her daughter.
Your comments are vile.

@adriftinadenofvipers no. There is no consultant for me currently as he is off sick
If OP waits it could be a long time - in my area it's a year wait for a first appointment, I believe wales can be 7 years