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If you can’t work due to health problems but don’t get PIP what do you do??

184 replies

Endometriosisproblems · 18/09/2024 19:52

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

OP posts:
sleepyscientist · 19/09/2024 18:41

@izimbra no one should be making decisions that means they have to rely on the state to pay for them which for me yes includes being too poor to have kids. The state also shouldn't be paying out of surgery is an option, in the OP case aneamia could even be treat with a transfusion.

Unfortunately complications in DS's birth means that although technically I could have another it would be insane to try. We made peace with that quite quickly and DH had the relevant surgery. It's not about maternal urge it's just reality we don't have to have kids it's a nice thing to do not a must.

Endometriosisproblems · 19/09/2024 19:15

sleepyscientist · 19/09/2024 18:41

@izimbra no one should be making decisions that means they have to rely on the state to pay for them which for me yes includes being too poor to have kids. The state also shouldn't be paying out of surgery is an option, in the OP case aneamia could even be treat with a transfusion.

Unfortunately complications in DS's birth means that although technically I could have another it would be insane to try. We made peace with that quite quickly and DH had the relevant surgery. It's not about maternal urge it's just reality we don't have to have kids it's a nice thing to do not a must.

I have been treated with iron infusions, transfusions aren’t indicated for my anaemia - my consultant said the infusion is more effective .

OP posts:
Velvetandgold · 19/09/2024 21:04

If you rent OP it could be that your income is low enough to entitle you to some help with housing costs element of UC. UC isn't just one thing, it's an amalgamation of various benefits that used to be claimed separately. Council tax reduction isn't part of UC, although it is means tested so I've no idea if you qualify. If you're not sure about something, apply. They'll turn it down if you're not entitled to it. The main thing if you have a claim is to keep them updated of changes, so you don't accidentally commit fraud and end up in the shit.
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IDK if you have any, but for means tested benefits savings below £6k don't matter. Between £6-16k there's a sliding scale of reduced benefits and it stops over £16k.
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You can't set money aside for eg house deposit or DC future university fees etc and have it discounted. Money is money, whatever it's intended purpose is irrelevant to DWP.
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Nor can you waste money to get yourself below the limit, that's deprivation of assets and you'd be treated by DWP as if you still had the assets. But if there's anything you need that wouldn't count as wasting money eg your bed is broken, your car is on its last legs, you've got toothache you're ignoring etc then there's no point saving the money in case something more urgent/important comes up, if by doing so it's preventing you claiming means tested benefits.

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Miley1967 · 19/09/2024 21:14

Your best bet is probably to look at claiming new style ESA assuming you have enough NI contributions from working over the past 2-3 years. You could claim this irrespective of partners income. A benefit calculator would tell you whether ESA would work out best or UC, or it is possible to claim both but ESA would be deducted in full from UC.

izimbra · 19/09/2024 21:37

sleepyscientist · 19/09/2024 18:41

@izimbra no one should be making decisions that means they have to rely on the state to pay for them which for me yes includes being too poor to have kids. The state also shouldn't be paying out of surgery is an option, in the OP case aneamia could even be treat with a transfusion.

Unfortunately complications in DS's birth means that although technically I could have another it would be insane to try. We made peace with that quite quickly and DH had the relevant surgery. It's not about maternal urge it's just reality we don't have to have kids it's a nice thing to do not a must.

The absolute arrogance and narcissism of your post.

Don't tell another poster how they're supposed to feel about having or not having more children.

It's not your call.

You're entitled to your own feelings about your own body, your own hopes, your own disappointments and your own experiences, and the OP is entitled to hers.

prinesplace · 19/09/2024 21:47

Endometriosisproblems · 18/09/2024 19:52

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

A hysterectomy won't necessarily solve your endometriosis problems. So what then?

I have endometriosis, and it's been quite debilitating at times, it actually caused incontinence. I had no idea you could be signed off work for it (a got a few days post one laparoscopy).

izimbra · 19/09/2024 21:51

sleepyscientist · 19/09/2024 18:41

@izimbra no one should be making decisions that means they have to rely on the state to pay for them which for me yes includes being too poor to have kids. The state also shouldn't be paying out of surgery is an option, in the OP case aneamia could even be treat with a transfusion.

Unfortunately complications in DS's birth means that although technically I could have another it would be insane to try. We made peace with that quite quickly and DH had the relevant surgery. It's not about maternal urge it's just reality we don't have to have kids it's a nice thing to do not a must.

There are vast numbers of people living in London and the South East reliant on UC and 'tax payers money' to pay for their childcare and their children's primary and secondary education, despite working full time. That's because many people are in low paid work - work which is essential to the proper functioning of society and the economy - and housing and childcare are disproportionately expensive.

You genuinely think these people simply shouldn't have children?

How have we come to this? A society which is historically wealthy but one where normal life choices like having a family are now seen as an unnecessary private indulgence. Neoliberalism is the shittest ideology.

endoendoendo · 20/09/2024 00:31

Please also be aware to anyone thinking of prostap injections that it could take time for your periods to start again if you are thinking of haven a child after the injections, my periods didn't come back for 7 months and I was told it's possible they may never com back, no one told me this prior to having the injections

JLT24 · 20/09/2024 07:16

izimbra · 19/09/2024 21:51

There are vast numbers of people living in London and the South East reliant on UC and 'tax payers money' to pay for their childcare and their children's primary and secondary education, despite working full time. That's because many people are in low paid work - work which is essential to the proper functioning of society and the economy - and housing and childcare are disproportionately expensive.

You genuinely think these people simply shouldn't have children?

How have we come to this? A society which is historically wealthy but one where normal life choices like having a family are now seen as an unnecessary private indulgence. Neoliberalism is the shittest ideology.

Totally agree.

Pretty sure there are millions of parents who rely on statutory maternity and paternity pay, funded childcare, tax free childcare and child benefit too, are they expected to forgo having children also because it would mean they are reliant on ‘tax payers money’ once they have children?

Going by the ideology of some of the posts in here that the OP shouldn’t claim benefits if she chooses to delay treatment in order to have a child then applying the same logic mother’s who don’t contribute tax during their maternity leave shouldn’t claim statutory maternity pay or child benefit and fathers shouldn’t claim paternity pay or child benefit. Despite them paying into the system before they chose to have a child and take leave. Why is it ok for them to take statutory pay whilst not contributing any taxes but it’s not ok for the OP to do the same whilst she is ACTUALLY ill during which time she may have a baby and undergo medical treatment. It seems there’s a wider issue with people claiming sickness benefits but other child/childcare related ones are perfectly fine to access 🤔 So you work when you’re able to and pay taxes but then when you need to access the very thing your taxes contributed towards you shouldn’t access them because then you’re ‘living off the tax payer’? The OP was a tax payer. She then became unwell. Saying she should lose the right to have another child because she got ill through no fault of her own? Jesus I sincerely hope they never find themselves in this predicament.

OP try and claim what you can. Try PIP, ESA and UC. Also look into marriage allowance. You have paid into the system and now you need to access it for a while, that’s perfectly ok. Wishing you well.

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