If you can’t work due to health problems but don’t get PIP what do you do??

[Endometriosisproblems]

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

Your wrong if you think a hysterectomy will magically solve everything it creates an entirely new list of issues unfortunately unless your lucky

Thanks I just wasn’t sure . I don’t think I’d qualify for PIP anyway as although I’m affected daily the problem will be resolved one way or another either I’ll have another baby then have a hysterectomy afterwards or I won’t be able to get pregnant in which case I’ve set a limit of probably in 18 months to just give up trying and have a hysterectomy

If your partner works full time and earns over the AET you won't have any job commitments is the bottom line

My main problem is severe bleeding so it will help massively , currently I have a 26 day cycle - I bleed heavily for 12 days then spotting on and off the rest of my cycle and I’m so anaemic I can’t function . The pain is severe too most days I think when I finally do have a hysterectomy it will solve the major problems that are disrupting my life

Im sorry but I agree with everyone saying this and I say that FULLY knowing how rubbish it is. I had a baby and having that baby caused my health to SEVERELY decline to the point I could not work. At that point I needed benefits. I never wanted to have an only child, I was very very against it, but with poor health and needing financial support, I also felt it was incredibly wrong to have further children funded by benefits.

It is a lousy situation to be in and I never got to have any more children but I agree. If you health is too poor to work, I just dont think you need more children being bought into the mix. Poor health also impacts your children and I know this 20 years later, it has definitely impacted on my DS.

Yes it’s not like I’ve been unemployed before it’s just reached a point where it’s affecting my health so much that I can’t work at the moment . I’ve contributed through taxes in the past and I will again in the future . I’m just not able to now and I have set myself a time frame in which I’ll ttc and if not then I’ll have the surgery and then get back to work after . It’s a huge decision and the consultant made it clear it’s an option but due to age it has to be that I’m sure my family is complete

Seeing how this thread is going... I would ask for it to be deleted. Get an appointment with CAB.
Vipers on MN hate people on benefits. Look after your mental health and get advice elsewhere.

Well I will look into the AET and everything mentioned I don’t know if we will even qualify for anything I just thought I could get some help with it all here.

Well yes, my body failed me completely, with no children, let alone in the ability to have MORE, and I resent my taxes being used for people that reckon they can't work but should be funded to pop out babies.

The wait for surgery could be years, do you realise this?

Thankyou yes I’m going to look into the things mentioned . I’m a bit surprised by some of the responses! I thought posting in chat for some advice would be fine but obviously not !

What you're going through sounds so awful and painful that I think you need to prioritise your own health and not a potential pregnancy.

You've had one baby. Many people stop then. And that's fine.

If you get your health back you'll have a life again and be able to do more with your child. "Your health's your wealth" as the saying goes.

I'm sorry @Endometriosisproblems I don't want to upset you.

My friend's health problems are permanent, so maybe not relevant for you given your update.

I admit I don't know much about endometriosis but if it's only temporary ill health, than I understand better now.

You could be waiting for years. I don't have children but I know I may need a hysterectomy shortly

I have stage 4 endometriosis, adenomyosis, a 9cm endometrioma cyst on my ovary, immunocompromised, a condition which causes abscesses and a blood disorder. Work 40hrs a week and not entitled to PIP

My consultant has gone off sick until 2025 so I'm in limbo waiting for the MDT meeting before operation plans

It's if you own property you don't live in. Then it's counted as if it was cash in the bank. Which takes you over the £16k savings limit. If it's your home that you live in it doesn't count.
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Savings or assets of any kind can disqualify you if it's over the limit.
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If you're single it goes on just you.
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If you're in a relationship and live with your partner, it goes on both of you. So if DP works, they'd have to be on a low income themselves for you as a couple to get any UC. If DP has savings DWP says they're your savings too.
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Basically DWP doesn't discriminate due to marriage. For DWP it's whether or not you live together and this includes someone staying over, even if they maintain a separate address. If you're living together you're assumed to be pooling resources.
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It makes no difference whether you actually are pooling resources or not, if you're not an DP won't, all you can do is split up and live separately so you can claim UC as a single person.
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The amount DWP says you need to live on is very little, it makes no difference if your household can't currently live on so little, you're expected to do whatever it takes to reduce your outgoings so you can. The definition of "essential" can take on a whole new meaning for some.
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If you're married, your spouse will be forced to split savings/assets on divorce so you'll get your share then and can see whether you qualify for UC or not. This is why lots of people have to live together until they're divorced. DWP make an exception for domestic abuse relationships where there's a need to live separately prior to divorce.
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PIP isn't means tested. Just about everything else is.
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Council tax reduction has to be claimed separately to UC.
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Yes you can be too ill to work but not be disabled. You'll have an assessment by DWP to determine whether you're too ill to work at all (not just in your chosen job), it's not upto your GP. If you disagree with DWP decision it's worth appealing.
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Adaptations for disability come from social services via occupational therapy and if adaptations are needed (official criteria for this) you don't have to pay for them yourself.

@thebaddist that seems unnecessarily nasty! Saying her children will have a miserable life, how on earth could you know this or say this?

I think its one thing to advise but just being nasty for the sake of it is just not necessary at all, really awful when you are talking to someone really struggling with poor health.

If you can't support yourself through a period of unemployment/sickness, how can you afford/support another child/maternity leave/feed and clothe your existing family? Or are you planning on spending the first 4 or 5 years of your latest child's life on benefits too?

It’s awful isn’t it , if I’m honest I think it’s highly unlikely I’ll be able to get pregnant again but I want to at least try but the amount of bleeding is just so excessive that I think it’s really unlikely . I just thought I’d find out what I can do while I can’t work , I’m sure that my consultant would put me on the list if I got re referred so that if I don’t get pregnant in 12-18 Months at least I’m on the list

Ignore all these absolute freaks who are piling on and talk to the job centre who will be able to help you.

Your plan sounds sensible and I wish you good luck with it.

Did you not get PIP as problem is not long term? Or did you apply and get turned down as not enough points?

I would do a benefit check on entitlted2 website, whether you are entitled to any UC will probably depend on your partners income more than anything.

Could you maybe look for a temp/zero hours type job where you could work 2 weeks on, two weeks off?