If you can’t work due to health problems but don’t get PIP what do you do??

[Endometriosisproblems]

I don’t understand the UC system for this - if you don’t get PIP can you still get LCWRA?

I can’t work due to severe gynae issues and although I could get a GP letter and have seen a consultant/ had some surgeries I’m now discharged as all the other treatments are only suitable if my family is complete and it isn’t (plan is another baby if that’s even possible then hysterectomy). So basically I have to get re referred when ready for hysterectomy

Can my GP just keep issuing notes is that the only way ?

Yes thankyou for your help and advice

@thebaddist again more insults, more nasty comments with no basis. Nothing about the OPs posts say anything about their intelligence level.

I wont continue to reply to you, I imagine all your posts will be zapped in the morning anyway because its just not necessary. You clearly lack the ability to make a point without throwing ridiculous insults around. Several people have made a point without resulting to such nastiness, its a shame you fail to see how ridiculous you sound.

I seriously hope you learn to channel your anger into something productive.

Mumsnet - the place where other women tell you to get sterilised so you can work and not claim benefits. 🙄

Good grief this place has got hateful.

I don't think it's ethical to say disabled people shouldn't have children.

I never assume the sex or good faith of posters...

Where did i say get sterilised

I may not even be eligible I wasn’t sure I was just trying to find out, I’d seen elsewhere that the online calculators aren’t reliable and don’t take into account some circumstances.

In all honesty I see this as just a blip and I’m hoping that either way in the next 12-18 months I’ll know what I’m doing as I enjoy working and want to get back to work I just also want to complete my family if I can .

I’m concerned that you forgot the ?

😆

Please, please get second and even third opinions on treatment options before going straight to a hysterectomy which yes will stop the bleeding but won't necessarily stop the pain as the endo migtrates to the bowel etc. And a hysterectomy has its own set of side effects. An ablation or even a mirena would be worth trialling first to stop the bleeding with way less extreme side effects before going straight to a hysterectomy.

Ignore the nastiness and I would suggest you book an appointment with your local citizens advice. Their advisors can help you work out what, if anything you might be entitled to.

Sorry shall I use a finger space before I put it like this ?

I have endometriosis and am infertile. My biological babies never made it out of the womb.

My beautiful adopted son is 100% " my own ".

Language around these things matter. I'm also adopted.

Agree this is a key point - hysterectomy will guarantee no future children but may not provide the solution needed, especially for the pain.

That said, odds are that even if the OP went back now and said "yes" it would take longer than the expected TTC to get the surgery.

Sorry I didn’t mean to be offensive in any way at all, I have also suffered losses so understand. I should have said biological rather than own and I will try to be more careful with my language in future if I talk about subject again ❤️

Just throwing this out there - I have pcos, severe endo and adenomyosis. For me, it was game over as far as fertility was concerned, I was 30 without children. I had a coil fitted to stop the periods because I simply didn’t stop bleeding. Id flood daily for three weeks, feint, spend half an hour sat in the loo because I couldn’t walk back to bed without flooding a pad, get end stage labour pains because of what is affected by the extra tissue, a week of heavy bleeding and then back to flooding. It took six months after years and years of appalling periods to be diagnosed. I worked as I have a mortgage to pay, not playing the martyr there but explaining how I’m aware of how it can be.

I’m now 14 years down the line at 44, my only fix (and the fix that has been agreed was needed since diagnosis) is a hysterectomy and they won’t do it at my age because of potential future complications (menopause, osteoporosis, prolapses etc). So unless it becomes medically necessary (a growth gets too big etc), it’s not happening and I manage the pain and symptoms.

i really don’t think you’ll find it as easy as saying ‘right, hysterectomy now please’. I’m sure they are raising it as an option/need now, but the reality can be different.

The OP has explained all of this in detail. And she really shouldn't have been asked to justify or explain her private life to anyone.

They did mention ablation but said it anyone may not work and I’d probably end up needing a hysterectomy anyway which I can see makes sense I think .

They offered a progesterone medication I can’t remember the name of now but again it’s not suitable if ttc

Thankyou for all the helpful advice on here I do appreciate it

Benefit calculators are pretty good provided you're careful about how you answer the questions. Read them through properly, and read the help text if you're not sure.

Then you would be able to work surely whilst you were pregnant?

OP; is another pregnancy safe? I don’t mean that harshly, just genuinely curious of, with the issues you’re experiencing, carrying a baby full term will be safe?

You have done it wrong. The info is out there.

I recently had some fibroids removed they were the only thing I was told could cause a problem with a future pregnancy. With the issues I have it’s the getting pregnant that may be difficult

Gosh, I’m so sorry to hear what you’ve been through. And are still suffering.

I hope you find peace soon. X