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Milk allergy death- should the book be thrown at the staff involved?

1000 replies

mids2019 · 13/08/2024 19:07

....or if you are minimum wage staff member working in a stressed environment without English as a first language there should be leniency. Doctors are paid for life and death decisions but are Costa staff?

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7
Notmushroomforthis · 15/08/2024 22:56

Runninghappy · 15/08/2024 22:49

We have had this misunderstanding before. Someone gave my daughter ‘dairy free sorbet’ many years ago. I asked 5 times if it was dairy free. Then as she was sat there having a reaction after licking the spoon (she always licks it to make sure it doesn’t hurt her tongue) I asked twice more. Dairy free they said as the ambulance was being called. I emailed after and asked for the ingredients as I assumed she’d become allergic to something else. First ingredient was lactose free milk. I went mad as lactose free milk is not dairy free. One lick of the spoon was enough for her to need an epipen.

She has never eaten sorbet since and doesn’t trust when anyone tells her it is dairy free anymore.

the lack of awareness around allergies is rounding and the lack of understanding of how allergies affect a child and a family is terrible. We always take her food with her now, and often she lives on McDonald’s chips and pasta. What a stressful way to have to live.

I hate this. People assume sorbet is dairy free because it's sorbet, but the overwhelming majority have milk products in them. You can't even trust "free from" products because they may be free from gluten and milk but contain lupin and tree nuts for instance. If I had my way I'd create a colour code system (like the fats/salt/sugars we have on foods) that instantly gives a visual to what of the 14 allergens are in the product. It wouldn't take much. It would save so much scouring backs of packaging and ingredients hidden under flaps.

superoz · 15/08/2024 22:59

WindsurfingDreams · 15/08/2024 21:18

Exactly.

It's really frustrating that even people who work in the industry don't seem to know this.

It seems like so much more training is needed.

And education for the general public too. My children saying that feeling socially excluded is the absolute worst bit of food allergies. Even just little things like their teacher giving our sweets in class that they can't have (why oh why do teachers think this is ok?!)

It's weird how it is generally accepted that it wouldn't be ok to leave someone out who is physically disabled (as I am) but few people ever think of care about inclusion for people with allergies

So sorry your children have had to feel excluded, we have had years of the same thing. Although awareness has increased in the last few years, and for dc2 primary school is fantastic, all of the parents are really considerate at parties and even the PTA asks for allergies in advance of events so nobody misses out.
Secondary school is another thing though and even after 7 years dc1’s form tutor would still bring chocolates in at Christmas and not remember she was allergic to dairy.

WindsurfingDreams · 15/08/2024 23:01

Greally · 15/08/2024 22:47

@WindsurfingDreams

Right - and at the risk of repeating myself, the operations to deal with allergens in those chain restaurants are v different. I live with a gluten allergy person plus a lactose free person (neither life threatening). We eat in Wagamama and Zizzi frequently for that reason.

The difference - waiting staff specifically ask about allergies, only some staff take the order if you state an allergy, they sometimes bring out an ingredients list, food served has stickers on it etc. There are some operational interventions to try and safeguard. Not remotely the same in a free for all coffee shop.

I was earlier shot down ‘this is not a cross-contamination issue’. Didn’t say it was. I’m saying if you want better protection, there will need to be a complete shift in process at coffee shops, not better passive ‘training’. Also had complaints at the suggestion there needs to be separate stations ‘there’d have to be multiple!’. Yes there would.

I agree. And Costa can afford to implement those changes and should. For all the time that they don't, they are letting their staff down

Interested in this thread?

Then you might like threads about this subject:

WindsurfingDreams · 15/08/2024 23:03

superoz · 15/08/2024 22:59

So sorry your children have had to feel excluded, we have had years of the same thing. Although awareness has increased in the last few years, and for dc2 primary school is fantastic, all of the parents are really considerate at parties and even the PTA asks for allergies in advance of events so nobody misses out.
Secondary school is another thing though and even after 7 years dc1’s form tutor would still bring chocolates in at Christmas and not remember she was allergic to dairy.

Yes this is what happens to my son. I managed to shake sense into the primary school eventually but teachers seem to think it's fun to hand out sweets /chocolate at secondary. He's too polite to say so he just passes them on to his friends but it makes him feel shit. Oh and his tutor who insists they have cake in tutor every Friday. Why, it's like people just can't wrap their head round any reward that isn't food based. And yet we have an obesity crisis!

Bellsandthistle · 16/08/2024 00:10

Notmushroomforthis · 15/08/2024 20:24

Which you're not allowed to do.

Cafes and tearooms are not required to carry dairy-free milk or alternatives. Absolutely ridiculous to go to an establishment that primarily serves milk-based drinks when you have a severe milk allergy. I’m losing more sympathy the more of this thread I read, and I have a fatal nut allergy.

Bellsandthistle · 16/08/2024 00:12

WindsurfingDreams · 15/08/2024 23:03

Yes this is what happens to my son. I managed to shake sense into the primary school eventually but teachers seem to think it's fun to hand out sweets /chocolate at secondary. He's too polite to say so he just passes them on to his friends but it makes him feel shit. Oh and his tutor who insists they have cake in tutor every Friday. Why, it's like people just can't wrap their head round any reward that isn't food based. And yet we have an obesity crisis!

In my experience, children often bring in treats they can have and the teacher stores them for such occasions. Sure, it’s not ideal, but again, one has to take some ownership of the situation. By secondary school, the child should be well aware of what they can and cannot have and that the entire world doesn’t revolve around them.

WindsurfingDreams · 16/08/2024 00:30

Bellsandthistle · 16/08/2024 00:12

In my experience, children often bring in treats they can have and the teacher stores them for such occasions. Sure, it’s not ideal, but again, one has to take some ownership of the situation. By secondary school, the child should be well aware of what they can and cannot have and that the entire world doesn’t revolve around them.

There's still no need for sweets in school though. Not with an obesity problem and dental problems rising too.

Believe me, no child with allergies thinks the world revolves round them. But just as others have pointed out that hot chocolates from Costa aren't essential, nor is dishing out sweets in school. And schools have duties in terms of inclusion. It's a simple way teachers could easily change their practice that doesn't harm anyone and in fact almost certainly does some children (the ones who eat far too much sugar already) some good

T1Dmama · 16/08/2024 01:06

There was SO much more to this!
apparently the staff member told the mum that ALL the hot chocolate contained milk - mum said that’s fine… (A quick google confirms that non of their hot choc is dairy free!)…
Mum took the poor child to dentist and this is where the young girl took a sip and had a severe reaction…. Mum refused to let dentist staff who had Adrenalin in house and the training, to inject her daughter… instead taking the daughter to a chemist to ask for a basic antihistamine! The chemist staff searched for an epipen (adrenaline) but there was non in stock!
m mum wasn’t carrying an epi-pen for her daughter even though she was also allergic to eggs and nuts!
It’s tragic… lots of things that shouldn’t have happened did happen… ultimately it wasn’t the hot chocolate that killed her but the delay in treatment!

Cornflakericekrispie · 16/08/2024 02:03

Epipens don't always work even when administered in a timely fashion.
It's probable that adrenaline would have saved her at that point (the dentist) but it's not completely certain.

kkloo · 16/08/2024 02:12

T1Dmama · 16/08/2024 01:06

There was SO much more to this!
apparently the staff member told the mum that ALL the hot chocolate contained milk - mum said that’s fine… (A quick google confirms that non of their hot choc is dairy free!)…
Mum took the poor child to dentist and this is where the young girl took a sip and had a severe reaction…. Mum refused to let dentist staff who had Adrenalin in house and the training, to inject her daughter… instead taking the daughter to a chemist to ask for a basic antihistamine! The chemist staff searched for an epipen (adrenaline) but there was non in stock!
m mum wasn’t carrying an epi-pen for her daughter even though she was also allergic to eggs and nuts!
It’s tragic… lots of things that shouldn’t have happened did happen… ultimately it wasn’t the hot chocolate that killed her but the delay in treatment!

No the mother said she ordered soya milk
but
The staff member said she didn't mention soya milk but did say that she had a dairy allergy and that the jug needed to be washed out, and the staff member was confused and said something like you want me to wash the jug out? But hot chocolate contains milk.
And he said the mother said that that was fine.

At the dentist none of them realised that the reaction was as severe as it was, the dentist said they offered an epipen but the mother said they didn't!

The dentist also said that she was coughing up a white liquid but seemed fine and had even said she wanted to continue with the extraction that day. The dentist said there was no distress or panic at that point.

Then they headed to the pharmacist which is when it became severe. The pharamacist only had one epipen which was only half the dosage required for her weight. They looked for more but there was none.

A further tragic twist is that a customer in the pharmacist tried to resuscitate her and that customer had an epipen on her (because she had a nut allergy) but it seems that she didn't know that Hannah hadn't had a high enough dose because she didn't make the pharmacist aware that she had an epipen.

Sweetteaplease · 16/08/2024 03:05

kkloo · 16/08/2024 02:12

No the mother said she ordered soya milk
but
The staff member said she didn't mention soya milk but did say that she had a dairy allergy and that the jug needed to be washed out, and the staff member was confused and said something like you want me to wash the jug out? But hot chocolate contains milk.
And he said the mother said that that was fine.

At the dentist none of them realised that the reaction was as severe as it was, the dentist said they offered an epipen but the mother said they didn't!

The dentist also said that she was coughing up a white liquid but seemed fine and had even said she wanted to continue with the extraction that day. The dentist said there was no distress or panic at that point.

Then they headed to the pharmacist which is when it became severe. The pharamacist only had one epipen which was only half the dosage required for her weight. They looked for more but there was none.

A further tragic twist is that a customer in the pharmacist tried to resuscitate her and that customer had an epipen on her (because she had a nut allergy) but it seems that she didn't know that Hannah hadn't had a high enough dose because she didn't make the pharmacist aware that she had an epipen.

Well given there's so many discrepancies, it's not surprising something happened. Some of this stuff could be a misunderstanding, but some of it either happened or didn't. It's not just one point of failure from what it sounds like, still tragic for all involved

WhatNoRaisins · 16/08/2024 07:41

It sounds like very different things were heard and said. I do think when you're doing anything repetitive you sometimes keep going even with an odd sounding request like washing a jug and then putting milk back in it.

BlackPanther75 · 16/08/2024 09:54

you’re unlucky of you have a food allergy. It’s not the worse thing in the world. It’s not even in the top group of the worst things you can have. It makes modern life more complicated. But life deals us a hand and we have to do our best.

I’m so tired of people and agencies being blamed for human error and parental error like this.

The mum was the best informed person here and the primary career for her daughter and unfortunately made a number of poor decisions that lead to her daughters death

she took her daughter to a drive through fast food place that serves almost entirely milk based drinks.

She then didn’t make good decisions around treatment, for completely understandable reasons, but which cost her daughters life

it’s incredibly unfortunate and i don’t actually blame the mum as it sounds mostly very unlucky.

Cornflakericekrispie · 16/08/2024 10:13

PyongyangKipperbang · 14/08/2024 21:22

I had a lady in the pub a couple of months ago, ordered from the NGCI menu and I said that we couldnt guarantee non cross contamination. Not a problem, she would be fine she said.

Except it turned out that it was a MASSIVE problem. She ate her food that had been on the same pass as her friends gluten containing food and it was run after her friends naan bread had been plated. Turned out that floating particles landing on her food are enough to cause a severe reaction. Collapse, vomitting, ambulance, the works. I was really worried as her friend said she didnt carry an epi pen. She didnt tell us this could happen, and if she had I wouldnt have served her any food as the kitchen is so small I really couldnt be sure she would be safe, but she didnt. Her son went off on one threatening to sue until she agreed (this was all done later) that she had been warned, didnt tell us and ordered anyway.

It sounds like this lady possibly had a wheat allergy because of the dramatic collapse, but I find it worrying that you're providing a non-gluten containing menu but don't seem to realise that cross contamination is a huge issue for coeliacs too. Even a crumb, or a tiny bit of flour, can cause a cascade of reactions.

The fact you're saying things like
Turned out that floating particles landing on her food are enough to cause a severe reaction
I find worrying.

I mean...turned out? Shouldn't you have known this already if you're working in a food establishment with a ngci menu?

I accept that the kitchen is small and you had warned her, but sounds like there's an issue with staff training too.

That said, I'm sorry you were so worried and glad in all turned out okay.

Chrsytalchondalier · 16/08/2024 10:24

Cornflakericekrispie · 16/08/2024 10:13

It sounds like this lady possibly had a wheat allergy because of the dramatic collapse, but I find it worrying that you're providing a non-gluten containing menu but don't seem to realise that cross contamination is a huge issue for coeliacs too. Even a crumb, or a tiny bit of flour, can cause a cascade of reactions.

The fact you're saying things like
Turned out that floating particles landing on her food are enough to cause a severe reaction
I find worrying.

I mean...turned out? Shouldn't you have known this already if you're working in a food establishment with a ngci menu?

I accept that the kitchen is small and you had warned her, but sounds like there's an issue with staff training too.

That said, I'm sorry you were so worried and glad in all turned out okay.

This is interesting and I'm sure people don't know what this means as technically anyone can open a business. I was thinking perhaps places should be certified, but then it wouldn't have helped in this case anyway

PyongyangKipperbang · 16/08/2024 11:45

Cornflakericekrispie · 16/08/2024 10:13

It sounds like this lady possibly had a wheat allergy because of the dramatic collapse, but I find it worrying that you're providing a non-gluten containing menu but don't seem to realise that cross contamination is a huge issue for coeliacs too. Even a crumb, or a tiny bit of flour, can cause a cascade of reactions.

The fact you're saying things like
Turned out that floating particles landing on her food are enough to cause a severe reaction
I find worrying.

I mean...turned out? Shouldn't you have known this already if you're working in a food establishment with a ngci menu?

I accept that the kitchen is small and you had warned her, but sounds like there's an issue with staff training too.

That said, I'm sorry you were so worried and glad in all turned out okay.

I do know that but she didn't say she was allergic (we ask) or that she reacts like that. We can only go on the information given, and if we don't know, what are we supposed to do?

Feverblack · 16/08/2024 12:21

BlackPanther75 · 16/08/2024 09:54

you’re unlucky of you have a food allergy. It’s not the worse thing in the world. It’s not even in the top group of the worst things you can have. It makes modern life more complicated. But life deals us a hand and we have to do our best.

I’m so tired of people and agencies being blamed for human error and parental error like this.

The mum was the best informed person here and the primary career for her daughter and unfortunately made a number of poor decisions that lead to her daughters death

she took her daughter to a drive through fast food place that serves almost entirely milk based drinks.

She then didn’t make good decisions around treatment, for completely understandable reasons, but which cost her daughters life

it’s incredibly unfortunate and i don’t actually blame the mum as it sounds mostly very unlucky.

I don’t think anyone is saying that it is the worst thing in the world - except in this case. most allergy parents take on way more ‘responsibility’ than the average parent - if that even makes sense - a ridiculous statement really but just responding in kind.
I can never just let my child be collected to go home to another kids house without thinking/ leave them at a party/ choose any old summer camp - etc etc just a couple of day to day examples.
I don’t take my allergic DC to restaurants which serve a lot of their allergen - I personally have a very low risk threshold - this mum made a different choice that day but it was likely based off her prior experience and she was served the wrong milk regardless.
costa/ that server need not necessarily be blamed but there are definitely procedures they could have employed that would have averted this. Those should now be introduced.

BeachParty · 16/08/2024 12:42

Madmanc · 15/08/2024 10:06

This exactly!
Truly tragic & thoughts are with the family but I would have thought a coffee shop would be the last place you would go to with a severe milk allergy.

Every reaction can be different though.
They might have been fine before with just making sure the jug was washed out, and checking it had no milk in it.
Then got a fatal reaction the next time.
If they didn't carry an epipen that would make sense.
I've got allergies and have gone with some to just having a bit of an eczema flare up to the next time lips swelling up.

BeachParty · 16/08/2024 12:55

Runninghappy · 15/08/2024 08:32

This is how I feel. My daughter is now 16 and had a life threatening milk allergy. She’s needed her epipen twice. Once she was treated in an ambulance for over an hour before they were able to move her to hospital ( in France). I take all our food on holiday now. The only place she will eat out in the UK is pizza express as the pizza base is dairy free and she has ham and tomato on it. She doesn’t have vegan cheese as she knows if there’s no cheese, she knows they have it right.

she can’t go into coffee shops as the milk in the air makes her very unwell. It’s a very sad way to live and she struggles mentally with the stress. I don’t know how she will navigate the next few years doing to university or whatever her future brings and I don’t know how I will stop worrying about her. We’ve already had talks about not getting drunk so she’s always in control.

This is a terribly sad case that scares me so much. I wish everyone understood that milk allergies can be just as severe as everyone refers to nut allergies and nuts are much easier to avoid than milk.

she can’t go into coffee shops as the milk in the air makes her very unwell

This is really interesting, as I have had a milk allergy for years, not consumed any for over 20 years now.
Always been fine in coffee shops though, I'll have the iced tea if I go in with family.
Last time I was in though, I'd only been in about 5 minutes though and could feel my chest tightening.
Had to go outside, took me about half an hour to feel normal again as was getting short of breath.
I was stood near the steamers waiting for the order, wondered if that was it 😕

artsperson · 16/08/2024 14:12

superoz · 14/08/2024 18:27

It’s all very well people saying avoid these places if you have allergies but for some that would exclude a lot of places and not be a normal life.

Even at school that’s not possible. One lunchtime another child threw their cheese sandwich on my child’s dinner!
Also a few years ago a teacher gave my egg allergic child a cake with egg in and when my child questioned what was in it teacher insisted it was safe and said she had thrown the packaging away. Her response to me afterwards was “it doesn’t contain dairy”. Still fuming about that to this day.

People with allergies have to make an assessment about every food related scenario they are in about how risky something is. If you are travelling, away from home, the shops are closed - sometimes the options are limited.

OK. How about if you have a serious food allergy only use these places if there really is no option. Risking a death just because someone fancies a drink strikes me as crazy. Accidents can happen for a vast range of reasons. But if folk want to take unnecessary risks for no good reason then so be it!

DysonSphere · 16/08/2024 14:32

WindsurfingDreams · 15/08/2024 22:33

Quite. A quick Google suggests nearly 10% of children, and on average 6% of the population in the UK has a food allergy.

Assuming each of those would be eating out with one or two other family members then that's around 18-30% of people who will be picking food outlets that cater for allergies (or just avoiding them and eating at home)

That's a big chunk of business to miss out on

It's probably not a suprise that the chains that have a good reputation for catering for allergies are doing well - wagamama, nandos, Zizzis come to mind as being rated by various allergy sites.

Similarly I am a wheelchair user and when planning activities for all 6 of us this summer we have picked accessible places. That's 6 entry fees they get for catering for one wheelchair user.

These small businesses stand to close down if they are sued for one error in which someone with serious allergy dies anyway. You cannot expect a small business to absorb the risks of big stock floating businesses like Starbucks, Zizzi's etc. Nor can you expect them to spend £££ outfitting their shops to be completely cross contamination safe. It's unfair to compare small cafes to huge chains.

Even Costa being sued here, they can absorb the cost.

DysonSphere · 16/08/2024 14:42

Cornflakericekrispie · 15/08/2024 16:03

But you are prosecuted for dangerous or careless driving, especially if it results in someone's death.

Also, allergy sufferers do know there isn't 100% infallibility on the part of restaurant.! They know that only too well. They try to balance the risks to allow as normal a life as possible. That's what you need to do because you can't lock yourself away.

They are willing to sue for human error over a cup of coffee prepared in a place virtually awash with milk, where human error stand to happen eventually due to a host of factors.

A reasonable person would assess the risk of being inadvertently served something containing milk (or breathing in milk protein) and say ' a coffee isn't worth it' that's taking responsibility for yourself and your illness.

Among other things I'm asthmatic. There's things I'd love to do sometimes but I weigh it up and say no. Not worth triggering an attack. The times I've been stupid enough to dismiss it, I pay later. That's on me.

Cornflakericekrispie · 16/08/2024 15:38

I thought this was an inquest not a court case@DysonSphere?

As multiple allergy sufferers have said on here locking yourself away and never eating out isn't possible. We can all make judgements over whether this was a poor choice for a dairy allergy sufferer BUT either Costa say they serve dairy-free coffee or they don't.

The risk of cross- contamination was accepted by the mother. It was not your choice to make.

Costa were informed of the dairy allergy.

They still made a cup of hot chocolate with cow's milk.

They do bear responsibility for that.

BlackPanther75 · 16/08/2024 15:47

Cornflakericekrispie · 16/08/2024 15:38

I thought this was an inquest not a court case@DysonSphere?

As multiple allergy sufferers have said on here locking yourself away and never eating out isn't possible. We can all make judgements over whether this was a poor choice for a dairy allergy sufferer BUT either Costa say they serve dairy-free coffee or they don't.

The risk of cross- contamination was accepted by the mother. It was not your choice to make.

Costa were informed of the dairy allergy.

They still made a cup of hot chocolate with cow's milk.

They do bear responsibility for that.

Why is not eating out not an option? That's a bit of a funny thing to believe

you don’t have to eat in restaurants or Starbucks!

It’s life limiting yeah, but not life threatening.

or you can just accept a tiny risk of something bad happening

Jazzjazzyjulez · 16/08/2024 15:49

It seemed to be up for debate on here but the girl did have an epipen prescribed but did not have it with her. (From daily mail article today)

Not sure if it has been prescribed why she wouldn’t have accepted one from the dentist?

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