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DS9 ran away from home because...

171 replies

Eyerollforwardroll · 28/11/2022 12:31

... He doesn't want to be in his Xmas play.

Seems ridiculous I suppose but;
Ds likely has high functioning autism. I first raised concerns with the school 4 years ago but as he follows rules, is top of the class and generally masks his behaviour they were not supportive at the time.

In the last 2 years he's occasionally been overwhelmed at school and been unable to maintain the masking. I've spoken to GP and he's been referred to camhs where he's had a few initial assessments, but its a very very slow process. The school were still reluctant to get on board until two meltdowns where he pushed other children over and became extremely agitated when a lunchlady got as close to his face as possible to talk to him (in her words) .

He absolutely cannot cope with excessive noise, he particularly hates singing. For last years Xmas performance the school offered that he do the lighting/screens rather than be on the stage. This worked well for him as he was still a part of the production.
This year however they are insistent that he must physically take part, be that singing, dancing or narrating. He is adamant that he doesn't want to face an audience of 100 parents. He thinks his classmates will laugh at him if he wears his ear defenders.

Over the last week of performance rehearsals his behaviour has spiralled, he's run out of the school hall, he's argued with teachers, he was accidently kicked by another child and responded by intentionally kicking them back.

I'm not excusing any of his behaviour and we have had several losses of screen time and conversations about having to do things in life that you don't want to do etc.

On Friday after a further incident re the play, he took the house keys locked his sister and dad in the house and ran away. He's never done this before. Police were called, we obviously searched for him and thankfully a school mom spotted him around 20 minutes later running up and down a road sobbing. Police will be completing a contact report and potentially a safeguarding referral although they're happy he's low risk given the circumstances.

I've been in to the school this morning to suggest that the play in my opinion , with the reaction he is giving, isn't the hill we should choose to die on. I've asked if there's an alternative role he can take similar to last year or if he can undertake the same work that is set for children that do not take part in the play due to religious reasons. The headteacher and senco's initial response is that this would "reward his poor behaviour"

I am desperate to find some coping mechanisms for him, and for the school to understand that, yes his behaviours been unacceptable, but that I need them to work with me to find a reasonable adjustment. Given he's already in a spiral I do not want to reach the point where hes refusing to attend school. We have no formal diagnosis or ECHP in place.
What would you ask of the school reasonably? What else can I do to help him? He's quite clearly anxious and scared.
I've emailed his camhs contact to fill them in and request a update.

OP posts:
Feef83 · 28/11/2022 12:34

He has a diagnosis and the school is not supportive?

Feef83 · 28/11/2022 12:35

I first raised concerns with the school 4 years ago but as he follows rules, is top of the class and generally masks his behaviour they were not supportive at the time.

What did you raise concerns about?

HBZ287 · 28/11/2022 12:36

His headteacher and SENCO sound idiotic. Don’t make him do the play. Keep him off school if necessary.

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Feef83 · 28/11/2022 12:36

Wait wtf

you have no pursued a diagnosis.

you can’t say he has high functioning autism OP so authoritatively

You need to get the ball rolling asap. Then a lot more straightforward to get support

Afterfire · 28/11/2022 12:37

He needs an ehcp. You should apply for one. Don’t wait for the school to do it. They sound absolutely useless. Even if he doesn’t have a formal diagnosis (where are you with this? Are you in the system or pushing for one, cahms don’t usually diagnose, you need a referral to a paediatrician) the school shouldn’t be punishing a child with obvious sensory issues.

My son is 10 and attends a specialist asd school. He would be utterly traumatised at any event including singing and absolutely wouldn’t take part in any play etc. Thankfully it isn’t an issue at his school. In your situation I would actually keep my son off “sick” if school won’t bend. I feel really sorry for your son. He’s clearly very distressed.

DuchessDandelion · 28/11/2022 12:37

Bloody hell I'd go nuclear at the head for that response. He gets to do backstage or he doesn't do it at all.

Your poor son, I'm sorry he's having such a rough time :(

SkylightSkylight · 28/11/2022 12:38

bloody hell. WTF do they think they're doing??

id ask DS what he felt up to doing to contribute (props help/lighting/sound, but I imagine those posts are already filled by now) helping fold programs or whatever) and offer those up as options to the school.

if they insist he has to be on stage, I'd be telling them he won't be in school until it's over! (Or only mornings or whatever works around the time they're spending doing the nativity)

no way would I be be putting him through that. No fucking way.

Pictograph · 28/11/2022 12:38

Whether or not he has autism and/or a diagnosis, I don't think anyone should have to be in the school play if they don't want to be. I think I'd continue contacting the school, going on and on about how unhappy he is and how scared you are that he'll run away again, until they agree to let him sit out.

LadyGardenersQuestionTime · 28/11/2022 12:40

My DS is 32; undiagnosed autistic and unrecognised at school. Incidents like the above scarred his school years and ultimately had a detrimental effect on his education and academic achievements. He's OK now, but I feel endless guilt for what he went through as a result of my naivety.

DS quote at 13 "why should I watch them play football and pretend they are great? Nobody watches me do the maths olympiad".

Are the school aware his mental health crisis is a direct result of their insistence he partakes in a completely pointless event, and that you hold them fully responsible?

TheSausageKingofChicago · 28/11/2022 12:40

Sounds like he has needs that aren’t being supported. Rewarding bad behaviour? Sounds like the kid is in distress. This makes me really sad and angry. My DS has high functioning autism and really, really struggled with plays in primary until his brilliant year 5 teacher gave him the role of ‘CREW’.
ano costumes, just a black T-shirt and a directors chair, he helped with the lights, the music, and was a really good prompt for any kids who forgot their lines. He loved the responsibility of having a genuine job.

Goosegoose21 · 28/11/2022 12:41

Rightly or wrongly I'd be telling the school that he can't do they play for religious reasons. I can't believe the senco is handling it like this.

Eyerollforwardroll · 28/11/2022 12:41

Feef83 · 28/11/2022 12:34

He has a diagnosis and the school is not supportive?

He doesn't have a formal diagnosis sorry if I wasn't clear, he's awaiting a mutliagency meeting. He's had initial assessments with camhs, and a peadiatrician and dietician and their initial feedback is that he is "likely" high functioning. This is not a road I've been down before so please bare with me while I try to answer everyone's questions.

OP posts:
TheSausageKingofChicago · 28/11/2022 12:41

They need a serious look at how they address his needs too, because school based trauma is a real thing, and the poor kid’s self esteem will take a real knock from their approach.

Feef83 · 28/11/2022 12:42

Op

there sounds much more to this than high functioning autism. He is not functioning very well at all and seems to be becoming increasingly violent

Eyerollforwardroll · 28/11/2022 12:43

Feef83 · 28/11/2022 12:36

Wait wtf

you have no pursued a diagnosis.

you can’t say he has high functioning autism OP so authoritatively

You need to get the ball rolling asap. Then a lot more straightforward to get support

I do not say it authoritively.

In fact I say "likely" and that "we do not have a formal diagnosis"

OP posts:
AndyWarholsPiehole · 28/11/2022 12:44

I would keep him home that day and I wouldn't even hide it from the school.

Feef83 · 28/11/2022 12:46

Eyerollforwardroll · 28/11/2022 12:43

I do not say it authoritively.

In fact I say "likely" and that "we do not have a formal diagnosis"

Apologies. I didn’t see the “likely”

He’s met with camhs and a paediatrician and the outcome was likely autism?

GetOffTheRoof · 28/11/2022 12:46

The need for a diagnosis is a red herring here.

The child is so distressed by being forced to participate in a bloody school play that it's making forcing me him into really risky behaviour to get people to LISTEN TO HIM.

You, as his mum, need to tell the acho he's not to participate and that's the end of that. No lighting or backstage unless he actually wants to.

This is going to end up in him being seriously injured or ill. This is a massive scream for help, it's nothing to do with rewarding poor behaviour.

Pull him out the play. In writing.

Bronzeisthecolour · 28/11/2022 12:46

So make sure all communications with school are in emails. Ask them if he can do back stage or he won't be in play due to this incident and say the police report will follow. I'm sure they won't reply in email as they have in person. If they do take it to governors. Also check out the school me tal health policy if they have one.
Ultimately you need to go to gp and push for a diagnosis and ehcp.

Eyerollforwardroll · 28/11/2022 12:47

Feef83 · 28/11/2022 12:35

I first raised concerns with the school 4 years ago but as he follows rules, is top of the class and generally masks his behaviour they were not supportive at the time.

What did you raise concerns about?

My initial concerns were around some of the meltdowns he started having at home whilst in reception. I suppose I overlooked a lot of the behaviour at first which I'm really annoyed at myself for.

It was as though he held things together all day at school but let the frustration out at home.

Screaming shouting, pinching himself, sensory issues around which clothes he will wear (only soft, no jeans etc) not liking water/showers. Huge meltdowns at crowded places like softplay etc. All things I guess that were normal toddler behaviour but in hindsight carried on too long.

OP posts:
Feef83 · 28/11/2022 12:47

AndyWarholsPiehole · 28/11/2022 12:44

I would keep him home that day and I wouldn't even hide it from the school.

But then what?

yea deals with this one day but it would seem that things are deteriorating very quickly at the school and this school does not seem an appropriate setting for him at all

ofmybloodyself · 28/11/2022 12:48

Op, I think you need to split this into two problems for now. One is how to handle the issue around the school play and the other is his longer term needs. Yes, I know they are related but bear with me. I honestly do know what I'm talking about here. I am a primary school SENCo and I have a high functioning autistic 10 year old DC with an EHCP.

So... who exactly is involved in this multi-agency meeting? What is the school's role in this? Have they made any of the referrals or has it all come from you via the GP? Do they acknowledge that he has SEN? Is he on their SEN register? Sorry. That's a lot of questions but important to know in order to advise further.

mumonthehill · 28/11/2022 12:49

Ds never took part in school plays and always did lighting etc. I would have been furious at this reaction from the school and I really feel for your ds. In year 6 my ds did play the drums but it took that long for him to be able to do that. He has no SEN. Please just tell them he will not do it.

Openthegate · 28/11/2022 12:49

FGS @Feef83 Hmm

Autism or not, I would absolutely keep him off, OP. (I don’t intend to sound as if I disbelieve you - I do - just that even if a child wasn’t ND, I don’t see what there is to be gained in forcing them into a role that is causing so much stress and unhappiness.)

Invisimamma · 28/11/2022 12:51

If someone's job was making this unwell and stressed they would be signed off sick. Why do teachers think is it okay to treat children like this? Diagnosis or not, it's causing him distress and they have the power to make that better.

Keep going OP advocate for your son and let him know that you're there and will help him with this.

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