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Original poster

Secondary Cancer confirmed I dont know what to

293 replies

EachandEveryone · 11/11/2022 16:53

Im numb. I went to the haemotolgist with a lump in my groin 5cm. He really thought it was lymphoma and was direct that it would be cancer. The biopsy was sent off a week ago. And hes just rang its mestatic. Its like a dream. I feel fine. Thats it for me isnt it? Im only 55 where could it be from?

OP posts:
Original poster
EachandEveryone · 18/02/2023 12:14

Im ok thanks. Just about to start round two on Monday. I think Im in denial in someways. It feels like its not happening to me. I feel so well. I cant think about the future. I just hope the chemo is working.

OP posts:
Mrsherdwick · 18/02/2023 16:10

Good luck with your treatment 💐

porridgeisbae · 12/05/2023 10:08

Hi @EachandEveryone , how's everything going?

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Original poster
EachandEveryone · 12/05/2023 10:19

Hi there everyone. It’s going well but it’s very tiring. I’m not sleeping on a night so well. Vibe had seven months of chemo weekly with one week off. My oncologist is pleased that it is going down but he is now saying it will be controlled in the beginning I thought he said cured. My sister said they wouldn’t be allowed to say that. I have two more cycles to go. I’ve an appointment today to talk about radiotherapy. I don’t know what that entails but I will find out later. It still feels like it’s not my life. The last scan showed it was still nowhere else except there is a small nodule on my breast 5mm and he’s not worried about it. I had the mama gram just before that showed nothing so I don’t know what to think about that.

I will try and update after my appointment. Thank you for not forgetting me x

OP posts:
IMustDoMoreExercise · 12/05/2023 10:39

Thank you updating @EachandEveryone

I am thinking of you. x

adriftabroad · 12/05/2023 11:04

I have been thinking about you. Thankyouf or the update x Flowers

Weenurse · 12/05/2023 12:22

Keep us updated, good luck with your appointment 💐

Original poster
EachandEveryone · 12/05/2023 13:12

I got emotional I didn’t realise it was going to be a sit down appointment with scans etc. he said he can offer me ten sessions of radiotherapy and that I can have a mild one or a full on blast which will cause side affects like bowel incontinence,cystitis and a massive swollen leg. Oh god it’s up to me which one I go for. He said Chemo is working well and if it carries on shrinking he will talk to the surgeons if they can operate I won’t need any radiotherapy. I wouldn’t look at the scan. Christ, I can’t see myself going back to work this year😕

OP posts:
porridgeisbae · 12/05/2023 13:20

I would go for the hardcore blast OP. Yes it might cause issues but will probably only have temporary things like a dry mouth or whatever. Before consultants start any treatment with risks, they have to tell patients the rarest but worst case scenario, but that's not what's likely to happen at all.

And who knows, agree to it but you mightn't need to have it.

I can’t see myself going back to work this year

That's no time in the great scheme of things, and much better than the potential alternative if you don't get all the treatment you can.

Beach11 · 12/05/2023 16:22

@EachandEveryone been thinking of you. Take each day at a time. 💕💐

Weenurse · 12/05/2023 22:59

Only toucan decide which way to go with your treatment.
Good luck with your decision.
Is there a cancer support nurse you can talk to?

velvetglow · 16/08/2023 17:22

How are you doing these days OP? Treatment finished?

Original poster
EachandEveryone · 16/08/2023 18:56

Well funny you should ask. I had the results of my PET scan today and although the chemo worked really well at the halfway back sadly at the end of six months the lymph node has started growing again and there’s a small uptake on my liver (which was there at the beginning) So my Oncologist is now steaming ahead with applying for immunotherapy on compassionate grounds. This is the treatment he wanted in the first place. I hope he is successful. I have SCC p16 positive which does respond to treatment so that is the good thing I just hope it can be treated. I was also due to start radiotherapy I’m not sure if that’s going ahead now that it’s grown again, I hope so. You put such a lot of trust into them don’t you? I feel so bloody well.

Im having an MRI on my liver on Monday and I hope it’s nothing too concerning, he said he needs to make sure and that I shouldn’t worry.

I’ve been crying all afternoon but I know I have to pick myself up now and think of happy things x

OP posts:
Beach11 · 16/08/2023 21:05

Fingers crossed the immunotherapy gets approved. Shame you didn't receive it initially.

It's not a bad thing to have a cry when needed. x

Original poster
EachandEveryone · 16/08/2023 22:07

I think its quite hard to get as you need confirmation of the cancer thats why he was hoping my cancer was from the skin. God knows where it is it can only be from my vagina, backside skin or throat its just beyond me that scans cant pick it up.

OP posts:
porridgeisbae · 16/08/2023 23:32

@EachandEveryone Sorry to hear you're still in the wars. Sad xx Praying for you to get the all clear ASAP. Please keep us updated.

EliflurtleTripanInfinite · 17/08/2023 05:39

I hope your specialist can get you the immunotherapy. I'm sorry you're going through this still. All the best for some better results soon.

adriftabroad · 17/08/2023 09:10

Sending you much love. I am so sorry to hear this x

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