Thanks for the birthday wishes. ZZ Yes that sounds very like my DD thankfully she appears to be calming, she did reply to an e-mail I sent her yesterday asking for her NI number for new EHIC cards I need to order and at least ranting stage is over. I think she has learnt that ranting at me on my chemo day when I am on steriods I will not be my usual kind, patient and a bit of a doormat self with her. Its hard for her at the moment too, just can't wait for gcses and this chemo to be over. It will still be a bit rubbish for me after as radio to follow and I think its 6 months recovery time but this is the worst stage. Just hoping permanent damage will be minimal but they don't know atm, but are keeping on and just need to go in if starting losing eyesight, neuropathy and eye are just been monitored. May go to dentist for teeth mid chemo as lots of dental pain / numbness, quite scared for future dental bills and damage though at least cosmetic dentistry is amazing these days, sadly so is the cost and want my own teeth ideally. But the not taking anti-sickness has gone really well, no nausea, no sickness, no constant chest pain, no indigestion, constipation has gone so that ones an improvement, will just have the one tablet they give you with chemo now. So its just that anti histamines which I think they have changed or at least I wasn't zombiefied by it this time, the Pac chemo and the steriods.
My eye socket pain is finally easing today, eye that side watering a lot but can see OK, they think its the Pac but now I wonder about the steriod as it was my last one yesterday lunch and now pain has lessened a lot. I need the steriod though. Need to check if they gave me one on Monday with chemo as that is when it started.
Am trying to sort out schools for DS, one of the two got back to my personal call and said no contact from LA at all, 2 months now and he is so distressed and getting worse by the week and found out yesterday current school have issued an instruction to all staff not to ever speak to him when he is not in lessons. Great so he is distressed and no one helps him or supervises him by a 60mph road whilst very depressed and no kids help either not that is should be them. At least its Easter from this Friday.
Covid is really rife here at the moment though at least if your relatives have it now hopefully will be OK in May, it normally seems a few month gap. We have only had it once but mainly been in hiding and also handgel as DD says is the 5th member of our family. They said here the boosters are most effective for 10 weeks but not sure how often given here, I am still in normal category but should be in CEV with chemo but had third just 2 weeks pre chemo so its fine and am isolating anyway apart from hospital. Though its through the roof in hospitals but I just gel everything and nurses are masked but going down like flies. I would love to get away for a night at Easter if we can though, still want to see those puffins though its a 5 hour boat / island trip which I should not really be doing and also weather is dicey at Easter. But DH is feeling guilty about my birthday and Mother's Day and wants us to do something if we can though he is amazing normally and it so much for him too. Lucky to have him. At least no meds now until Monday, yay.