Wed had bone scan, quick only a few minutes and open and not too bad though had to go alone as no parking again. Thursday was bloods for chemo and oncologist. She wants to do 8 more chemos weekly and to try first this Monday with cannula again then if difficult go to picc. She said can do blood clot tablets rather than blood clot injections if get blood clot and says about 10% go on those.
Beyond depressing what is happening for poor DS with schools and SN, basically there are not enough school places in his year and no school wants another SN child as they have to pay £6k out of their non-existent budget but its just heartbreaking when every school in the county says they won't help. LA also won't help, just general staff training is all he is eligible for and a free school all of which say can't meet needs. CAHMS after 4 years waiting said he is too severe and just sent him e-mail links to try and cure his own mutism and autism. Spoke to GP and she says they are "shit everywhere and unfit for purpose but only option there is" Had meeting with current school Head, meeting next week with other mainstream who are opposing him going but LA says will force and the third school who say 20% chance of place in Sept but he has to pass tests and cannot say until Sept.
DD getting ready for GCSEs and said that if Mr Floof arrives Thurs night rather than Sat she will do so much better so that has been brought forward. I called children's services in desperation for DS, no idea if they can help or I just created a whole level of new stress for myself but they may come round house and so we did a bit more clearing of things. Plumber coming to fit new sink on Wednesday. So chemo Mon, IPSEA, mainstream2 and special collection out on Tues and children's services say if can help, Wed plumber, visit Red Balloon, counselling assessment, Thurs counselling and mr Floof. And have Head from current school and LA complaints meeting. Hoping can stay awake for those. Then DDs GCSEs start on 16 May.
DD was worried DS was not eating enough so she got a big Tiramisu and gave him some and was very proud of herself. Then she went for a second portion herself and saw it had all gone and she said it was a massive one and DS ate half of it and she was
DS. 