All aboard the Seafour tour bus #2

[Seafour]

A new thread for us

Old thread in HDU with respiratory failure and terrified

Thanks Nancy, my temperature is down but still not back to normal, luckily the dsc haven't been staying here they are "caring for" their disabled mother who needs round the clock care at the moment, the last time I had surgery she sadly had a relapse and got much worse! It must be so confusing for them but that doesn't excuse the behaviour and it has cast a dark shadow over our Christmas.

My brother came today but we cancelled the dgc because they were running very late and I simply can't spend hours out of bed. So I have dgc to look forward to tomorrow.

Time for. The pity party to stop I think, I don't want the negative actions of selfish people spoiling our lovely beautiful bus. It's fine for any dh's to come aboard, the more people who get exposed to our special place the better as far as I'm concerned.

I'm still hating all the bowel stuff but getting it out of the way first thing in the morning helps a lot. I'm getting much stronger and things like changing position is getting easier. District nurse is coming tomorrow and hopefully my physio on Friday so that I can get on with the business of getting better.

The latest disaster to befall me is that the live in carer who is due to be starting tomorrow has buggered off to the USA for Christmas and New Year so we are back to square one, I am slightly annoyed that the care company were hassling me on Christmas Eve to sign the terms and conditions, including notice periods and cancellation fees. It was minutes after I emailed them the forms that they phoned to say that they wouldn't be able to supply someone to start on the 27th.

Getting stronger is good, very good - and anything becoming easier must be positive.

As much as I cannot and will not excuse your dsc - they are adults and responsible for their behaviour - their mother must be thoroughly screwing them up (they probably all need a good dose of therapy!).

The care company seem to have engaged in a bit of sharp practice...did you contract with them from the 27th? A long look at the t&c's may be in order there because the timing is suspicious to say the least!

A belated Happy Christmas to all the Buslings and @Seafour especially glad you made it home for Christmas despite your DSC's bad behaviour. Glad one of them shows you the consideration you deserve. I would have been on the bus over the last couple of days but have been run ragged hosting for 5 days and finally waved my guests off tonight so I've had a chance to catch up with the thread. Fingers crossed that your temp and bp continue to go the right way. I've got warm mince pies and brandy cream or brandy butter for anyone who can squeeze them down.

Seafour has a temperature of 38.6 waiting for the gp to visit.

Good morning all.

Anyone for a turkey sandwich? I think the 10 people tesco felt our turkey would feed must eat rather more than our family.In a rare moment of organisation I did at least manage to cook several meals from the contents of the freezer over the last couple of weeks to make space for the leftovers. I do love a soup made with turkey stock.

Went out for a quick run with DS this morning (got to find a way to burn of some of his endless energy). We left just as the sun was coming up so we were treated to some amazing colours in the sky as it made it's way above the trees. A chilly morning but not as frosty and damp as it's been here recently.

Oh seafour - I hope your ok x

At least the gp is actually coming to see you (and you got Christmas at home)! Sending best wishes and get healing thoughts...you want NY at home as well

A very belated Merry Xmas to you all!!

Crownandheelshigh I have a total social media blackout so I don’t envelope myself in sadnes!!!! Due to family fallouts, divorces and ridiculousness the girls and I spent it on our own, emotionally challenging to say the least and most definitely must not be repeated next year!!!

Seafour🤬🤬🤬 your dsc frustrate the life out of me!!! You’re quite possibly the most selfless person I have ever met and yet they have the audacity to treat you like that in your own home, coupled with what you’ve been through this past year! Disgraceful!!!

Let's hope it's a GP with some sense to listen to what is required!

Hope you're ok @Seafour am thinking of you x

I hope the doctor brought good news, and good meds. We need you well.

How are you now seafour. I am thinking about you and hoping you haven’t needed to go in again.

I've just come on and saw your update seafour I'm so sorry you've had another temperature spike, my hope is that you've been silent today because you've had some great analgesics and the right antibiotics.

When you let us know where you are and how you are I'll turn this bus around and we'll be wherever you are.

Disclaimer I can barely reverse a VW Golf so the bus might be a stretch for me, if anyone else is better at driving and less of a wuss then please feel free to take the controls

Nancy we can surely turn the bus manually. There are enough of us to just lift it if all else fails!

I can drive most things...

I'm also restocking the baked goods in case we have to leave our current base!

That's a relief Andro, I knew someone could drive it. I'm bringing some of the unopened Christmas biscuits, chocolates and other goodies.

You made me laugh 2018 for some reason it reminds me of you're only supposed to blow the bloody doors off.

Sorry for going silent, I have felt like absolute rubbish all day. It turned out to be the same yellow bellied doctor on duty today so they sent the prescribing nurse out to see me (a first according to the nurse). She knew none of my medical history and in my opinion was totally under qualified to interpret what she was hearing in my chest. She said it sounded perfectly normal, then I explained that I had a paralysed diaphragm, she didn't know that I had spinal cord injuries or that I'd had a massive spinal surgery and been discharged from a HDU.
Following her visit I received two phone calls from receptionists at the surgery asking questions about instructions in my discharge letter. I'm supposed to be telling the f**ing doctor what to do whilst running a fever and feeling increasingly unwell, I despair I really do.
Anyway my wound is leaking so I asked the nurse to take a swab, suggested a blood test and I'm hoping it's a virus, although a wound that's been perfectly dry and is now oozing would point towards a wound infection.

I don't think it's my chest, which is a relief but I've been wrong before.

Thank you all for your concern.

They. Sent. A. Prescribing. Nurse! To a patient who is critically ill at the best of times? One who was unaware of your history?

Did I actually read that correctly?

Would it be worth calling the HDU for some advice? I'm livid on your behalf Seafour

Oh my. Not sure which would have been worse - the prescribing nurse or the yellow bellied doctor. I second calling HDU and asking their opinion. It's sounding more like the wound, but either way they shouldn't be dicking you about like this.

How are you this morning?

I have to venture away from the bus for a second day for work. It is pants. On the plus side, I have christmas pudding and brandy cream for breakfast, would anyone else like some?

Oh Seafour. I can't believe they sent out someone with no idea of your history. I hope whatever the temperature is caused by is treated correctly and promptly.

Yes you did read it correctly, the yellow bellied doctor sent a prescribing nurse. She's too cowardly to come herself because when I was taking legal action against her she lied in her statement, she attempted to paint a picture of me as an attention grabbing over dramatic housewife.

"When I arrived at Seafour's large detached house, I was shown to her bedroom where Seafour was clothed and fully made up and reclining on her sleigh bed"

Yes we live in a large house, we had nine children to house, I wasn't wearing make up, never did at home, I hadn't been dressed for four days and yes we have a sleigh bed, it was the first piece of furniture we bought together.

That part of her statement enraged me, my legal team had advised me to drop the case against her but I was so angry I pursued it anyway and as soon as I disclosed a particular piece of evidence she settled out of court.

Nothing would please me more than to have her visit me at home now, I don't think I'd be able to resist making a comment
If after all these years she was back in the same bedroom where I'm in a hospital bed next to our beautiful sleigh bed.

I'm constantly in touch with my home hdu ward and surgical hdu who discharged me, personally I think this is either a wound infection or a virus. I'm almost 100% certain it's not my chest so I'm not panicking. The antibiotics haven't brought my temperature down so I'm going with virus.

I feel much the same today, still have a temperature, still feel unwell but a bit better than yesterday. Mostly I just feel lonely and miserable. But the bus helps, it's become my safe place to go to.

Seafour I'm hoping this is viral and not wound trouble. Have they given you different antibiotics? And how is your temperature now?

Wtf your financial position is irrelevant in regards to the state of your health, that smacks of jealousy on the part of the GP. Ooooh she's a bag.

I'm sorry you feel lonely but you aren't alone. We're here, on the bus today I've brought along our unopened Christmas chocolates and biscuits, some expensive skin care and some aromatherapy oils.

DH found a vinyl copy of a rare Stones album, can I play that? It's from when they were still in their bluesy stage.

So somebody cannot possibly have a nice home AND be ill? Stupid cow.

Nancy I think the point she was trying to make was that I'd demanded a home visit from a go but I was well enough to get dressed and put make up on, but it was a lie and that I will never forgive. This is a person who I'd spent years standing at the school fetes with, we had dc in the same year. We had lots of mutual friends, socialised together and she lived almost opposite my house. I had protected her identity because of our children, but she was prepared to lie in order to protect herself.

I was advised to drop the case against her because the part of the damage done to me that could be attributed to her negligence was insignificant compared to the amount of money the NHS trust, who had admitted liability were responsible for.

If her statement had been truthful I may have felt differently, it was the lying about how ill I was that day that made my blood boil. That's why I pursued the case against her. I spent the money on diamonds.

Well I'm toileted, washed, hair brushed, clean pyjamas on and I feel better a bit more human.

Sorry sea I didn't catch that inference but I get it now.