All aboard the Seafour tour bus #2

[Seafour]

A new thread for us

Old thread in HDU with respiratory failure and terrified

Thanks seafour and bexcee he'd had bowel which was already in his liver when he was diagnosed 2 yrs ago...he had an 8 hr op including liver resection and 6 months worth of chemo to buy him some time. Unfortunately by April it appeared again in his liver and then his brain , and by then he'd decided he didn't want any more treatment.
We had a family party in May, which was last time I saw him ( we live 400 miles away) and had a great afternoon full of laughter and champagne ...I've got some great photos of that day and my dcs were able to say goodbye to their uncle
Fortunately he was in a lovely hospice when he died, very peacefully listening to some blues music ( he'd been buying CDs even when in hospice!
We've got the funeral next Friday, which means an 8 hr drive....ironically the crem is undergoing a refit, so there's some kind of temporary marquee affair in the car park....he'd have laughed at that!
I think the wake is going to be in his favourite pub again with lots of blues music - he played harmonica
I've got a bowel cancer screening kit waiting to send off, which I'll be doing in New Year

I'm so sorry you lost your brother Stopyourhavering. Cancer is shit. The family party sounds so nice. I hope the funeral is as healing as it can be.

Applesin sending you all my hope for your little pip. As a x3 miscarriage sufferer I know how overwhelming each pregnancy is. I was lucky enough to get my second baby, after 2 consecutive losses. He's 5 months old now. Wishing that you you get yours

Blankets and mulled wine for JoeElliotsMullet and JustanotherCHRISTMAS.

Now it's marking time for me. I'm marking a bit outside my area so each submission is taking an epic 2 hours! Shit! Only 50 more to go. I've got multiple alarms set to help me pick up speed....!

I hope your pain is eased now Seafour and you're sleeping well. Fingers crossed you get a better day today and take the next step towards going home.

Hi there, hope you are pain free Seafour. I've had some good news my sugar levels are normal as is my cholesterol, so I'm perfect according to my Doctor. I have a love hate relationship with him, but he's beginning to believe you can reverse type 2 diabetes and be enthusiastic. This is the third year running that I've had normal levels.

Still got presents to wrap but made a good start yesterday.

Take care everyone.

So sorry to hear about your brother Stop. The temporary marquee sounds cold though, make sure you layer up.

Oh my goodness, I found you again! Hope you're pain's being managed @SeaFour and you've got a view of this lovely blue sky today.
Hopping back on the bus after finishing up work, there's a lot going on at home though and it's tough. I'm sorry hear so many of us are going through hard or frightening times. I'm going to make a cozy nest in the quiet corner for a while. Open to all, I have biscuits and

Big hugs to everyone, especially havering applesin and seafour.

Can we have some positive parts of people's days please? I'll kick off - DH bought a new car and I got to drive it today. I feel like I'm king of the road!

I've woken in a shit ton of pain again and feel utterly wretched I'm hoping that this is a blip that's been caused by yesterday's standing X-ray which was so so hard, the shower had left me exhausted and I was just about to go on the ventilator and the porters came for me. I had to sit on the edge of the bed so that DH and the nurse could put my spinal brace on and then leg splints, I transferred to my electric chair, drove it to the X-ray room, then was able to raise the chair and tilt it so that I could step (my version of) straight onto the raised X-ray platform. Then it was off with the brace, 5mins of X-rays which was really hard and then everything in reverse and back to the ward.

My brother stayed until 8:00pm which was lovely, he carries so much guilt about never being "allowed to visit" or just not knowing about previous surgeries (mum never told him) he wasn't allowed a mobile phone, and I feel guilty about not rescuing him so all very emotional.

Anyway I've had loads of docs, prodding and poking and this is my chance to have a wash.

Put the Christmas music on, lots of carols please, love you all loads

Seafour hope you're getting lots of good drugs now.

I have handed in my assignment 3000 words. It was difficult cos I didn't study hard enough for it! Must do better next time .

I walked DDog. He's not been well recently and refusing to walk but we managed to do 1.5 miles round a local nature reserve so that was good and the sun was shining

Oh blast - I'm so sorry you're getting pain again, but hopefully (IYSWIM!!) it's just down to the activity yesterday and will soon settle down again

Lovely that you got to spend lots of time with your brother though

The pain is under control, morphine, pethidine a sleep and now I'm off to irrigate my bowels Yippee!!!!!

Jingle bells
Seafour Smells
The Doctors ran away
Oh what fun the nurses had on the bowel irrigation sleigh

Dashing through the ward
With irrigation pipes
Don't forget the pail
Oh god who's got the wipes?

Only bring the best
Round Seafour's bed today
And shout from us upon the bus
Just make sure she's okay

Such a lot to catch up on - I was doing my stint at the rescue kennels this morning, so you'll all have to forgive me for smelling a bit doggy and having a big muddy pawprint on my front.

@Seafour, I'm glad your last couple of posts sounded happier. I'm sorry you had some pain, but it does sound as though the general trend is in the right direction - you are awesome!

@Apple, another person sending sticky thoughts to your little pip.

All those having bad time with their MH at the moment - I can empathise, believe me. I've bought a load of sofa cushions, pillows and blankets onto the bus, and I'm going to build a fort and hide, and probably sleep for the rest of the day, just emerging for tea and some of the lovely baking people are doing - it'll be a big fort, so anybody who'd like to hide away with me for a bit is very welcome!

Hello lovely Sea and lovely passengers.

It looks like lots of love and cozies needed today. Sending hugs and 💐 to all who are struggling. I think King's Choir might be the thing for the speakers for a wee while.

I had the craziest dream. I returned to the lovely flat I rented when 21, and found it was still mine. In my dream it had a (very overgrown) garden with lots of roses. My DD and her partner lived upstairs. The most beautiful cornices and fireplaces,

and magically, the toilet had turned into a lovely spacious bathroom. Never saw the tiny kitchen but I imagine it had also blossomed 😍. The agent told me my rent was paid up through the next ten years, and it was only 202 pounds a month.

I woke up three times and managed to go back to the dream each time. How marvelous.

I've been gone from that flat for 38 years. I guess my subconscious wants to go home.

@Seafour,
Hope the pain is easing of and ur home in time for Xmas.

@applesin sending sticky thoughts

Sorry that I've not been present much, got a teething and snotty little one and managed to bruise my back while running for a lift when Xmas shopping, so in lots of pain (not as much as yours seafour).

If anyone wants a happy thought - finally got round to putting up a stair gate so little man could stay playing while I do dinner etc, he's not best pleased at this and has stood at it shouting "no" all day. 😂

@2018SoFarSoGreat that sounds like an amazing dream!

I'm currently on the train home, have had 2 glasses of wine after work and I'm smashed. At least I realise how drunk I am serious lightweight here.

Has anyone put the kettle on? I could do with a cup of tea and a biscuit. 

@Seafour you continue to amaze me. I so want to meet you in real life. I'm pleased you've had a good day today. My brother and I have a strange relationship. Unquestioningly always there for each other but rarely in contact. I would fight the world for him. I'd tell him straight when he's being a dick. But we message each other maybe once or twice a year, and can go years without seeing each other. But when we DO see each other, the years melt away. And we are brother & sister again, as we always were. It's beautiful really. (Did I mention I'm drunk?)

@applesin May your pip grow into a beautiful apple and evolve into a fruitful apple tree. Stickiness to you. (I did mention I'm a bit tipsy, I hope?)

To everyone on the bus - I love you I'm pretty sure you've guessed that I'm drunk

It's my last day of work today. Whoop!
Can we have some Shakin' Steven Christmas songs on the bus? He's fab!

Good job I never suffer hangovers, I've got a funeral to go to tomorrow.

Another one sending stickiness to Apple - I bought a Pritt stick last week which I haven't used so I'm sending it to you in the hope that it works.

Hope you're OK havering, there's hot chocolate brewing on the portable stove for you and anyone who needs it - whipped cream in the fridge. I'm bringing my entire kitchen onto the bus

Sea I'm not going to lie, the rods are a massive PITA, but you will learn to get used to them. My metalwork has only just properly settled and fused, eighteen months on, so take it easy even if you feel able. One last fun fact: trampolines are a no-go with rods! So if anyone brings a trampoline onto the bus.... the "rod squad" will give it a miss

@Seafour glad you’re on top of the pain. Rupert is very snuggly & I’ll pop up a photo of him in his Christmas outfit (couldn’t hold off any longer!) He is great pain relief so just shout at whatever hour of the morning!
@Applesin I hope your little seed sticks xx

Here he is xx

I've just had a quick skim through posts and wanted to give a cheery wave to everyone. Especially Sea for having to go through so much shit, hopefully not literally and coming out the other side. I really hope things continue in an upward trend. Congratulations to apple and your tiny pip - keeping everything crossed for you. And to havering I used to live in Havering but that's beside the point So so sorry to read of your brother's passing. Thinking of you and your family, and sending gentle hugs to all those that need them.

My dd needs rods too, but has other problems which are preventing surgery, so we will just have to wait. Her surgeon has said she can wait, but that means she will probably put it off until she is desperate. The surgery seems so frightening. You are very brave sea. I hope your rods are doing what they are supposed to.

Baby gruber is so squisahble! How lovely he looks, very cosy and content.

Aww that pic has made me broody despite the fact that so far my evening has gone, lie down with baby to get her to sleep, sit with monster sized 4 year old until she falls asleep and back to the baby for a repeat performance!

Oh my gosh I have no idea where the week has nearly gone!! How on earth do all of our lovely children break up tomorrow😬

So much progress this week, lots of ups and downs, lots of pain and dick shit doctors that don't want to listen, a physio that quite frankly terrifies me as an able bodied person and the absolutely wonderful news that all being well Seafour will be home for xmas!!!

It's been the most frightening episode of our time together, I am used to saving Seafour's life on a regular basis, I can handle that!!! I can absolutely give the dick shit doctors what for, it's just the level of pain that she's been in this time, it's been so hard seeing that and the only thing apart from her Dh that's kept her going is this thread!!!

I have never been on Mumsnet, I am always far to busy as a single parent to 3dd but oh my how you have all restored my faith in humanity and the sisterhood!!!! Every message that you have taken the time to post we've both read, all your amazing words of love and support have carried Seafour through and absolutely inspired me that when you do need someone there is actually someone there❤️❤️❤️❤️

Applesin I hope that little seed is burrowed right in!

And for everyone else that's not having the best time or is in need of a hand hold Seafour and you guys have taught me that in your hour if need there's always someone out there willing to help, support and offer copious amounts of kindness❤️❤️❤️❤️

Gruber he is so beautiful, I'm looking forward to having a snuggle with him tonight when I wake up in pain and need some extra special comfort. What an amazing woman to grow such a beautiful wee man.

Applesin I'm sending your precious little pip all of my love and I've said an extra sticky prayer with the hospital Chaplain this afternoon for you and your precious family💕

Thank you so much to everyone who wrote kind messages to me, but especially to you, Sea.
Gruber, your little boy is gorgeous. It's a long time since I've held a new baby so I might sneak along the bus for snuggles later.
Applesin, wishing you all the best.

But most of all...
Sea, wow, you sound like a new woman. I'm so pleased for you. I really hope and pray that things will continue to improve for you, and that you get your wish to be home for Christmas.