When I learnt about this case, I am going to be honest, I felt disturbed by it. After reading the report that @Somuchgoo has posted I feel even more deeply disturbed and I will try to articulate why.
What particularly troubles me is that the medical opinions apparently weren’t unanimous. The treating doctor and parents believed she was suffering unbearably and hopelessly, but a second group of doctors reportedly disagreed. They said her seizures were not continuous, that there wasn’t continuous unbearable suffering at that time, and that there were still other options, including palliative care and alternative medication that might improve seizure control. A third doctor was then found who agreed that euthanasia was the only option.
I think what I’m struggling with most is the finality of it. She was only two, unable to understand or consent to what was happening, and there was disagreement among doctors about the extent of her suffering and whether other reasonable options remained.
I believe profoundly that a person's dignity and value doesn't depend on their abilities, behaviour, personality or quality of life. I believe suffering should be treated and compassionately accompanied, but that deliberately causing someone's death is fundamentally different from relieving their suffering.
I don't think the parents necessarily acted out of anything other than love and desperation, and I don't want to judge people facing something unimaginably awful. But I can't shake the feeling that something very profound has been crossed when the solution to a severely disabled child's suffering becomes intentionally ending the child's life — particularly when there was medical disagreement about whether that was truly the only option.
I think that's why this has affected me so deeply. It isn't just the individual case; it's the underlying question of what we believe makes a human life worth protecting, especially when that person is extremely vulnerable and unable to speak for themselves.